I suffer from extreme heat and cold intolerance, amongst other symptoms. The heat is unbearable now. I was prescribed clonodine by my gp, to help with the heat. I was on it for 2 weeks but it actually made it worse, especially the heat at night. So i stopped taking it. I was wondering if anyone knew why that may be?
Yes. I have increased my vit d. It is now 111. I had it checked by medichecks. I had a full panel done last month. All was in range expect for raised tpo antibodies and raised tg antibodies
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The problem with Hashimoto’s is that it’s a different issue compared to just normal low thyroid output.
With Hashimotos it’s important to find the root cause. Dr Izabella Wentz also talks about this in her book. I’d recommend it if you don’t know much about it.
I also have heat intolerance to the point where I cannot sleep at night as my feet are too hot. I’ve always got a fan directed on them. I also feel very cold in the winter.
So I’ve discovered that I have mycotoxins due to mould, and also EBV and CMV which could be the cause of my problems. Thing is a lot of us are exposed to these things but when your immune system is compromised then these things sneak into our bodies and cause problems. So why would this happen? If you’ve been under a lot of prolonged stress this can without doubt compromise the immune system. Stress can come in many shapes and forms. This is my assessment of myself.
I recently watched a presentation by Dr Jessica Peatross on mycotoxins where she cited heat intolerance as a symptom. Might not be the reason for your issues but it may could be for me. She has a great Instagram page and some good videos on YouTube. I’ll see if I can post a slide from the Rebel Health Tribe’s Microbiome Masterclass where she talks about this. Or you may be able to watch it below:
Hi thank you for the reply. I will look into that. It's like my thermostat is broken. My body temperature is all over the place. Can be roasting in winter with needing a fan then freezing in summer. The cold i can handle but not the heat. It's unbearable.
Yes same here I’m quite okay with the cold although I do feel it but the heat drives me insane. Last year was a lovely summer but the heat was unbearable especially at night. We live in a south facing house which doesn’t help either. I was never like this but it seems to have gotten worse in the last 10 years.
I’ve had to my own research to learn everything and still do all the time because there is so much to Hashimotos but working with a good naturopathic doctor helps massively otherwise I’d still be experimenting.
Hi i can sympathise. It is horrible. It's new for me. Only started last September. Before that I was always frozen. As my thyoid levels are still normal i can't get any treatment yet.
Sorry I mean east/west facing so the sun is always on us. Yes when I was first diagnosed with hypothyroidism is my 20s I was always cold. I used to sleep with two sets of pyjamas on, an extra blanket and a hot water bottle 😂🤦♀️
😂 Yes i was the same. I used to take a hot water bottle with me to work in the summer. In have mentioned to the go about it quite a few times. The medication she gave me didn't help. It made me worse. I only know on here about hashimoto's. The thing is that no dr had mentioned it. Or an endocrinologist I saw. So can you have hashimoto's with normal thyroid function tests?
Yes you have raised thyroid antibodies so you have Hashimotos.
TG 151 (<115)
TPO 124 (<34)
It doesn’t matter if your thyroid hormones are within range. It may not have progressed to that point just yet for them to lower. The fact that those antibodies are high means that the body is producing antibodies against the thyroid.
You need to stop the attack against the thyroid so that those antibodies come into normal range.
As your FT4 and FT3 are already within range probably not. With Hashimotos just adding more thyroid hormone doesn’t always work. Thyroid hormone physiology can break down in several ways and that’s why just adding more doesn’t work for everyone.
No because adding thyroid hormone is not going to stop the attack on the thyroid. You need to address the cause of those raised antibodies. Is it an infection? Did it start with stress? Food intolerances? Gut issues? Until you don’t look into these then your antibodies will remain elevated and continue to attack the thyroid and you will still feel unwell.
I was on Levo for 16 years and I’ve been on NDT for 2 years. Despite this I still don’t feel well. I’m better than before but still not as well as I should be. I need to address my root causes.
This video explains how thyroid hormone physiology works:
Yes. That makes sense. People on here have said that with hashimoto's you will eventually become hypothyroid. Is that correct? Sorry if that seems a silly question. I don't have hair loss but the texture of it is awful now. So dry and brittle and breaks easily. Affects my self esteem. Do you have similar issues?
Hi yeah i have but felt no benefit from it. I have just ordered Isabella Webtz book. Hashimoto's protocol. Do you know if it will be worthwhile? Just not sure if my symptoms are all related to hashimoto's as i've seen different specialists who have never mentioned it
I was diagnosed hypo. eight years ago, my antibodies are borderline so not sure if I actually have hashi's.
