Thank you to all who replied to my post following my short Synacthen test, I’m due to see the endo next week so I will discuss your suggestions with her.
I have now had my eight week blood test after commencing on T3 and the reduction of levo. I will see what she will do following these results:
FT3. 5.6. Range 4.3 - 6.8
FT4. 7.5. Range 7.7 - 15.1. Back in August 11.4
TSH 0.09 range 0.34 - 5.6. Back in August 0.19. I year previous 1.24
All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
If also on T3, make sure to take last dose 8-12 hours prior to test
Is this how you did the test?
FT4 is now rather low
Have you been supplementing vitamins to improve low levels
healthunlocked.com/thyroidu...
Ask for vitamin retesting
Coeliac blood test too, if not gluten free already
Thanks, yes this is exactly what I did before bloods taken, following your advise. I have previously been tested for coeliac, but negative. No supplements taken, I will look into this.
This is the lowest my FT4 has been.
How much Levothyroxine were you on before T3 added?
How much T3 are you taking and is this as split dose? If so how many doses
How much was Levothyroxine reduced to?
Have you ever had TPO or TG thyroid antibodies tested?
thyroiduk.org.uk/tuk/about_...
If not, ask/insist for these to be tested
The fact you already have had coeliac blood test suggests, that cause of hypothyroidism is autoimmune thyroid disease also called Hashimoto's which is diagnosed by high antibodies
Your vitamin results were low 5 months ago. SeasideSusie gave detailed information on what need improvement
T3 and Levothyroxine need optimal vitamin levels to work well
Essential to test vitamin D, folate, ferritin and B12 regularly, especially when supplementing
Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far, is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies. Regardless of negative coeliac test.
amymyersmd.com/2017/02/3-im...
chriskresser.com/the-gluten...
thyroidpharmacist.com/artic...
scdlifestyle.com/2014/08/th...
drknews.com/changing-your-d...
I was started on T3 8 weeks ago, 20mcg split x2, my levo was reduced from 100 to 50. I have been tested for antibodies, but will need to dig out results.
You may need to increase Levothyroxine back up a bit. Endocrinologists are often keen to reduce too much
Perhaps try 75mcg
Obviously need to get vitamins optimal too
They drop because of being under medicated
Strictly gluten free diet may help improve adrenals
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
you do not need any gut symptoms
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
amymyersmd.com/2017/02/3-im...
chriskresser.com/the-gluten...
thyroidpharmacist.com/artic...
scdlifestyle.com/2014/08/th...
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