Availability of T3 online: Hi, Is T3 available... - Thyroid UK

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Availability of T3 online

Klavierspielerin19 profile image

Hi,

Is T3 available without a prescription? If so would anyone be able to DM me with some suppliers.

I have Hashimoto’s. My latest results are:

Serum free T4: 11.1 range: 9.00-20.00 pmol/L

Serum TSH: 0.92 mu/L. range: 0.35-5.00 mu/L

I am still experiencing hypothyroid symptoms. I’m currently being checked out for another autoimmune disease and the consultant remarked on my resting heart rate of 49 and said it could be due to an underactive thyroid. I’ve tried upping the T4 in the past to try and get it more in the middle of the range but this puts the TSH out of the range and my GP rang me to say I was taking too much Levothyroxine. What is the optimal level of free T4?

Thanks for taking the time to reply.

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Klavierspielerin19
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7 Replies
SlowDragon profile image
SlowDragonAdministrator

Your results suggest you are currently under medicated

Ft4 is too low

No Ft3 results

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially as you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

Absolutely essential to get vitamin levels optimal and levothyroxine as high as possible BEFORE even considering adding T3

As you have Hashimoto’s are you on strictly gluten free diet?

How much levothyroxine are you currently taking?

Obviously low heart rate highly likely linked to being under medicated

Klavierspielerin19 profile image
Klavierspielerin19 in reply to SlowDragon

Thanks so much for your reply. I must say I’ve always taken my meds before have bloods taken in the morning. Won’t be doing that again.

I did have my thyroid peroxidase antibody checked in December. Result: 179 range 0-69 iu/ml

I’m on a vitamin D supplement because of a deficiency. Doctor said my B12 levels were borderline but didn’t suggest a supplement.

As regards the gluten free diet: do you follow one and does it make a real difference?

SlowDragon profile image
SlowDragonAdministrator in reply to Klavierspielerin19

So your high thyroid antibodies confirms cause of your hypothyroidism is due to autoimmune thyroid disease

Low vitamin D, folate, ferritin and B12 are all EXTREMELY common with Hashimoto’s

GP is only obligated to treat vitamin deficiencies

But with Hashimoto’s improving vitamins to optimal levels by self supplementing

So you need to ALWAYS get the actual results and ranges from GP tests

Come back with new post once you get results from GP ...or FULL thyroid and vitamin testing privately

Add results and ranges if you them

SlowDragon profile image
SlowDragonAdministrator in reply to Klavierspielerin19

Hashimoto's frequently affects the gut and this leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

There are thousands of Hashimoto’s patients on here who have found strictly gluten free diet extremely helpful or absolutely essential

Yes...for myself absolutely strictly gluten free is utterly transforming....more info on my profile

SlowDragon profile image
SlowDragonAdministrator in reply to Klavierspielerin19

What was vitamin D result that meant GP prescribed vitamin D

How much vitamin D are you prescribed?

How long have you been taking it and have levels been retested

GP will often only prescribe vitamin D to bring levels to 50nmol. Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But with Hashimoto’s improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need with hashimoto’s we frequently need higher dose than average

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Marz profile image
Marz in reply to Klavierspielerin19

How much VitD are you taking ? GP's rarely prescribe enough to increase levels. If your B12 was under 500 you need to supplement as it can be the cause of neurological damage and cognitive decline. Again docs rarely know as they do not study nutrition at medical school.

fuchsia-pink profile image
fuchsia-pink

I second SlowDragon 's comment that you seem to be under-medicated at the moment and need more levo - not less.

You may or may not need T3 - but to know whether this would help, you need to test free T4 and free T3 at the same time, and see how far along the range you are for both.

At the moment your free T4 is very low: if it were me, I would want to increase levo until it was in the top quartile of the range. And once it was there, if your free T3 was say in the bottom half of the rage, that would show you are a "poor converter" who would be likely to benefit from T3 meds.

Bear in mind that increasing your levo to a point where your free T4 result is acceptable is likely to reduce your TSH - and taking lio will suppress it a lot more. So your doctor is very likely to have kittens if he's twitching now about a TSH which is in range combined with such a poor T4 result ...

Good luck x

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