Just a question an endo who I have never seen has reduced my T3 dose.. ( I was talking 40mg T3 teva lactose free split 3 times morning /afternoon /night) I started on T3 only in around June 2020 starting low and building up till I got to 40mg my bloods were as follows.. TSH.. 0.05...range.. 0.03..4.50) T3.. 6.4..ranges 3.1..6.8)..on this the doctor contacted the endo as she said my symptoms were of over medication : (symptoms) frequent trips to the toilet especially through night server thirst, bad bone pain, headaches, cramp in muscles, feeling sick with a metallic taste in the mouth, palpitations, buzzing sensation in bones, insomnia, sweating, shaking with tremors, fatigue feeling totally unwell.. these symptoms started around April 2020 with 2 over range calciums then 2 over range pth, my gp and endo as put all symptoms down to my T3 meds, eventho I started with the symptoms in April 2020 and didn't go on T3 till around June 2020..I've now been on the 30mg ( decrease from 40mg for 8 weeks (having thyroid bloods taken this Monday coming so won't be able to post those results till they've come back, but the symptoms that have diminished slightly are only tremor and the metallic taste, all others remain 🤷♀️ (got a diagnosis of probable primary hyperparathiyroidism in Aug 2020 and have been having blood tests for primary hyperparathiyroidism since but have since found out in 2021 the blood tests were performed wrong, so had one done again at Hexham general on 24th sep 2021 and that was normal so I have been discharged from that clinic.. I'm now just so sick of this back and forth with my surgery and getting no diagnosis of these symptoms other than its the T3.. I'm now thinking of coming of this drug as my endo/gp claim its causing my symptoms!! Obviously I will need to return to t4😔 which I didn't get on with as the endo said I was either not absorbing (I have colitis and are lactose intolerant) or not converting, I'm honestly at a loss should I pander to the endo/gp in relation that the T3 is causing all my symptoms as I say by calling their bluff and coming off it I honestly don't think coming of it will make any difference to my symptoms as decreasing by 10mg as made no real difference to my symptoms , if I wasn't so unwell I certainly wouldn't be bothering my gp with this.. 🤷♀️
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birkie
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Hi❤️Tried taking T3 in one go but felt hyper.. (I have no thyroid) so I wanted my T3 at the top end my TSH seemed OK at 0.05..but gp and endo are panicking 🤦♀️.. My results of TSH 0.05 and T3 of 6.4 seemed excellent, so not hypo.. I don't have a uti I check my urine with dipp stick test regularly, but calcium is released in to the blood then in to the urine through the kidneys, I've had and passed kidney stones, last vit D done was sep 2021 at 42..ive been on 3000iu vitamin D supplements since 19th September 2020 when my vitamin D was 29 it went to 52 now back down to 42 the body will keep the vitamin D down to protect you from high calcium, I'm sure my ongoing symptoms are due primary hyperparathiyroidism and not my T3.. But I think the only way to shut the gp/endo up is to come off it, I still have shaking and a slight tremor these are also symptoms of to much calcium 🤦♀️ anyway it will be interesting to see what decreasing my T3 by 10mg as done to my bloods👍 but thanks for your in put its much appreciated ❤️❤️
When we're newly diagnosed we are just like probationers i.e. we know nothing and it is a big learning curve to know that our body cannot function due to it no longer producing the necessary hormones that permits our body to function normally from head to toe.
The purpose of replacement thyroid hormones is that we, the patient, feels well and symptom-free as our body is not producing thyroid hormones.
Dr John Lowe, RIP, died due to an accident but he was a researcher, scientist and expert in the use of T3. He was also an Adviser to TUK.
He began to study hormones when in his teens as his father committed suicide. He was aware how upsetting this was and the devastation of the whole family, i.e. relatives too.
He himself, became an expert on the use of T3 as he discovered how important this thyroid hormone is when he was a teenager.
He took his T3 in the midle of the night when he awoke so that nothing interfered with its uptake.
He took one daily dose of T3 with one glass of water (in the middle of the nigh) and he stated that the one dose saturated all of our T3 receptor cells, and they in turn sent out 'waves' throughout the day and that the effect of that one dose could last for three days.
