Responding to help and advice, phoned surgery a... - Thyroid UK

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Responding to help and advice, phoned surgery and had test results emailed, as detailed:

Lynsie1 profile image
21 Replies

Following all the most helpful advice recently,

I now have my blood test data showing:

“Serum free T3 level = “Serum free triiidothyronine

Value 4.5 pmol/L Normal range 2.9 - 4.9

Serum free T4 level

Value 12.3 pmol/L. Normal range 9.0 - 19.1

Serum TSH level

Value 0.17 mU/L. Normal range 0.35 - 4.94

Serum vitamin level : vitamin D 92 nmol

I also requested B12 test but nothing showing for that. This is the full information supplied.

I suffer with Hypothydroidism (underactive)

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Lynsie1 profile image
Lynsie1
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21 Replies
JAmanda profile image
JAmanda

Your levels look ok but how do you feel?

Lynsie1 profile image
Lynsie1 in reply to JAmanda

I feel exhausted throughout the day. The TSH seems a bit low and looking at the Vitamin D I think that looks rather high.

JAmanda profile image
JAmanda in reply to Lynsie1

You're right the tsh does look low. What does the doc think about that? Your T3 and t4 are well within range but low tsh could indicate hyperthyroidism. I think your vit D is fine.

Lynsie1 profile image
Lynsie1 in reply to JAmanda

Could I be changing from Hypo’ to Hyper’?

Lynsie1 profile image
Lynsie1 in reply to JAmanda

Do you know which vitamins are best for absorbing thyroid meds?

JAmanda profile image
JAmanda in reply to Lynsie1

Others may answer but having read up on here, I try to keep my folate, b12, d3+k2, magnesium to middle or more in ranges. Selenium is the one people say everyone should take a little of to support thyroid.

Lynsie1 profile image
Lynsie1 in reply to JAmanda

There is no test report of Folate in my report, do I need to request that to be done

JAmanda profile image
JAmanda in reply to Lynsie1

As for absorption, you're not taking any meds, are you..? I avoid calcium and caffeine to avoid absorption problems and take my Levo in am and hrt in pm.

Lynsie1 profile image
Lynsie1 in reply to JAmanda

I have osteoporosis and awaiting new meds, this is worth keeping an eye on, thank you JAmanda.

greygoose profile image
greygoose in reply to Lynsie1

Do you know which vitamins are best for absorbing thyroid meds?

There are no vitamins to help absorption of thyroid hormone. What is important is stomach acid. Do you think you have an absorption problem?

Lynsie1 profile image
Lynsie1 in reply to greygoose

I do need to take Zantac occasionally for stomach acid, worth checking on that, thank you greygoose

greygoose profile image
greygoose in reply to Lynsie1

Zantac is for high levels of stomach acid. As you are hypo, you more than likely have low levels - the symptoms are the same. So, if you are not absorbing your levo correctly, that would be one reason, and Zantac will be making it worse.

greygoose profile image
greygoose

Are you taking any sort of thyroid hormone replacement? If so, what and how much?

The TSH is not too low. TSH follows the levels of the Frees. So, with an FT3 almost at the top of the range, the TSH is bound to be low. You could only raise it by lowering your FT3, which is probably not a good idea. :)

tattybogle profile image
tattybogle

From post 5 day's ago... healthunlocked.com/thyroidu.... "This is the latest results she has sent to me saying they are all normal:

TSH - 3.71

T4 - 12.3

Free T3 - 4.5 "

These bloods were done after removal then reintroduction of Levo ... " So, a few weeks off all Levo , then a couple of weeks on 50mcg , then 6 week's on 100mcg ? " .."Yes "

We now have these results :-

TSH 0.17 [0.35 - 4.94]

f T4 12.3 [9.0 - 19.1]

f T3 4.5 [2.9 - 4.9]

There is an error somewhere.. your previous post had replies based on the TSH being 3.71. so that advice will need to be reconsidered if it is actually 0.17 ..... or are these new results from a different blood test , if so what dose Levo ? and how long on it before test ?

Lynsie1 profile image
Lynsie1 in reply to tattybogle

The first data was left on answerphone by the GP, therefore the advice to obtain a printout/email was helpful. As I mentioned previously I am concerned the GP trying to handle my case is causing confusion. I believe I need to determine if she was testing correctly for ‘Hypo’ and not ‘Hyper’. She tried to phone me yesterday, for whatever reason, but I was unavailable. My aim is to ascertain where a problem may be to enable me to try and contact another GP to get some clarity. Everyone has been so supportive while coping with a difficult situation.

tattybogle profile image
tattybogle in reply to Lynsie1

She certainly is causing confusion if she leaves you messages with incorrect test results... not surprised you don't have any confidence in her . i would contact surgery again and ask for confirmation that the 0.17 set is the most recent set of results, and ask if GP's message of TSH 3.17 was an error.

