So they appear normal but I just wanted to clarify this. I’m keen to see an endocrinologist about my concerns but don’t know whether I would be wasting my money. Can anyone advise if these results mean I definitely don’t have hypothyroidism or can anyone recommend a good private endocrinologist that I could do a video consultation with? Many thanks
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Jasmine2021
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Hi Jasmine2021,I think you'll be advised by the more experienced members here to get some more tests done including antibodies and vitamin levels. Your results so far are similar to mine a few years ago, and it can be a long journey to diagnosis. In the mean time there are things you can do. Going gluten free and getting vitamin levels to a good point for me has been key to eliminating many symptoms even if the thyroid itself is not yet treated, vitamin D in particular, then iron and B12 and the other B vitamins.
I too have been having horrendous symptoms for up to 2 years now and am struggling for answers. My results are similar to yours, I’ve ordered a full thyroid check plus vitamins and folate from thriva.
What are your symptoms if you don’t mind me asking?
slow heart beat. I’m not sure about some of the others like cholesterol etc and although I know a lot of the symptoms could be due to other things the similarity and what I’ve been more aware of recently seems too much of a coincidence!
I no pretty much have all of the same, but also feel like I might have some symptoms of Hyperthyroidism too which is strange, I have lost weight and it won’t go back on no matter what I eat, my anxiety is through the roof and for the first time ever in my life I feel really low. I’ve had muscle twitches and pins and needles in my hands on and off, and one morning I woke up to both my hands completely swollen. My resting heart rate has dropped considerably but will have episodes of a really fast heart and heart flutters.
I’ve had low vitamin D, vitamin B12 and high prolactin all of which I believe point to thyroid issues but my doctor won’t look at the bigger picture, instead only looking at TSH which was ‘normal’ in November at my last NHS blood test.
Just wish I could get to the bottom of this now xx
Sorry, but I don't think they do rule out hypothyroidism. Your FT4 is very low, only 13.00% through the range. A euthyroid FT4 would be more like 50%.
Your TSH is also quite low in range - much lower than one would expect with such a low FT4. So, you really do need an FT3 result. If that is also low, then you're probably looking at a pituitary problem - what we call Central Hypo.
So, I would advise you get full thyroid testing privately before approaching an endo, to get a better idea what is going on. You need:
TSH
FT4
FT3
TPO antibodies
Tg antibodies
And it would be a good idea to test key nutrients, too: vit D, vit B12, folate, ferritin. If they are also low then that lends credibility to the theory of hypothyroidism.
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels and thyroid antibodies
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.
Wow thank you so much. This is so much help and very much appreciated! I’m a bit bowled over by the support and help from everyone already. This was my first post and I’m very grateful
Sorry to be a pain but I’m just taking a closer look at all of these and wondered if you would recommend any one particular over another. I could only find one test option on the MMH site which was £47 but I’m happy to go for that although it had limited info about what it tested or I will go with Thriva/Blue Horizon more comprehensive ones and cut out my GP as that’s too much stress sometimes to be honest!! Any advice on which you would personally opt for? Many thanks
Hi SlowDragon apologies for yet another question but I have received my test kit and keen to get on and do it however I see in your linked post that it says avoid Biotin supplements for 7 days. I took a multivitamin that contains biotin yesterday so should I hold off for a week? Somewhere else I read don’t take biotin for 24 or 48 hours but wondering whether I wait a week just to be sure?
My result is very similar to you. T3 is also in the middle of the range. Other tests also appear normal. My endocrinologist wasn't concerned, she said I was fine. But I'm still having weird symptoms, especially fatigue, feeling tired easily and lightheadedness. I also feel muscle weakness, sometimes stomach issues. My period has always been irregular for years. Resting heart rate is around 60s though I'm not a fit/active person and don't do exercises. I notice I would feel tired when my heart rate above 100bpm but sometimes I'm just fine even when I do something and my heart rate is above 90bpm. I'm not sure if I'm having thyroid problems, but it's been months I've been feeling so terrible, it slowly gives me anxiety. Have you checked with your doctor if he/she can refer you to a specialist for further tests or checkups?
Ah I’m sorry you’re struggling too. I also get a lot of stomach issues and pelvic pain but assumed that wasn’t related. I haven’t spoken to my gp because to be honest they aren’t very supportive or helpful and I keep thinking I must change but haven’t done so.
If you have high antibodies this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of primary hypothyroidism is autoimmune thyroid disease
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
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