Latest Blood result from Drs.
TSH 0.13mlU/L- Range 0.35-4.94
T4 15.0pmol/L- 9.01-19.05
Ferritin 3ng/mL - 20-204
Haemoglobin 107g/L - 115-165
My Drs don’t test T3 my B12, Vit D, Folate All Normal
I take 100mg Levo for Hypo and I have Thyroid Nodules. Don’t know what is going on. Any advice please, thanks 👍
HypoHelen2867
Ferritin 3ng/mL - 20-204
Haemoglobin 107g/L - 115-165
If your GP has not already mentioned these then you need to make an urgent appointment to discuss them. Ferritin is so far below range that you could possibly need an iron infusion, I would say you are probably looking at iron deficiency anaemia and need treatment.
Your TSH and FT4 are OK but if you want the full thyroid panel then if your GP can't get FT3 done you will have to do it privately, in a test that does TSH, FT4 and FT3 all together, never FT3 on it's own. MonitorMyHealth (an NHS lab in Exeter which offers this test to the general public) are the cheapest:
Looking back through past posts ...can’t see that you have ever had thyroid antibodies tested?
Do you know if cause of your hypothyroidism is due to autoimmune thyroid disease (Hashimoto’s);
Can see you use to get iron infusions in past (in Germany)
Had antibodies checked previously in Germany and I don’t have Hashimotos. Yes I always had iron industrious monthly in Germany
So what did German doctors say was the reason for such low ferritin
Are you vegetarian or vegan??
Last time I saw a German doctor was Jan 2018 and they couldn’t find out the reason. Just kept giving me iron infusions. Did all the tests camera up and down as well. I do take Omeprazole for small stomach hernia. I’m not vegan or vegetarian.
Omeprazole will badly affect uptake of vitamins and levothyroxine
Most hypothyroid patients have low stomach acid.
Omeprazole is to treat high stomach acid
We need high stomach acidity to breakdown food into absorbable nutrients
Low stomach acid can be a common hypothyroid issue
Thousands of posts on here about low stomach acid
healthunlocked.com/search/p...
Web links re low stomach acid and reflux and hypothyroidism
nutritionjersey.com/high-or...
articles.mercola.com/sites/...
thyroidpharmacist.com/artic...
stopthethyroidmadness.com/s...
healthygut.com/articles/3-t...
naturalendocrinesolutions.c...
Protect your teeth if using ACV with mother
healthunlocked.com/thyroidu...
Low stomach acid frequently leads to low iron
medicalnewstoday.com/articl...
pubmed.ncbi.nlm.nih.gov/259...
amberwoodhealth.ca/stomach-...
Ppi lower vitamin levels
pulsetoday.co.uk/clinical/m...
gov.uk/drug-safety-update/p...
Do you supplement magnesium?
Presumably you have been supplementing high dose vitamin D as your vitamin D is so high
Magnesium is important co factor with vitamin D
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Vitamin K2 mk7
betterbones.com/bone-nutrit...
healthline.com/nutrition/vi...
Done the test for low stomach acid many times and I don’t have low stomach acid. Think I will just ask to get reffed to a specialist now as my dr doesn’t have a clue about my TSH, my thyroid nodules
Before seeing any thyroid specialist you need to get FULL Thyroid testing
Have you had BOTH TPO and TG thyroid antibodies tested?
NHS refuses to test TG antibodies unless TPO antibodies are high. Significant minority of Hashimoto’s patients only have high TG antibodies
20% never have raised antibodies
Need to test TSH, Ft4 and Ft3 together as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
Stop taking any supplements that contain biotin a week before ALL BLOOD TESTS
Ideally ultrasound scan of thyroid too
I don’t have Hashimotos, I had an antibodies test in Germany and a low stomach acid Test I do t have that either.
Testing for low stomach acid
healthygut.com/articles/3-t...
Done this numerous times and I don’t have low stomach acid. Specialists in Germany also tested me for low stomach acid and Hashimoto's and I dont have either of those
Have you had ultrasound scan of thyroid?
Thyroid Nodules
btf-thyroid.org/thyroid-nod...
healthline.com/health/thyro...
Fortunately, over 90% of such nodules are benign. Hashimoto’s thyroiditis, which is the most common cause of hypothyroidism (see Hypothyroidism brochure), is associated with an increased risk of thyroid nodules.
endocrineweb.com/conditions...
Yes 2 scans in Germany which first diagnosed multiple Nodules. Nothing since back in UK though
Multiple nodules usually means Hashimoto’s
Thank you for the links and advice 👍😀
Might want to consider trying strictly gluten free diet
But first get TSH, Ft4 and Ft3 tested
I will do thanks for replying
Gluten intolerance is extremely common with autoimmune thyroid disease
You don’t need any gut symptoms at all ...zero and yet be severely gluten intolerant
glutenfreesociety.org/glute...
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms and improve nutrient levels
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
healthcheckshop.co.uk/store...?
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
restartmed.com/hashimotos-g...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
ncbi.nlm.nih.gov/pubmed/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
ncbi.nlm.nih.gov/pubmed/300...
The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
I’ve done a Gluten Intolerance Test and came back Negative. 👍
You mean a coeliac blood test
Only 5% are coeliac but around 80% find gluten free diet helps or is essential
There’s no test for gluten intolerance, you just have to try it.
With my TSH being low am I still Hypo
You can’t tell without testing Ft3, the active hormone
I would suspect your Ft3 will be very low, and likely cause of very low ferritin
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
List of iron rich foods
Links about iron and ferritin
irondisorders.org/Websites/...
drhedberg.com/ferritin-hypo...
This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.
healthunlocked.com/thyroidu...
Helpful post about iron supplements and testing
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
restartmed.com/hypothyroidi...
Post about iron supplements
healthunlocked.com/thyroidu...
Post discussing just how long it can take to raise low ferritin
healthunlocked.com/thyroidu...
Thyroid disease is as much about optimising vitamins as thyroid hormones
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