I can relate to the heat intolerance, as I find it unbearable on warm days and I sweat a lot when doing house work, but then I get an intolerance to the cold as well and break out in hives when out in cold weather.
I think I read Isabella says hives (urticaria) can be associated with thyroid issues.
Also thyroid issues do alter the bodies thermostat.
It's not just heat in the summer I can't tolerate. During winter last year it was horrendous. Sleeping with a window open and a fan on. Even on the coldest nights and was still roasting. Does that sound thyroid related?
Not a silly question at all. In most cases yes you do. Hyperthyroidism is less common with Hashimoto’s.
That’s the problem with Hashimoto’s. It can bring with it food intolerances which are different to food allergies. Those with allergies will often react immediately to reactive foods. Those with intolerances probably won’t feel if they improve by going gluten free. Some do. I’ve had a stool test to show I am reacting to gliaden which is found in wheat.
According to Dr Tom O’Bryan we all react to gluten. It makes holes in our gut lining but for some reason the holes don’t repair themselves in some people but do in others. So people with Hashimoto’s will have intestinal permeability or leaky gut which means if the holes are too big then this means that the gut lining is not as selective as it should be and will let in food proteins and other things which should never enter the blood stream this stimulating the immune system and creating antibodies some of which attack the thyroid. So that’s why you have to repair the gut lining and calm down the immune system otherwise Hashimoto’s will always affect the patient. Treating Hashimoto’s requires a multi pronged approach. Also you have an increased risk for other autoimmune diseases such as lupus, MS and rheumatoid arthritis. It’s simply the immune system attacking other parts of the body.
Thank you for the reply. This site is great for knowledge. I have just ordered Isabella Webtz book. Hashimoto's protocol. Anything is worth a try. My skin breaks out in the sun and with bright lights too. Have you not found medication helped your hair? Mine is just awful now
I get polymorphic light eruption. Still don’t know why exactly. Apparently it’s due to raised oestogen levels who knows for sure.
To be honest, I’ve had to do loads of research myself. Forums are great but until I’ve not read and listened and watched stuff myself I’ve not gained enough knowledge. Her book is a good start.
My belief is that medication can help but it doesn’t restore health. It often alleviates symptoms only. In fact most medications only introduce more side effects. I believe functional medicine is the way forward at least for me. If you’d like to know more google functional medicine and Dr Mark Hyman. All the best.
Hi i don't think mine is polymorphic light eruption. It's never itchy or sore. The dermatologist I saw said it looks consistent with Cutaneous lupus. So I am waiting on a skin biopsy to comfim. Yes i will start with the book and also look into dr mark hyman 😊
This video by Dr Brad Shook is very insightful. Explains how thyroid hormone physiology works. I posted it earlier but you perhaps you’re not able to see it:
Hi just a quick question as i forgot to mention. I paid privately to see an endocrinologist. His report was I am simply at risk of developing autoimmune thyroid disease (hashimoto's) but I don't have it just now. This is what confuses me as the advice on this site is saying I already have it. Is that correct?
Your results speak for themselves. Has he not seen these numbers?
TG 151 (<115)
TPO 124 (<34)
If you were lower than 115 and 34 according to that reference range you would not have Hashimoto’s. The fact that they are quite elevated shows you have Hashimoto’s.
Most endocrinologists are trained specifically to treat diabetes patients anyway. If you’re looking for treatment and advice on Hashimotos you’ll have to look beyond allopathic medicine. Doesn’t matter if it’s an NHS or private endocrinologist.
This article explains what your Endo is saying and what the alternative approach is. Thyroid hormone supplementation will not resolve this. I’m not saying you should follow the AIP diet but if you read it you’ll see what I mean:
The first time they were tested last may. My tpo antibodies were >1000 and it was those results he was going by. I will check thst link out. My book arrived today (isabella Wentz hashimoto's protocol) so i will get started on reading that too.
Sorry but I don’t think your Endo can interpret these results. Either way their treatment plan is the same. They will give you Levothyroxine regardless but only if your TSH rises and FT4 drops enough according to their reference ranges which mind you can just change whenever they choose to change them.
Thank you for all your help. I will give the book a try. Got to be worth a shot i suppose. I hate how it makes you feel like a hypochondriac by some Dr's. Like they don't believe you sometimes
You don't sound very hopeful. Just think if you hadn't found this forum you wouldnt know what you know now. Knowledge is power - empower yourself, be strong, be your own health advocate. You can do this and you can make yourself better. We're always looking for a cure through a pill. Most medications don't give us health.
