Thyroid function results New and hoping for advice - Thyroid UK

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Thyroid function results New and hoping for advice

Jasmine2021 profile image
21 Replies

Hello, I’m new to this site and wondered if anyone could help.

I’ve been experiencing symptoms of hypothyroidism and requested thyroid function tests. There was not T3 done but the other results were:

Serum free T4 level 13.3 pmol/L (12.00 - 22.00pmol/L

)

Serum TSH level 1.58 miu/L (0.27 - 4.20miu/L)

So they appear normal but I just wanted to clarify this. I’m keen to see an endocrinologist about my concerns but don’t know whether I would be wasting my money. Can anyone advise if these results mean I definitely don’t have hypothyroidism or can anyone recommend a good private endocrinologist that I could do a video consultation with? Many thanks

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21 Replies
BlueQuokka profile image
BlueQuokka

Hi Jasmine2021,I think you'll be advised by the more experienced members here to get some more tests done including antibodies and vitamin levels. Your results so far are similar to mine a few years ago, and it can be a long journey to diagnosis. In the mean time there are things you can do. Going gluten free and getting vitamin levels to a good point for me has been key to eliminating many symptoms even if the thyroid itself is not yet treated, vitamin D in particular, then iron and B12 and the other B vitamins.

I wish you a smooth journey!

Jasmine2021 profile image
Jasmine2021 in reply toBlueQuokka

Thank you so much! I’m really pleased to hear you’ve managed to get some of your symptoms under control and I hope to be able to do the same!

Heartgal151 profile image
Heartgal151

I too have been having horrendous symptoms for up to 2 years now and am struggling for answers. My results are similar to yours, I’ve ordered a full thyroid check plus vitamins and folate from thriva.

What are your symptoms if you don’t mind me asking?

Jasmine2021 profile image
Jasmine2021 in reply toHeartgal151

Thanks for your reply. I’m sorry you are struggling too. My symptoms are pretty much all of the ones listed on here! btf-thyroid.org/hypothyroid...

Particularly fatigue, cold (although it is cold right now!), very dry skin and shedding hair, croaky voice, muscle weakness, cramps and aches

pins and needles, weight gain

puffy face, low mood/depression, difficulty concentrating,

slow heart beat. I’m not sure about some of the others like cholesterol etc and although I know a lot of the symptoms could be due to other things the similarity and what I’ve been more aware of recently seems too much of a coincidence!

Heartgal151 profile image
Heartgal151 in reply toJasmine2021

I no pretty much have all of the same, but also feel like I might have some symptoms of Hyperthyroidism too which is strange, I have lost weight and it won’t go back on no matter what I eat, my anxiety is through the roof and for the first time ever in my life I feel really low. I’ve had muscle twitches and pins and needles in my hands on and off, and one morning I woke up to both my hands completely swollen. My resting heart rate has dropped considerably but will have episodes of a really fast heart and heart flutters.

I’ve had low vitamin D, vitamin B12 and high prolactin all of which I believe point to thyroid issues but my doctor won’t look at the bigger picture, instead only looking at TSH which was ‘normal’ in November at my last NHS blood test.

Just wish I could get to the bottom of this now xx

Jasmine2021 profile image
Jasmine2021 in reply toHeartgal151

Oh bless you I’m really sorry and hope you can get to the bottom of it soon. Take care and don’t give up x

greygoose profile image
greygoose

Hi Jasmine, welcome to the forum.

Sorry, but I don't think they do rule out hypothyroidism. Your FT4 is very low, only 13.00% through the range. A euthyroid FT4 would be more like 50%.

Your TSH is also quite low in range - much lower than one would expect with such a low FT4. So, you really do need an FT3 result. If that is also low, then you're probably looking at a pituitary problem - what we call Central Hypo.

So, I would advise you get full thyroid testing privately before approaching an endo, to get a better idea what is going on. You need:

TSH

FT4

FT3

TPO antibodies

Tg antibodies

And it would be a good idea to test key nutrients, too: vit D, vit B12, folate, ferritin. If they are also low then that lends credibility to the theory of hypothyroidism.

You'll find details of private testing here:

thyroiduk.org/help-and-supp...

