Hi all. I'm feeling ill and need to help myself fast. I'm a long, boring complex case though. That's the only catch.
Diagnosed by the lovely Dr P a good few years ago. Was severely hypo. Bedridden most of the day. Started NatureThroid under his guidance, upped nutrients, slowly recovered, and dozens and dozens of symptoms disappeared. Read endlessly about hypo.
Suddenly NatureThroid potency issues, then production ended. I've used up all my emergency supply two weeks ago. NO thyroid meds at all for 2 weeks. Sigh. I'm starting to deteriorate, and it's no fun. It's affecting my arms a lot, almost constant lower back pain, achey joints, tearing muscle spasms and pains.
HOWEVER, here's the fun bit. I likely have mast cell activation syndrome type issues. I only eat 5 foods. I have nasty gut flares. It's NOT IBS, food intolerances or just some tummy trouble. It is usually a rapid reaction to the 'wrong' foods, substances etc. MCAS is a type of immune disease involving mast cells. They are found throughout the body, but are also abundant in the gut. A flare can last 5 days sometimes for me, during which time other foods are highly likely to get rejected too. And stay rejected. Therefore, if or when I flare, I pretty much starve most of the day or risk losing another food. I struggle and suffer as my tummy truly hurts so badly when it's hungry, but is utterly terrifying when it's flaring. I also become super cold, lightheaded and angry if I'm forced to stay hungry. As someone who had extremely poor adrenal function when I saw Dr P, this isn't too surprising. They're much better, but hunger is hard, especially as it too can make an MCAS flare become worse. I have periods of time during each day when I can't eat as my gut flares of its own volition, but it also gets more agitated by the hunger, and I have to just see it through. I eat once it's stopped churning and jumping around. I take PEA (palmitoylethanolamide) which tends to usually, but not always, help a bit during these daily mini flares. Anyway, it's a long, long story with lots of tedious and joyless nuances and details, but I'm hoping to convey that it's not easy for me to be flexible much. MCAS is a complex issue. It's also diagnosed and treated about 20% as well as as hypothyroidism is. I found some kind of doable equilibrium, sorta, but zero thyroid meds has now thrown me in the deep end.
My body rejects beef, so anything bovine-thyroid related is a no. My body rejects certain drugs eg Tiromel. The only different ingredient I could identify, at the time a while ago, was PVP or polyvinylpyrrolidone. Thyroid S contains this ingredient so it's possible that THAT upset my guts when I tried it 2 weeks ago, or, my mast cells also got involved too. I took 2 Thyroid S in total, over 2 days. I was pretty unwell for a few days. My only chance is Metavive ii porcine. I've bought the Metavive ii Porcine 80mg glandulars.
My dosage was 5 grains of NatureThroid per day. Let's work on the assumption that my body will accept Metavive.
1. How have you guys typically started dosing when moving to it from a different type of thyroid med? I'm not taking NDT or thyroid replacement hormones from scratch, as it were. I've just been without thyroid meds for about 2 weeks after 6 or so years of taking them.
2. Any special instructions or pointers that you think is good to be aware of?
3. Am I allowed to ask about their potency? Not sure what's OK to say.
4. I have some Cytomel, and figured I'd add some in, if the Metavive ii porcine actually agrees with me, and I feel hypo still after a decent period of time. Lol, whether my body accepts Cytomel will be another question to work out.
Thank you. Hope 2021 is a better year for all of us too. Xx
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