I know their arnt many on her who know about overactive parathyroid hormones but I have now received my medical records I was interested to look at what the endo did about me being diagnosed with hyperparathiyroidism in 2004..it reads.. She is a little fixated on the idea that her thyroid is responsible for her symptoms because of the way she felt during her episode of thyroiditis I explained her symptoms are the menupause this letter is dated 2015..he goes on to say their was no sweating on the palms she did however have a clammy neck and head she has no lid lag or eye signs to suggest ongoing thyroid disease..... (I'm now looking at a letter dated 2004 from my previous gp who has stated he thinks I have primary hyperparathiyroidism all my endo did at that time was a wait and see approach waiting for god knows what.. I clearly had hyperparathiyroidism as my PTH was raised as was my calcium.. But nothing was done!!!! I now have no thyroid due to it going toxic in sep 2018...finally removed in May 2019...i feel I have been really let down by gp and endos all this time and I didn't even know I had thyroiditis.. But sure this is wrong as both my parathyroid hormones were high along with a raised calcium eventho the gp says mild hyperglycaemia either or both indicate hyperparathiyroidism.. I'm mad as hell.... 😠😠😠
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birkie
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I think with such a busy forum your post has been lost. Hopefully others will chip in here now.
Please excuse my ignorance as I know nothing about hyperparathyroidism, but was your thyroid removal as a direct result of under medication or lack of medication? If so, surely you have grounds for conplaint. The old "menpause" excuse is far too convenient. Do your historic results show a clear pattern in your degenerative health and deteriorating thyroid?
I had to have my thyroid removed due to my gp insisting all my symptoms were down to the menupause so from 2015 until 2018 I suffered appealing symptoms I kept telling him it was not related to the menupause but it fell on deaf ears as I said until another gp at the surgery saw me and diagnosed me their and then even before getting bloods she was right I had overactive thyroid it was so toxic it had to be removed 😠 I've also seen in my medical records that I had 3 high calcium levels in 2015 but nothing was mentioned to me about this finding no other tests were done I did have a TSH done in 2016 which was 0.86..but no T3 or T4 was done... I have calcification of both wrists knees, shoulder, I have plaque. Calcification in the arterys of the heart I've had several bouts of passing kidney stones, and had calcium crystals in my urine in 2004 with a high PTH...
I am so sorry you have had to go through that 😔. It sounds like a total lack of diligence and far from the understanding and care you expect of a healthcare professional. I would complain. You haven't just had a few random symptoms that could be explained away (bloody menopause is such a convenient get out for GP's), but life and a health changing operation caused by what surely must be negligence.
Hey birkie. Sorry to hear you’ve been let down and treated poorly 😞 So do you know why your thyroid was removed? Obviously hyoerparathyriod and hyper/hypothyroidism are two completely different conditions. Have you been treated for the hyperparathyriodism?
How do you feel now? Do you want to share your blood tests? Do you need any help? Obviously just venting is acceptable too! 🤗
I was eventually diagnosed with graves in 2018 but my illness had been ongoing since 2004 .ive never been right since then I was ill and after 8/9 weeks of my gp saying I had a kidney infection it turned out in fact I had a high calcium level and pth level but my endo just left a wait and see approach so nothing was done I did see another endo who said their was no just cause for hyperparathiyroidism even tho I had high calcium levels, I knew nothing of hyperparathiyroidism then so just went with the endos advice. I now know you can have hyperparathiyroidism with a high calcium you don't have to have a high PTH and vice verser... Normal calcium with high PTH.... That's what I have now my calcium has gone up intermittently but my pth is high at 9.5..pmol/L... Ranges.. 1.6..6.9..pmol/L..
My calcium is.. 2.69..mmol/L...ranges..2.10..2.60mmol/L..
Awww birkie. So poorly treated 😞 I’m afraid I don’t know much about hyperparthyriodism except that my MIL had one overactive parathyroid gland and it was removed. So I can’t help you with the results you’ve posted but hopefully another member has some wisdom.
What about your thyriod results are you happy with them?
😞 no they’re not good. Were you told why you are on T3 only? Did they try combo first? I don’t know how you’re getting through your day with such a low T3. It’s only 10% through range.
I use this calculator to calculate the through range
Most of us need to be much much higher in range esp when we are supplementing, 70% or over. For example I do better when I’m at around 90% through range.
I know their not good my gp is useless.. I'm on T3 because again after trying thyroxine T4 for over 8 months I had bad stomach /bowle problems (I have colitis) I told my gp of this but my gp and endo insisted I keep on them.. Upshot I was lactose intolerant so I asked to try T3 lactose free... I told my gp my T3 was to low but that again fell on deaf ears because their with in the magic NHS guidelines you must be OK...Well no... And now I have the pth to deal with and my endo is again dragging her heels on this... You would think given that I had this in 2004 and she dealt with me she would be more vigilant with me but no I'm still waiting to be seen.. 😩😩😩
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Advice on results please :-)
New gp + latest blood results
