I have Hashimotos, B12 Def, lichen sclerosis, GERD, Vit D Def, Diverticulitis and a ANA 1:80 Speckled pattern and had one appointment so far with a rheumatologist. I’m on the emergency list for a full hip replacement, which I’ll hopefully have done in Approx 4 months time.
When the Pandemic hit, I couldn’t get my NDT from Thailand and had to find an alternative, as I didn’t do well on Levothyroxine, (8-10years ago and they Dr couldn’t stanbalize my Thyroid) as I had a conversion issue. I tried adding T3 under an Endo referral but had constant headaches, so decided to go down the natural work and my thyroid was stable for 6 years ( had 6 weekly blood test and GP was aware of my new medication).
Over the past 6 months my bloods have gone haywire, thyroid has been out of sink, have been in constant severe pain, (for 3 months) put on morphine and Prednisolone and spoke to Rheumy Friday over the phone, who wants me to wean down the speed to 10mg per day(I’m in 30mg). He’s requested blood tests, including postassium as it’s high , auto antibody tests, kidney function tests as my EGFR was 54 in December but then my TSH was 47 and underermedicated. Luckily I’ve managed to source my thyroid NDT from Thailand again and started to taking it this morning. He’s also requested a chest X-ray. As you can see my bloods are all over the place. I’ve also got an issue with malabsorption of B12 and don’t seem to be absorbing that either. I’ve been deficient for approximately 6 - years, treated for approx 3 every 3 monthly injections. The first year I self injected Hydroxycobalmin, taking 5mg Folic acid and didn’t really feel it was improving my neurological symptoms, so tapered off to SI monthly. I didn’t ask for my B12 to be tested last month but was shocked when my level was only 250 (180-685) I thought it would be at least over a thousand? I’ve always had active T Cell Lumphocytes and at the moment they’re reactive. Drs are all saying I must have had a virus, when I know I haven’t. My lymph nodes up in my neck come up when I’m feeling like I’m having a flare. Can anyone relate to any of this and also does anyone know why my bloods have suddenly gone haywire? I’ve never been borderline Diabetic either. Blood tests in comments box.