Use food and nutrition to heal yourself. The likes of Dr Mark Hyman, Dr Sherry Rogers, Dr Amy Myers, Dr Brad Shook, Dr Jessica Peatross are all doctors that became ill and realised that allopathic medicine does not cure us but only manages symptoms. The list goes on and on. They changed their careers and adopted a functional medicine approach to heal themselves and they're now sharing their knowledge with the world. Don't give up.
I honestly don't care if those doctors believe me or not. I really couldnt give a monkeys. I use those doctors where I need them and I will use the care of a naturopath or functional medicine doctor to treat me and my health issues.
Sorry. I didn't mean to sound that way. It's just it drags you down after a while. I have been unwell since may last year with a cycle of different symptoms and no one able to give me an answer as to why. But you're right about the Dr's and healing your own self. Thanks so much for your help. I can't remember if I asked(brain fog) but do you also have hashimoto's, and if so what were your symptoms?
I wouldn’t know all this otherwise. I could fill an A4 page with my health problems. You’re not alone. Heat intolerance, brain fog, menstrual issues, heavy periods, polymorphic light eruption, thin skin, hair and nails, Insomnia, can’t lose weight, fatigued, easily get sick and forgetful it goes on and on.
😂 Sorry. That was a silly question. I can relate to most of them but don't have heavy periods. The opposite, very light periods. Before I kept losing weight despite increased appetite and couldn't put weight on. Now i put it on despite not having much appetite. I feel like i'm switching between hyper and hypo symptoms. I've read that's common with hashimoto's.
Hi sorry to bother you again with all these questions. Do you also have problems with your bladder? Sorry for the personal question. I have developed a very overactive bladder. My Dr is trying to manage it with medication. Just wondering if that's also a hashimoto's symptom?
Yeah. I have had so many blood tests to check for different things. Lupus was mentioned. Just recently had tests to do with the adrenal glands and awaiting a skin biopsy for skin rashes. Yes I am female. I am 36 years old
May be your tests will throw some light on to the cause.
Adrenal glands are often mentioned on this forum as people with thyroid problems can also have adrenal insufficiency.
Post your results in a new post when you get them.
When I saw an Immunologist about the cold urticaria he checked for Lupus but it came back negative.
If your results do not find a cause maybe get your female hormones checked, Progesterone and Oestrogen, as when these are out of balance they can cause lots of problems, notable hot flushes even when not menopausal.
Hi thank you. I will do. The last time my oestradiol was checked it was very high but the dr said it wasn't significant. I saw a dermatologist for my skin rashes and she said they looked consistent with Cutaneous lupus. As I do have a sun allergy aswell. Hence the skin biopsy
I think it depends on the time of the month when the oestradiol was tested which determines the levels.
Did you get the actual results from the Doctor, we always say on this forum to get a print off of the results for any tests you have had, you are entitled to your results by law, never accept the Doctor saying the are normal because us with thyroid problems know they say this, but what they think is normal for us is far from it, as we need our levels to be optimal.
I do hope you get to the bottom of the problem, let me know how you get on.
Thank you for your kind wishes. I get fed up going back and forward for tests and getting no further forward. Yes my oestradiol was 670 range is (75-140) it's only ever been tested once so I don't know what it is now. That was may last year. Sorry it was tested before that in 2017 and it was 177
These are the ranges taken from NHS South Tees Hospital.
Labs. do differ with their ranges but not sure where yours fit in, but if top of your range is 140 for that particular time of month then surely the 670 level is very high.
Children: Less than 130 pmol/L
Males: Less than 146 pmol/L
Females:
Follicular: 72 – 529 pmol/L
Ovulatory: 235 – 1309 pmol/L
Luteal: 205 – 786pmol/L
Post-menopause: Less than 118 pmol/L
It is marked as high but it's of no concern i was told. Not sure of the significance of it being high either. They don't seem to test it very ofter here
What age are you? I felt like this for years and almost gave up my career because the embarrassment of sweating and looking beetroot all the time made me socially phobic. Like you, I described it as hAving a broken thermostat. The heat intolerance resolved when I went on HRT.
Hi there. I am only 37. It's not the menopause. My Dr prescribed medication that's usually used to treat hot flushes but actually made me worse so stopped taking them. Sorry you suffered so bad. It is horrible isn't it.
I feel like I've suffered with heat for 20 years! It did seem to resolve when I took HRT, which made me wonder if it was a hormone imbalance linked to my thyroid, because it started when I was diagnosed as underactive.
Unfortunately doctors are too specialist and in my experience never treat you holistically.
I totally sympathise with you. It dominates your life. Difficult for it not to.
Hi I really feel for you. Being like that for 20 years. I've only been like this since Sept last year and it's bad enough. I still think it's my thyroid but unfortunately my levels don't show it yet. It is just now. I always need to sit by a fan to cool down
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