:)

Jasmine2021 profile image
Jasmine2021 in reply togreygoose

Thank you so much. I really appreciate you taking the time to help and advise me, and for the welcome!

greygoose profile image
greygoose in reply toJasmine2021

You're welcome. :)

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels and thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Also vitamin D available as separate test via MMH

Or alternative Vitamin D NHS postal kit

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

Jasmine2021 profile image
Jasmine2021 in reply toSlowDragon

Wow thank you so much. This is so much help and very much appreciated! I’m a bit bowled over by the support and help from everyone already. This was my first post and I’m very grateful

Jasmine2021 profile image
Jasmine2021 in reply toSlowDragon

Sorry to be a pain but I’m just taking a closer look at all of these and wondered if you would recommend any one particular over another. I could only find one test option on the MMH site which was £47 but I’m happy to go for that although it had limited info about what it tested or I will go with Thriva/Blue Horizon more comprehensive ones and cut out my GP as that’s too much stress sometimes to be honest!! Any advice on which you would personally opt for? Many thanks

SlowDragon profile image
SlowDragonAdministrator in reply toJasmine2021

You need to know if you have high thyroid antibodies So best to test via Medichecks, Blue horizon or thriva

Medichecks and Thriva both currently £79

Blue horizon more expensive

Medichecks often have offer on Thursdays reducing to £59

DIY finger prick test tips

healthunlocked.com/thyroidu...

Only do test early Monday or Tuesday morning and then post back via tracked postal service.

Come back with new post once you get results

Jasmine2021 profile image
Jasmine2021 in reply toSlowDragon

Super thank you so much!

Jasmine2021 profile image
Jasmine2021 in reply toSlowDragon

Hi SlowDragon apologies for yet another question but I have received my test kit and keen to get on and do it however I see in your linked post that it says avoid Biotin supplements for 7 days. I took a multivitamin that contains biotin yesterday so should I hold off for a week? Somewhere else I read don’t take biotin for 24 or 48 hours but wondering whether I wait a week just to be sure?

SlowDragon profile image
SlowDragonAdministrator in reply toJasmine2021

If it’s only small amount biotin, you could do test Tuesday morning....48 hours plus is likely fine

Jasmine2021 profile image
Jasmine2021 in reply toSlowDragon

Thank you I’ll do that 👍

Littlemitten profile image
Littlemitten

My result is very similar to you. T3 is also in the middle of the range. Other tests also appear normal. My endocrinologist wasn't concerned, she said I was fine. But I'm still having weird symptoms, especially fatigue, feeling tired easily and lightheadedness. I also feel muscle weakness, sometimes stomach issues. My period has always been irregular for years. Resting heart rate is around 60s though I'm not a fit/active person and don't do exercises. I notice I would feel tired when my heart rate above 100bpm but sometimes I'm just fine even when I do something and my heart rate is above 90bpm. I'm not sure if I'm having thyroid problems, but it's been months I've been feeling so terrible, it slowly gives me anxiety. Have you checked with your doctor if he/she can refer you to a specialist for further tests or checkups?

Jasmine2021 profile image
Jasmine2021 in reply toLittlemitten

Ah I’m sorry you’re struggling too. I also get a lot of stomach issues and pelvic pain but assumed that wasn’t related. I haven’t spoken to my gp because to be honest they aren’t very supportive or helpful and I keep thinking I must change but haven’t done so.

SlowDragon profile image
SlowDragonAdministrator in reply toJasmine2021

Gut issues are EXTREMELY common when hypothyroid, especially if cause is autoimmune thyroid disease

Low stomach acid leads to acid reflux, bloating, IBS, and poor nutrient absorption

Thousands of posts on here about low stomach acid

healthunlocked.com/search/p...

Web links re low stomach acid and reflux and hypothyroidism

nutritionjersey.com/high-or...

articles.mercola.com/sites/...

thyroidpharmacist.com/artic...

stopthethyroidmadness.com/s...

healthygut.com/articles/3-t...

naturalendocrinesolutions.c...

If you have high antibodies this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of primary hypothyroidism is autoimmune thyroid disease

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

healthcheckshop.co.uk/store...?

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Jasmine2021 profile image
Jasmine2021 in reply toSlowDragon

Oh goodness! Well I hope I can finally get to the bottom of some of my symptoms. Thank you again for such helpfulness.

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