As for 'testing correctly for hypo v's hyper' ... well there is no different method of testing as such ... just interpretation of the TSH/fT4/fT3 results and the correct antibodies are tested (TPOab done by GP for hashi's or TGab done by Endo for graves ) ... why are you considering 'Hyper' ?

It seems she was questioning your original 'Hypothyroidism' diagnosis ... that would be why she stopped Levo.. to see what your thyroid levels were without any.

Have you ever had TPOab 's tested to confirm a cause of hypothyroidism as being Autoimmune, or was there another reason for your hypothyroidism diagnosis /original prescription of Levo ?

In relation to the set of results you posted today .. if they are correct and the 3,17 was an error on GP's part... then the TSH 0.17 ( with fT4 comfortably within range) will suggest to GP that your current dose of 100mcg is correct.

If your fT4 had been near to /over top of range , then a TSH below ref-range might have suggested to her that your 100mcg dose was a little too much , but fortunately she seems happy with 100mcg for now .. possibly because she sees how relatively low fT4 still is despite TSH being a little below range (i'm assuming a lot about her competence here , and she's done nothing to deserve it if she can't even report a TSH result to you correctly,,, but first check who's mistake it is... ie. does the email have a date of test on it ? )

* Edit * to be clear . i'm not saying 100mcg IS the correct dose for you , you could well need a little more.... I'm just saying the lab 'comments' and GP's interpretation of results will probably be that it is Ok to leave it at 100mcg, because they won't be very interested in your fT4 being low in range.. and they will not be keen to increase dose because TSH is already below range.... usually they just concentrate on TSH and it it goes below range on a dose they panic and start thinking you are overmedicated .. which is a slightly different thing to 'Hyper'... but they often panic and reduce dose anyway.

Lynsie1 profile image
Lynsie1 in reply to tattybogle

Hi tattybogle, It was the latest test on 14/04/21. I have not heard of TPOab.Not only did she stop my levo but put me on liquid iron supplement which caused 3 days black diarrhoea, caused torn ligament in the upper lumber and landed me in A&E plus 4 weeks unable to sit and physio to recover (another GP said I was not anaemic, it was this GP that put me on the iron after testing! Therefore I am having concerns about this GPs ability. I have suffered enough from this GP and can move away if I can determine what I do need to address, otherwise I will wait for the next bloods due in a year and have something to compare with the help I am receiving from the Thyroid community.

tattybogle profile image
tattybogle in reply to Lynsie1

Explanation i have just done for someone else on TPOab :-"Anti thyroid antibodies ...TPOab (thyroid peroxidase antibodies)

If raised ,these show an autoimmune cause for hypothyroidism and their presence means the person is more likely to eventually become 'overtly' hypothyroid.

Which means they should keep an eye on your thyroid function tests in the future.

The antibodies recognise bits of thyroid protein in the blood (where it should not be) and attach to it. So they are sort of 'clean this up' labels.

So if they are found (at a level above 'normal' reference range ) it shows that the immune system attacked a bit of the thyroid gland.. which is how the protein ended up in the blood.

This usually happens very slowly , but eventually if enough of the thyroid is damaged then it becomes unable to produce enough thyroid hormones T4/T3, and your blood tests will show a raised TSH (thyroid stimulating hormone) and low fT4 levels, an you may have symptoms of hypothyroidism."

You seem to have had an unusual reaction to Iron supplement.. more often it makes people constipated not diarrhoea.

Stopping Levo will have messed you up too though , but again if Levo withdrawn you would usually expect to see constipation not diarrhoea.

tattybogle profile image
tattybogle in reply to tattybogle

i think what you need to address is

1. Why was she questioning your hypothyroidism diagnosis and thus withdrawing Levo from you.

2.Why was she leaving you a message with an incorrect TSH result in it,, did she misunderstand which result you were requesting, ie was the 3,17 from when you were taking no levo .

3. do you fee well again on 100mcg , and happy to wait for an annual blood test , or do you still have symptoms related to hypothyroidism on that dose.... if so maybe give it a few weeks more to see it they improve and if not ask for another blood test in a few months time since your fT4 is not very high.

Lynsie1 profile image
Lynsie1 in reply to tattybogle

These are very good questions, thank you tattybogle!

tattybogle profile image
tattybogle in reply to Lynsie1

:)

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