I’m shocked at my ferritin levels hats creasing with each blood test yet I was tested for haemochromotisis and that came back negative.
I had a private liver scan done in London hospital with latest technology and the professor said my liver was in great condition no fatty liver signs and no issues with blood tests.
Any advice will be so welcome I’m at a loss now medichecks have said just supplement b12 with otc stuff.
Anyone like to comment please,do you think I could be hypo?
Would drinking redbush tea which is not strictly a tea it’s more a herbal drink, contribute to my raised ferritin levels,I feel like ive had every test and scan under the sun and just cant get to the bottom of this feeling the yucky way I do .
Yes I do think you are hypo but the NHS will not treat you until your TSH gets to 10, Ithink they like to see us suffer. I also have high Ferritin mine is 300 and it is because I have inflammation in my body and my CRP is 9. This is because I have an autoimmune disease called Graves' you can read my story on my profile page.
Hi Lora7again thank you for responding it’s very kind of you.
I’m so sorry you’ve had such a rotten experience with all this,I think these things do creep in when we are at a low point in our lives or suffer any kind of trauma and it just gets a grip then continues it’s relentless battle to knock the stuffing out of us in as many different ways as it can. I hope things improve for you.x
The Vit D Council recommends a level of 125nmol/L and the Vit D Society recommends a level of 100-150nmol/L.
To reach the recommended level from your current level, based on the Vit D Council's suggestions you could supplement with 3,500-4,000iu D3 daily. Retest after 3 months.
Once you reach the recommended level then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:
There are important cofactors needed when taking D3 as recommended by the Vit D Council:
D3 aids absorption of calcium from food and Vit K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray.
Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.
Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.
If you do then list them to discuss with your GP and ask for testing for B12 deficiency and Pernicious Anaemia. Do not take any B12 supplements or folic acid/folate/B Complex supplements before further testing of B12 as this will mask signs of B12 deficiency and skew results.
Folate - Serum 5.32 ug/L > 3.89
Although over the low limit, this result is low. I would want mine in double figures. Eating folate rich foods can help, as can a good bioavailable B Complex such as Thorne Basic B or Igennus Super B. Do not start taking a B Complex before further testing of B12, as mentioned. B12 injections/supplements should be started first, then followed by B Complex.
Ferritin 499 ug/L 13-150
This is obviously high and maybe you can discuss this with your GP.
A normal healthy person would have a TSH of no more than 2 with FT4 around mid-range-ish. Your TSH is very slightly higher than this and your FT4 is rather low range. If your FT4 was at the bottom of the range or below then it could suggest Central Hypothyroidism which is where the problem lies with the pituitary or the hypothalamus and the signal to make thyroid hormone (TSH) was not being sent to the thyroid.
If these were my results I would consider retesting in, say, 3 months time, doing another full thyroid/vitamin panel so you can also see whether your nutrient levels have improved.
Thyroglobulin antibodies 12.4 klu/L <115
Thyroid peroxidase antibodies 12.2 klU/L<34
Your antibody results currently don't show any sign of autoimmune thyroid disease, it will be interesting to see if they have changed much at the next test.
When doing thyroid tests, we advise doing them no later than 9am after an overnight fast from evening meal/supper the night before, and drink water only before the test. This is because TSH is highest early morning and lowers throughout the day, eating can lower TSH and drinking coffee (and maybe other caffeine containing drinks) can affect TSH. If you take a B Complex containing Biotin, or a Biotin supplement, leave this off for 7 days before testing, this is because if Biotin is used in the testing procedure this can give false results.
Hi SeasideSusie thanks so much for your advice I will do as you say.
Medichecks doctor did say to have the b12 tested again so I’ll focus on getting these vitamins optimised then retest again.at least now I have a plan of sorts thanks to your advice I do often wonder if it was the head trauma that’s jumped all this up so much,I wasn’t great before it but nothing like I’ve been these last three years. The HPylori and subsequent courses of antibiotics hasn’t helped either I wish I could find a good sympathetic doctor who would treat me the whole person and not have to keep finding these consultants who only ever look at one thing then happily refer me onto their “colleagues “ in a different discipline “kerching” money for old rope isn’t it and I’m no further on.
I’ve just registered with new gps so I’ve no idea how accommodating they will be I’m just wondering if I got the b12 test done again with medichecks Can i then go somewhere to buy the b12 injections I may need until my levels are good again?
Can anyone pm me with
A) a decent doctor who’ll listen and join the dots And
B) any info on accessing the b12 injections in case my gp
With regards to your B12 the first thing to do is check the link I gave you to see if you have any signs of B12 deficiency and if you do then discuss with your GP to have further testing. Don't self supplement if you do have any signs.
There are members on the Pernicious Anaemia Society forum here on HealthUnlocked who buy their own B12 injections so if you do have to go down that route they can help with that information.
Head trauma can be a cause of hypothyroidism, and it's possible that damage could have been caused to the pituitary or hypothalamus.
Yes SeasideSusie I’m just reading through the link you gave me and I can tick quite a few of those boxes so I think it’s looking like I’ll take the advice to be retested I’ll try get a gp appointment too and see what kind of responses I get.
It’s an MMA test the medichecks doc has recommended and an iron deficiency test.I don’t quite get that as my ferritin levels have almost doubled in 6 months yet I don’t supplement I am on zero supplements I don’t eat a lot of red meat prob once a week I prefer veggie foods or some nice fish or chicken.I think I’ll check out some functional medicine doctors and see if that’s the kind of help I need I’ve tried nhs and private to get a decent doctor and no luck as yet .
The table at the bottom of the above link might be of interest. Note that people can have more than one of those conditions, and this can sometimes make diagnosis extremely difficult or sometimes impossible without expert medical help. Don't ask me where you'll find expert medical help because I don't know.
For example, iron deficiency will lower ferritin and B12 deficiency sometimes presents with high ferritin. Put both conditions in the same body and ferritin may be well in range. In my example getting blood tests showing low serum iron and low vitamin B12 would make the diagnosis of two problems instead of one relatively straightforward, but it isn't always that easy.
Good morning humanbean.thank you for that info and taking the time to reply that makes good sense so I’ll def get the b12 and iron tested I’ll be quicker going via medichecks again rather than gp .
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Hypo post RAI still have symptoms - help with blood results
Medichecks Results
Blood Test Results from Medichecks
Help with results please
Thyroid results back