I have experimented on myself i.e. I took my one daily dose of T3, took none on day 2 or day 3 and my first dose lasted and I had no unusual symptoms - in fact I had no symptoms at all. I am still symptom-free.
You could trial a slightly lower dose and don't be nervous as our body needs it to function.
Sometimes if we're a bit nervous of taking T3 as we may have read negative viewpoints, especially with some endos who don't really have an idea of how T3 affects our whole body from head to toe. We can either increase dose slightly or reduce dose slightly.
Previous to T3 I also trialled NDT (natural dessicated thyroid hormones) when it was prescribed in UK but it didn't improve my health, whereas it works for many people.
Unfortunately those we would expect to be very knowledgeable aren't really as they withdrew NDTs and left many people anxious and worried - just like T3 but thankfully that has now been restored but only if an Endo prescribes.
NDTs - natural thyroid hormones -were first introduced in 1892 and it saved lives from then on.
Were you a bit anxious on taking the T3? You could trial a lower dose.
I rarely have blood tests now, as I feel well and have no symptoms.
Our brain and heart have the most T3 receptor cells.
25mcg of T3 is 'in its action' approx equal to 100mcg of levothyroxine. It is the active thyroid hormone whereas T4 is inactive and has to convert to T3 and some people cannot do so effectively.
I have no clinical symptoms - except if there was something untoward with the T3 I take. i.e. a change of some incipients.
Hi shaws❤️As you know from my previous posts I felt I was doing OK on T3 in fact I couldn't wait to get on it as T4 was doing nothing for me.. I started on a lower dose at 10mg then built up to 40mg I started taking it in around June 2020, but in April 2020 I started with unusual symptoms I never linked with my thyroid never had these symptoms when I was over active (graves) I started wanting on the toilet more especially through night I also started waking very thirsty very dehydrated so the cycle began I was very thirsty so I drank way more then are never off the toilet, I then had server bone pain like my bones were humming (vibrating) bad headache, feeling very sick, back to server fatigue, shaking and sweating, remember I was not on T3 I was on T4 at this point I went on to T3 in June this was around April, I was put on T3 but my symptoms have remained, told gp he said its your thyroid meds I was only on 10mg t3 but felt hyper still.. I looked in to my results from the last 2 done and noticed 2 over range calciums eventually got gp to send them to endo who gave me 2 blood tests one in June 2020..PTH..(8.1..calcium 2.53..) then another in Aug 2020..(PTH.. 9.5..) calcium 2.54..) both these results show primary hyperparathiyroidism
Cal..range.. 2.10..2.60
PTH range.. 1.60..6.90
As I said I received a letter saying I probably have primary hyperparathiyroidism and so that journey began after several blood tests I found out they have not been done correctly had one done in Hexham hospital sep 24th 2021 that came back normal so they dismissed me😠.. I'm so sick of them blaming the T3 on my symptoms, I certainly never needed the toilet as much to urinate was not thirsty like I am now body pain is so server I'm walking like I'm 90 didn't do that even when I had graves.. That's why I think I should come off T3 just to prove them wrong.. 👍 I'm still fighting the fact the endo says my last parathyroid /calcium pannle are normal ( we on here no normal don't always mean your well) because that's what primary hyperparathiyroidism does you can have normal levels one month then they can go out of range the next.. Well the fight continues, 🥊🥊
All test for diabetes negative, but PTH was over range as is my calcium on 2 tests and one test PTH very top end calcium very top end indicates primary hyperparathyroidism, this is confusing the gp as they keep blaming the symptoms on thyroid meds🤦♀️🤦♀️
As you are aware, I'm not medically qualified and like many on this forum we have to 'do it ourselves' if GP or Endo cannot figure out why we've severe symptoms.
I note you are taking 40mcg of T3 but are you aware that 25mcg of T3 is equal to around 100mcg of T4, so you are taking approx 180mcg of T3 it may be too much for you.
I think if you start again on 25mcg of T3 once daily with one glass of water for one or two weeks (if any severe symptoms occur before the week stop taking and you may have to trial a T4/T3 combination).
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