Hi after seeing a endo and having bloods done my results are..
Kidney function normal
TSH 0.54
Free T3 6.2
Free T4 25
Cortisol 658
FSH 4.3
LH 3.3
Testosterone 11.8
Thyroid antibodies positive 96
Serum B12 normal
Folate normal
Cholesterol 4
HDL 1.1
LDL 2
Not sure what any of this means but the doctor said all was good. Does anybody think any different?
Colvic
For anyone to interpret your resuts and comment meaningfully, you need to add the reference ranges please. If these results are in an endo's letter without the ranges you will need to contact the endo's secretary and ask her to give them to you or send them to you. If you have a print out of your results the reference ranges will be at the side of the results, sometimes in brackets.
Also, please tell us what thyroid meds you take and when was the last dose before this tests. Last dose of Levo should be 24 hours before test, last dose of T3 or NDT should be 8-12 hours before (splitting dose and adjusting time the day before if necessary).
Also do you take any supplements, if so what. Add results/ranges for vitamins as "normal" only means somewhere in range.
The only thing we can tell you so far is that your positive thyroid antibodies confirm autoimmune thyroid disease, known to patients as Hashimoto's, and that your cortisol result seems to be quite high.
Hi thanks for your reply. That's all the info I have on the letter from the doctor. I take 175mg of levo per day and I took them at 5am before getting my bloods done at 10.30. The doctor suspected hashimoto before getting the bloods done but now the results are back he said all is fine and that my thyroid isn't to blame for my dizziness (like being on a boat).
Colvic
I haven't seen any FT4 reference range on the forum go higher than an upper limit of 24 so it could very well be that yours is over range. However, taking your Levo 5.5 hours before your blood test means that you have a false high FT4 result.
Did you get the private test done that was recommended in response to your previous post? Timing of last dose of Levo was also given on there.
Postive antibodies = Hashimoto's regardless of what your doctor says, it just goes to show that like most doctors they know very little about anything to do with thyroid.
As you have Hashi's, this can lead to gut and absorption problems which leads to low nutrient levels. Just because yours say "normal", they could be at the very bottom of their ranges and need supplementing.
Ask for the reference ranges if you want your results interpreted, we can't do that without them.
Thanks I will call them tomorrow and ask for ranges. This was a private endo specialist that I have paid quite a lot! He fitted a blood glucose monitor that I had for 2 weeks and it showed my glucose was dropping to between 2.2 and 4 and that my symptoms of dizziness and weakness Came on with these lows, some days no matter what I ate my glucose levels wouldn't come up. I asked if I should put off taking my levo until after the test and they told me not to.
Hi Colvic,
The blood sugar reading of 2.2 is very low. My daughter is very hypo (shaky/dizzy/weak/sweating/vision problems) if her blood sugars drop that low. Being hypo will raise cortisol for several hours, which may explain your high am result (you are almost certainly hypo during sleep) - I don't know if cortisol impacts on blood sugars, so I could be way off base here.
Did the endo explain that low blood sugars can indicate that you may be heading for diabetes? The same way that many hypothyroid patients initially start with a hyper phase ie Under attack, the islet cells kick out too much insulin before packing up.
I would suggest that you need to obtain all your results with ranges, and then post here for advice on thyroid/vitamins. Blood sugars/Cortisol etc........I would take to your GP.
Hi thanks for your reply. I didn't know there was a link so that's interesting. He just told me I didn't have diabetes and that all my other results were fine. After feeling like this for 6 years and so many tests I decided to go private but I feel like I have hit a brick wall again.
Was you cortisol test taken at the same time as the rest of the bloods, so 10.30? Did the Endo not comment on your cortisol level? It is rather high for 10.30am, the attached chart shows what levels should be during the day. What other symptoms do you have? Was this private Endo conversant with pituitary/adrenal issues at all?
Hi, yes it was at the same time. He has said all is fine but I'm still having trouble with dizziness, weak legs, one eye tends to bulge at times, very hot and my blood glucose drops very low.
Have you put on weight, especially around your tummy? Do you have high blood pressure, round red face, bruise easily, have trouble sleeping, or stretch marks? have a look at Cushing's syndrome.
Yes I have a fat belly haha, my blood pressure is high 162/90. I do have trouble sleeping at night but fall asleep during the day. I don't bruise easily though.
Just underlines why it’s so important to get FULL Thyroid and vitamin testing done yourself BEFORE considering seeing any thyroid specialist
Obviously results without ranges are meaningless
All thyroid tests should be done as early as possible in morning before eating or drinking anything other than water and LAST DOSE LEVOTHYROXINE 24 hours before test
Positive for Hashimoto’s
Cortisol looks far too high
B12 and folate- Normal is not a result…it’s an opinion….often a wrong opinion
No vitamin D or ferritin
Strongly recommend getting full thyroid and vitamins testing done privately
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Also EXTREMELY important to test vitamin D, folate, ferritin and B12 at least annually
Low vitamin levels are extremely common, especially as you have autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
Do you always get same brand levothyroxine at each prescription
Which brand
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
bluehorizonbloodtests.co.uk...
Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test
If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
List of hypothyroid symptoms
thyroiduk.org/if-you-are-un...
Thanks for the info, I have ordered a finger prick test to check everything incl what the specialist missed. It's so annoying the doctors are so quick to say all is well even after 6 years of me going back to see them.
Few GPs seem to know little about how best to treat patients who have dysfunctional thyroid glands.
Members on the forum will guide you towards getting your symptoms to resolve.
When you get your new results, open a new link and also state the ranges of the results. Ranges are in brackets after results.
you have high antibodies this confirms cause as autoimmune thyroid disease.
Technically it’s Hashimoto's (with goitre) or Ord’s thyroiditis (no goitre). Both variants are autoimmune and more commonly just called Hashimoto’s
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Dizziness is often low B vitamins
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal
Before considering trial on gluten free diet get coeliac blood test done FIRST just to rule it out
If you test positive for coeliac, will need to remain on gluten rich diet until endoscopy (officially 6 weeks wait)
If result is negative can consider trialing strictly gluten free diet for 3-6 months. Likely to see benefits. Can take many months for brain fog to lift.
If no obvious improvement, reintroduce gluten see if symptoms get worse.
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
restartmed.com/hashimotos-g...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
ncbi.nlm.nih.gov/pubmed/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
hypothyroidmom.com/how-to-l...
Eliminate Gluten. Even if you don’t have Hashimoto’s. Even if you have “no adverse reactions”. Eliminate gluten. There are no universal rules except this one.
Why gluten intolerance can upset cortisol levels
kalishinstitute.com/blog/gl...
So first step is to get FULL thyroid and vitamin testing.
Come back with new post once you get results
Meanwhile Get coeliac blood test done BEFORE trialing strictly gluten free diet
Most endocrinologists are diabetes specialists and very poor at understanding Hashimoto’s or relevance of needing OPTIMAL vitamin levels
Advice with seeing Endo for first time, and blood results. 
Endo says results normal
Blood test results. Endo wants to reduce t4
Nhs endo and latest blood test results 
Saw Endo today - dismissive of blood results
