Was taking 75mcg of thyroxin and experienced after 9 months excessive sweating my endo said my thyroid lvls were good

[Milagroscrs615]

But my body was telling me different I was losing my hair, my scalp was red it was itchy along with the sweat, my wrist itch, my finger tips, and the bottom of my feet itch too. Constipation, and nails were brittle and not growing. I told him that his blood test would not supersede my symptoms. He said go see another endo, and I never went back. I did get him to lower the thyroxin to 50 mcg but by then my body was already experiencing this side effect. I am from the USA so we do get everything checked unlike I’ve read here so many stories of limited testing and medications in the UK. I have to say that this is a horrible disease and it seems to me that the GP, Endos all have the same attitude it’s like pulling teeth to get them to do anything extra or even listen. My TsH was 3.42 and my Ft4 0.9 I felt toxic that was 12/2018. I found a GP who believes in treating with #Amour Thyroid when I got to her in February 2019 my Tsh was 3.56, Ft4 was 0.9 and my Tf3 was 3.1 I was put on 30mcg Amour thyroid by 4/2019 my Tsh 3.44, ft4 1.1, ft3 4.3 I was still symptomatic so they increased to 60 mcg. I am not constantly sweating like before, but my heart beat per minutes rises quickly when I am in the sun or if I am working out which scares me. My new numbers since 7/2019 TSH 1.0, ft4 1.0, my Ft3 3.9 and my FHS is 46.1 again doctors say my results are good but I am telling them about my bpm go from a resting 65 to 154 and the sweating and they told me to stay out of the sun, and drink plenty of water. I’ve gotten past the pain of the fibromyalgia like symptoms, insomnia, and even went to a dermatologist for all the itching just found out i now have lichen Planus which I felt occurred due to taking the thyroxin excessive sweating caused me much stress and I read that thyroxin can bring on lichen Planus yet another autoimmune disease. I am being treated with topical steroids and Benadryl and prednisone for my mouth which got affected too. I feel that my body has difficulty converting T 4 to T 3 because I still suffer from excessive heat and itching, I still cant lose weight even though my fitbit say my body is in fat burning mode 7-13 hrs a day, thats not normal. I feel my body does not do well with converting the T 4 . I am taking 5k vitamin D, I was 30 - b12 1000 - I was 401 now my b12 was increased to 2000 daily. I am also prediabetic and taking Metformin ER 500 2, 3 times a day. I am going for blood work on 8/15/2019 then I will see my GP on 8/22. If anyone has had excessive sweating and gotten lichen Planus taking levo thyroxine or if anyone taking Amour thyroid experienced the rapid heart rate being out in the sun I would really appreciate your input or hearing your experience on the above mentioned. Your thyroid gland controls everything in your body I don’t understand why this disease is not taken seriously. I am not as knowledgeable on this disease as a lot of you that I’ve read I am trying to learn more. This site is so great I don’t even know if we have one here in the USA I am grateful for any response and I sympathize with all of you trying to find a way to feel better especially since the GPS have abandoned us. Thank you in advance my prayers go out to all of you suffering with one disease or another. Thank you Millie

[Buzcat]

I experienced everything milagroscrs615 has I was on 75 Mercury for over twenty years then the pharmacy gave me 25mercury and 50 teva and I thought I had been poisoned hair loss red scalp pain in left arm and leg pain in left breast vascular and lymphatic system not working to name but a few one year later still not back to normal after being put back on Mercury I put it down to being switched to Teva.

[greygoose]

I'm afraid none of those results mean anything without the ranges. Ranges vary from lab to lab so we absolutely need the ranges that came with your results.

It's impossible to tell how well you convert when taking Armour, because of the T3. You need to be taking T4 only, and have your FT4 and FT3 tested at the same time, to know how well you convert, I'm afraid.

[Milagroscrs615 in reply to greygoose]

Thank you I have those test results and the ranges from when I was on the thyroxin for nine months I will repost with ranges. Thank you so much.

[SlowDragon Administrator]

Suggest you put up new post with results and ranges when you get them

Results mean nothing without the ranges....

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also important to retest vitamin D, folate, ferritin and B12

Presumably as you have lichen planus your hypothyroidism is due to autoimmune thyroid disease also called Hashimoto's, diagnosed by high thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).

If/when also on T3, or Armour make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

As you have Hashimoto's Are you on strictly gluten free diet?

Lichen planus (like all autoimmune diseases) is also linked to gluten intolerance

semanticscholar.org/paper/H...

Itching skin common gluten intolerance symptom

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly reduce symptoms

While still eating high gluten diet ask Doctor for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet




(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)




Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

[Milagroscrs615 in reply to SlowDragon]

Ty so much for responding I will repost with ranges, I have read about leaky gut and have started using gluten free products, grass fed meats etc, I just started so it will take a while to see. I will purchase the test as you said if my doctor will not do it I will see my GP end of month. It should be noted I had Oral lichen Planus over 30 years ago it was treated with steroid shots, oral ointment triamcinlone acetonide dental paste USP 0.1 for my oral lesions and Atarax pills for the itching I had it in all areas where I sweat so you can image it wasn’t pretty. It took 5 years for the scars to heal but it did go away. Amour thyroid is a combination of T 4 and T 3. As I could not tolerate thyroxine and any level impossible to live a normal life with those kind of side effects. I really appreciate your response !