Meeting my Endocrinologist Shortly: I’m due... - Thyroid UK

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Meeting my Endocrinologist Shortly

weewillywinkie profile image
4 Replies

I’m due shortly for a review meeting with my endocrinologist and this time I shall take a fresh blood result as follows:

CRP HS: 3.4mg/l (Range 0-5)

Ferritin: 169 ug/L Range 30-400)

Folate: 11.9 ug/L (Range > 2.9)

Vitamin B12: 153 pmol/L (Range 25.1-165)

Vitamin D: 129 nmol/L (Range 50-200)

TSH: 0.69 mlU/L (Range 0.27-4.2)

Thyroglobin Antibodies: 57.6IU/ml(Range 0-115)

Thyroid Peroxidase Antibodies: 84.4IU/ml(Range 0-34)

Free T3: 3.4 pmo/L (Range 3.1-6.8) 8.11%

through the range

Free Thyroxine: 23.pmol/l (Range 12-22) 110%

through the range

My sole medication is 150mg Levothyroxine daily

I interpret these results as continuing evidence that I am poor at converting T4 to T3 and that maybe at least a trial of NDT or T3 may be justified

Do you agree and is there anything else I should be discussing with him?

Thank you so much!

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weewillywinkie
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4 Replies
fuchsia-pink profile image
fuchsia-pink

Yup that's pretty bad conversion! Hopefully you'll get a trial of lio (you won't get NDT prescribed if you're in the UK).

In the appointment itself I'd recommend you get across how - despite excellent nutrients and slightly over-range free T4 you just don't feel properly well. If you're allowed to take someone with you who can reinforce that - so much the better. Have a specific list of WHY you aren't tip-top and that the answer MUST be the too-low free T3.

Then, if you get that prescription (crossing fingers) - remember to take it "low and slow" to start with, You are likely to have levo reduced so do that first. Then a week later, introduce 1/4 tablet of lio with your levo, A week after that increase to 2 x 1/4 tablet (taken apart) etc until you are on a whole tablet, in two or more doses, or you feel properly well, and work out if you feel best in 1, 2 or 3 doses. Hold and re-test TSH, free T3 and free T4. Good luck x

pennyannie profile image
pennyannie

Hey there wwwinkie :

Yes ditto the previous post : and put another way if you need to say something else :

I believe the accepted conversion ratio when on T4 only is 1 - 3.50 / 4.50 - T3/T4 - with

most people feeling at their best when coming in at around 4 or under :

Your conversion is coming in at 6.76 showing very poor conversion and the logical solution is to introduce in a little T3 alongside a slightly reduced dose of T4 .

To find your conversion ratio you simply divide your T3 into your T4 :

Your TSH is in range so hopefully you will be luckier than I was - Good Luck - though it shouldn't even be in doubt, and down to fingers crossed, or tea leaves in the bottom of a cup.

serenfach profile image
serenfach

Read up about conversion problems if you have the DIO2 gene. It looks likely in your case. Mention this to the Endo and watch his eyes glaze over. He may not have much knowledge about this, but it will show him you are taking your health seriously and have read up on it, and may get him to consider T3. Good luck.

weewillywinkie profile image
weewillywinkie in reply to serenfach

Wow! I'm on to Google right now! Thank you so much

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