I have recently swapped from 1 grain armour and 50mcg t4 tirisont to 100mcg tirsont and 9.5mcg of compounded t3.
I can’t even explain the level of fatigue I feel as though I have been hit by a bus (whole body aches), can hardly move or get out of bed. I am also experiencing. I am having a lot of histamine reactions, asthma’s got a lot worse, I am constantly hungry and falling asleep during the day. Between 2-4/5pm I can’t function at all.
So my Dr upped me to 125mcg t4 but still 9.5mcg t3.
I don’t know what to do or whether to swap back to my old meds. I was still having problems even on those as the fatigue was bad (but not this bad) & the body aches, hair loss was crazy. The reason I didn’t just up NDT is due to heart palps and going hyper as soon as I increase over 1 grain. I also get palps with the armour and tirosint mix. I do have PoTs so this obviously makes me quite sensitive.
I am supplementing for low vits, my iron levels are low 17 on the nhs range.
You can see by my bloods they are okish but t4 is still low which is why I had the 25mcg increase.
any help would be appreciated I just feel so unwell and I am unsure what to do for the best…
Written by
Ajva
To view profiles and participate in discussions please or .
You need to give more info about when that test was done and when you last took each of your thyroid meds before the test. If you're taking T3, you don't need a high FT4 level.
Well from your description of how you feel, I'd say you're on too much of both meds. Your T3 level is quite high considering your last dose was 13 hours before. And you don't need a high T4 level when you're taking T3. Your doctor should know that.
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement
I have heard this as well. Always conflicting info and experiences too. I think I do need a higher t4 as mine was not even in range on NDT and I felt dreadful with really high t3 and really low t4
Some folks on here report that they need both ft4 and FT3 into the top third of their ranges to feel well.
It took me 2 years of dose adjustments to feel I was on a combo I wanted to stay on longer term rather than more changes. For me this was happened when ft4 was 50% and ft3 was 72%.
I am 2.5 years in on meds and I have had so many dose changes and medication changes. Was on levo (nhs), NDT, levo again, NDT, T4 and t3 combo, NDT & added levo, now t3 and t4….
I can’t seem to find the right combo and dose to take my symptom away. I am deff Having less heart palps and BP issues on this combo now but it has increased the fatigue a lot.
Yes, I agree some do need high FT4, but I was taking symptoms into account which sound very like over medication. If Ajva doesn't feel any improvement on increased T4 dose then she's likely over medicated and either T4 needs to be reduced, or T3 needs to be reduced, or even both.
yes I agree, I can’t even work out what is going on. The higher my dose is going the more fatigue I am experiencing. Can over dosing in t4 cause bad fatigue as well?
Yes, in my expereince too much T4 can definitely cause fatigue, especially when you're already taking T3. I know some people won't agree with this, but if I were you, I'd skip a day of both thyroid meds and see if you feel any improvement at all. If you feel the slightest bit less fatigued, it's probably an indication that you're over medicated.
hey I don’t agree. My friend who is in this forum has Pots and couldn’t raise her armour without enough cortex. I myself have been diagnosed with dysautonomia (which was characterised by an erratic heart rate often going sporadically above 200, breathlessness, dizziness, fainting etc.) taking cortex has stabilised many of those symptoms.
T3 doesn’t have much to do with Pots IMHO, but you do need to support your adrenals if you want to raise NDT/T3. Pots symptoms are often just unsupported adrenals.
Dr p’s book goes into a little explanation about this. Adrenal support is essential for raising any thyroid meds, esp. T3.
no I do see what you mean. You have to have good adrenals to be able to tolerate any form of t3 or NDT. But some of the fillers in armour and t3 meds can also cause palpitations. Some of the recent papers I have read online also conclude that t3 shouldn’t be used on people with heart conditions (ie pots).
So I do slightly disagree. Also my pots is histamine related as well as I also have MCAS and multi system dysautonomia.
It is complicated as every person is different. But I do not do well on any t3 over 10mg my HR is crazy and blood pressure is all over the place
Also thank you for letting me know about the cortex supplement. I never knew this existed. Could you recommend one at all?
But I do not do well on any t3 over 10mg my HR is crazy and blood pressure is all over the place
I believe this is because you’re not supporting your adrenals. The same used to happen to me before I took cortex, but happened even more dramatically to my friend in the same position.
Papers you read online are completely scaremongering re. T3 and the heart. Your heart is in far greater danger if your hypo and not on enough t3!
You would need to test your cortisol before supplementing, adrenals are an organ like any other. (I say that because I never used to give them the respect they deserve and would blindly supplement). You’d need to start with an adrenal saliva cortisol test, can get one from regenerus. No caffeine 24 hrs before or during collection and no biotin containing supplements a week before.
I’ve seen massive gains using adrenavive, I take a total of 600mg split across 3 doses that I worked out according to my results
thank you for this. It is actually very helpful. I did have a saliva test done through medichecks but they have removed it off their website at the moment. Where do you get your tests from? My saliva did show a few issues but with high cortisol. I have been tested for addisons.
I will try and source another test and go from there before supplementing.
you’re welcome I would get the regenerus test if I were you as they do DHEA, which is really handy. I didn’t find medichecks a very realistic reflection of how I felt so I wasn’t sure about their test. Good luck 😊 it’s hard work all this xxx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
I don’t agree. My friend who is in this forum has Pots and couldn’t raise her armour without enough cortex. I myself have been diagnosed with dysautonomia (which was characterised by an erratic heart rate often going sporadically above 200, breathlessness, dizziness, fainting etc.) taking cortex has stabilised many of those symptoms.
I’m loosing it
Will I ever be able to loose weight again?
WANT TO LOOSE WEIGHT
Hypothyroid and loose stools.
Metabolic Rate and loosing weight.
