Petitition For Better and Improved Testing and ... - Thyroid UK

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Petitition For Better and Improved Testing and Treatment Of Hypothyroidism

Den1987UK profile image
7 Replies

Hello just signed this petition on 38 Degrees every signature helps

thank you

Hypothyroid patients including myself and hundreds of people I've spoken to want to be tested and treated properly for hypothyroidism which means we need the NHS to prescribe both T3 and T4.

you.38degrees.org.uk/petiti...

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Den1987UK
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shaws profile image
shawsAdministrator

I believe NDT was known as a 'grandfathered' medication, due to it being in use since 1892 and it saved lives from then on and still does today, even if it is unlicenced. Unfortunately the BTA et al in the UK have made False Statements about this product in order to get it withdrawn from being prescribed.

Before blood tests were introduced by the Pharmaceutical Industry along with levothyroxine, we were all diagnosed by doctors due to them knowing symptoms

One of Thyroiuduk's Advisers wrote the following to the BTA etc but they never did respond before his untimely death. He sent three yearly reminders to them before he died - they ignored his statement completely.

drlowe.com/thyroidscience/C...

The above doctor would never prescribe levothyroxine as he stated it was due initially to 'backhanders' to doctors to persuade them to prescribe T4 (levothyroxine) instead of NDT which contains all of the hormones a healthy gland would.

I believe there's a phrase which states 'lies, lies and more lies'! Considering how many people have had their lives restored due to NDT from 1892 and up to the present time - no blood tests then and symptoms alone were known by all doctors. (When NDT was the only thyroid hormone replacement) and even in the present-day when it has been withdrawn from prescribed, patients have to resort to sourcing their own instead of it being prescribed by their own doctor.

Milions seem to do fine on levothyroxine but there's another group for whom it doesn't work so what happens to them? Their GPs hands are tied - even if they wanted to prescribe other than levo. Unless sick people have an internet to try to source or find out if there's an option they're doomed. I know of one woman who committed suicide and left a 'Last Testament' for the Coroner to read as to the reason why. I don't think it would be published.

Those patients for whom levothyroxine doesn't improve their health, and I'm one, T3 was removed due to cost without taking into considering those whose health was restored by it and cruel decisions made by those who are supposed to 'be educated' in the workings of the thyroid gland and cannot distinguish between an Active Thyroid Hormone and an Inactive one..

Add in the cost of the 'extra' prescriptions for the remaining symptoms, i.e. depression, pain relief, digestive problems, etc etc etc. not including their loss of employment due to their 'brain fog'.

A survey could be done of the 'actual cost' to the NHS in prescribing the extras which might not be necessary if there was a T3/T4 prescription, or NDT, or T3 alone. The NHS could save thousands of £££s and people wouldn't lose their livelihoods or, at least, have a symptom-free life.

Den1987UK profile image
Den1987UK in reply to shaws

Hello Shaw good afternoon I could not agree with you more thank you. I posted an article about Notts ACP NHS Area Prescribing Committee Code Of Practice for the treatment of hypothyroidism it is an interesting read.

Tulipsar profile image
Tulipsar

Done! Thanks!

Den1987UK profile image
Den1987UK in reply to Tulipsar

Thank you Tulipsar

london81 profile image
london81

done

Den1987UK profile image
Den1987UK in reply to london81

Thank you london81

MichelleHarris profile image
MichelleHarris

Signed

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