I am currently on 1 grain armour and added in 25mg of levo (tirisont) 3 weeks ago. I can not up the armour as my body can not tolerate anymore than 1 grain armour. My t3 is already on the higher end near 6 (have posted recent labs a few weeks ago). So my functional Dr suggested adding in extra t4 as my t4 is low and tsh high, t3 high.
It is too early to do bloods I need to wait another 3 weeks. But I am getting some hyper symptoms for example sweating, extremely hot constantly, shaky breathless and feel quite anxious, extreme fatigue.
Overall I am just wondering if it is normal to have symptoms when increasing meds. Does it take time for your body to adjust?
Any help would be appreciated.
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Ajva
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Don't forget that with the extra Levo that you have added, depending on what natural conversion you have some of this will convert to T3 so you may have pushed your T3 level up even more.
I have a feeling that I do convert really well as my t3 is always top range. I might even be better off on just t4.
That’s what I am thinking reducing 1/4 grain and keeping the 25mg levo still. Just so I still have some t3. Do you think I should do bloods or just start over with a 1/4 grain reduction?
Could you have been experiencing overmedicated symptoms instead of being hypo maybe? This happened to me… they can be really similar? Did you check your blood results before taking NDT? I find T3 works for a few months and then it turns round and bites me on the @rse! 🫣
So bloods showed I was really hypo before starting the added t4. I am without a doubt over medicated at the moment because I have a lot of weird symptoms. If I over dose on NDT I feel dreadful. But I don’t feel that level of dreadful over dosed on t4 (currently)
Yes I get that too (on added T3) and it was really debilitating. Overmedicated on T4 I just get super sleepy and can’t make it through the afternoon…even with splitting it. I’ve seen you’ve said you might try T4 only. That’s what I’m doing and (according to blood results) I’m running myself slightly under medicated. Can’t get any higher. It’s not perfect but it’s better than adding T3 in the long run for me. Trouble is you can start off feeling great and then it doesn’t last, I find.
I have had a lot of trouble the past few year tolerating thyroid meds. I couldn’t tolerate any generic levo brands. Have allergic reactions (I have pots & MCAS) so the fillers were causing me issues.
Have only recently been able to source tirosint. I tried to do a straight swap from NDT but did not go well. I seem to be able to tolerate a low dose of NDT but not over 1 grain. It has been very complicated but I am looking at increase tirisont and decreasing NDT so eventually on just t4.
I used to take my NDT 3 times a day but recently switched to 2x. And that works much better. I now take 2 grains in the morning and 1.25 at 3pm. That is the same dose as before, which is obviously much Higher than yours
So we don't have "generics" of Levo, not in the same sense that they do in the US.
Have you checked out helvella 's list of thyroid meds and their ingredients? Click on link then on yellow T4 tab under UK, that will take you to page 28 which is the start of the UK brands, a summary which shows the main excipients that cause adverse reactions then each brand is detailed in the following pages
Ah sorry I am getting confused. I mean brands for example teva, mercury pharma etc I have tried them all and do not do well unfortunately. I will have a look at the list
If you don't get on with the tablets then there is liquid Levo which some members have found better, it's more expensive so doctors aren't always keen to prescribe but we need what we need and cost of medication shouldn't be a barrier.
It is in the NICE guidelines that liquid Levo can be prescribed:
If persistent symptoms are reported when switching between different levothyroxine tablet formulations, consider consistently prescribing a specific product known to be well tolerated by the person. If symptoms or poor control of thyroid function persist (despite adhering to a specific product), consider prescribing levothyroxine in an oral solution formulation.
No reason at all for you not to be prescribed liquid Levo in your circumstances.
I have tried liquid levo I couldn’t get on with that either. I seem to be able to cope with tirisont but it is costing me a bomb for that and NDT every 3 months.
Yep I have. I get the same reactions with all brands. Plus my GP won’t even put me on a substantial dose because I have heart problems. So they decided it is best to under Medicate me instead.
I actually meant exacerbated but my silly phone just likes changing my words 🤨 I don’t blame you for giving up on the NHS. I have as well. Good luck with finding your answer.
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Does it make sense... still fatigue and joint pain when T3 is high-normal but T4 very low?
PLEASE HELP - Should I increase NDT?
Need help with new results and symptoms
