Hi all, I saw my NHS endocrinologist on Dec 9, she ordered blood tests to check my TF as I told her I was self medicating. I was also booked in for an SST and ACTH to check on my adrenal function, due to my Addisons and because I was supposed to be having a consultation with my private endocrinologist tomorrow morning but he rang me this morning instead- completely blindsided me as I didn’t have the results to hand!
Could someone please have a look at my results and let me know how they are looking? Currently I’m on 75mcg L-T4 and 25mcg T3.
I also take Jarrows B-Right, magnesium l-threonine, AI B12 1.5mg daily, and of course I have to take my HC 20mg a day.
Adrenal function tests
SST- Baseline <28nmol/L
Post 30 mins 39nmol/L
ACTH 3ng/L ref range 7-63ng/L between 7-10am
Baseline and ACTH collected at 9.45am
Still waiting for the results of my plasma renin and aldosterone, rang the lab this afternoon and it came back yesterday, they can’t give me the result directly, rang the surgery- no it’s not back! Erm 😒 yes it is, just been told by the lab it is on the CWS system, on hold almost 25 minutes before it cuts off and then I can’t get back through! Luckily I have a hospital appointment in the morning for my knee, my consultant is bloody lovely and brilliant, I’m sure I can get the result from her!! 😊🤞🏻
Anyway, here are my TFT’s
TSH 0.12 mU/L (0.3-4.40)
FT4 8.1 pmol/L (9.0-19.1)
FT3 4.6 pmol/L (2.9-4.9)
Can’t put my hands on the other results right now, they weren’t taking the exact same time but a week or so out- they should be ok, shouldn’t they? I will post them as soon as I find them. Am I over medicated now? I don’t feel it at all, in fact I feel like I could do with more, which I’m not sure but I just don’t feel quite right yet. Can any of you lovely people give me some insight please?
Thank you, Shelley x
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Your results look ok to me but do you have some vitamin levels for us to read? Low vitamins can affect how the thyroid functions and when my vitamin D was 7 (yes my Doctor did not realise because he had not tested it before) I felt dreadful. I don't know much about Addisons except that President John Kennedy had it that's why he looked so tanned all the time. Here is a link about it
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
If/when also on T3, make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
Your FT4 is rather low. Some people are fine with that, others need FT4 higher. So you might increase Levothyroxine
This is how I normally do my SlowDragon, but like I said it was sprung on me the day before so I didn’t have any notice to stop my B- complex 7 days before. I had fasted and they were taken early because of my SST. I’ll get my last tests for Vit D, Ferritin, & Folate, although I’d like to see what my B12 levels are, I know it’s going to be high as I’m supplementing it.
I was thinking of putting my Levo up to 100mcg and the endo suggested splitting my T3, either into two or three doses.
Can I ask the best way to take my meds? I take other medications too and I go to bed quite early most nights because of the fatigue and pain.
Altogether I take
Duloxetine, Ramipril (bp med) Pregablin, Epilim (I suffer from Hemiplegic Migraines) HC, Vit D/K2 spray, B12 spray + SI B12. Magnesium L-Threonine and a good B-Complex.
My private endo wants bloods again 4 weeks after I start the new regime he’s put me on.
So I’ll start by putting my T4 up to 100mg a day and leave the dose T3 as it is but split into two.
My main meds come in a dosette box apart from my HC, I feel shattered still, bone achingly tired sort of shattered. Could literally sleep for Wales! My main dose of HC I have to take first thing in the morning (15mg) and then I take 2.5mg at 12 and the other then just before bedtime (usually between 8-9pm)
I’ve suffered from migraines since very early in my childhood, the migraines I suffer from affect me like a stroke, same symptoms and appearance everything! I doubt I’ll be wending off those meds anytime soon, but if the ‘normal’ migraines can ease then I’d be a very happy lady!!
So should I take my magnesium at around 4 then, just so I know they’re far away from my Levo?
Well there's clearly no doubt that you have Addison's with those results! It's obvious your adrenal glands are not working & producing very little cortisol, I would expect your ACTH to be high. 20mgs is the therapeutic dose, how do you feel on that amount? I have secondary adrenal insufficiency but need to take 30mgs HC a day, I also metabolise quickly so split my dose up in to 6 doses a day taking it every 4 hours.
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