Hormone clinics UK: Has anyone here been to a... - Thyroid UK

Thyroid UK
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Hormone clinics UK

SeaVee79
SeaVee79

Has anyone here been to a hormone clinic in London or elsewhere in the UK with positive results? They are pretty expensive and I want to know I am doing the right thing.. I have non existent testosterone, low progesterone and oestrogen and severe adrenal fatigue. I feel awful all the time and am so fed up of feeling this way that I'm willing to pay lots of ££ if I know it'll help me feel better.

Any advice appreciated.

Chloe

32 Replies
oldestnewest

How are your thyroid hormones? If they're not optimal, the others won't be, either.

SeaVee79
SeaVee79
in reply to greygoose

HI Greygoose. They are optimal and have been for quite some time. Unless I have thyroid hormone resistance.

T3 6.1 (3.1 - 6.8)

T4 15.3 (12 - 22)

I am also on hydrocortisone for sever adrenal fatigue. But I just don't feel well 😥

greygoose
greygoose
in reply to SeaVee79

And your nutrients?

SeaVee79
SeaVee79
in reply to greygoose

Active b12 88.6 (25.1 - 165)

Folate 19.1 (2.5 - 50.)

Vit d 70.8 (50 - 200)

Iron is high ferritin is low.

I know they are low in range so I have been supplementing since this blood test 3 months ago.

I am trying to get my endo to give me testosterone but he is pretty crap all round. I may have to pay privately. 😣

Any advice thankfully received

Chloe

greygoose
greygoose
in reply to SeaVee79

That low B12 would make you feel pretty bad. How much are you taking? And what sort of B12 is it? Are you taking a B complex with it?

Same goes for the vit D. And, are you taking vit K2 - MK7 and magnesium with it?

What else are you taking?

Are you taking statins by any chance?

SeaVee79
SeaVee79
in reply to greygoose

I am taking a methyl complex with b6 25mg, b12 250 ug, and folate 450ug.

A liposomal vit d 1000iu with k2 100mg

Magnesium

Does that seem like the amounts are enough?

Thankyou

greygoose
greygoose
in reply to SeaVee79

I would think you would need at least 1000 µg B12, 25 µg is hardly worth having. And I don't think that dose of vit D is high enough, either. But I don't know much about vit D dosing.

Good that you're not taking statins. :)

SeaVee79
SeaVee79
in reply to greygoose

Ok I will get a b12 specifically. Thankyou!

greygoose
greygoose
in reply to SeaVee79

You need sublingual methylcobalamin. Not sure you can get that in high street shops. Best to look on Amazon. Jarrow or Solgar.

SeaVee79
SeaVee79
in reply to greygoose

Oh I didn't know that! I will get some.

SeaVee79
SeaVee79
in reply to greygoose

I am not taking statins

For sex hormones, yes, but not for thyroid.

Hi Would be very interested in hearing how you got on? Probably not allowed to say on the forum but if you don’t mind could you PM me? Thanks!

Yes it's just sex hormones I'm looking for. Would you be able to pm me where you went and whether you were happy with them?

Thankyou

You come across fairy (if not even) well clued up what's going on with you and what treatment you need.

if you're not rich and If you're not trying to get pregnant, sex hormones are pretty easy to correct by yourself with even simple combined contraception pills.

Testosterone you can buy online. Easier in injections but if you look hard you'll find gel too.

Research online dosing. A lot of American menopausal women are prescribed testosterone as standard and often as injectable or implants. There's a lot of pointers from those patients on Facebook. Usually they aim at top of the range levels.

Other than that if you have loads of money, then hormone clinic its your choice.

There's menopause clinic in London, NHS one, they prescribe testosterone implants to women in UK. Worth looking into it before you chuck a lot of money privately.

HI Trelemorele.

I am not rich enough to afford the fees yet am at the end of my tether so willing to pay. I have searched high and low online for a source of testosterone (gel preferably) but cannot find one. If you know of one could you please PM me?

Thanks so much

Chloe

I'll send you PM tonight 're testosterone and NHS menopause/pof clinic details, I'm at work at the moment.

That NHS clinic is worth having referral to as they have very pro hormones replacement to women and they'd be able to help you on NHS.

maro
maro
in reply to trelemorele

Hi trelemorele can you please pm me details also re testosterone and nhs hormone clinic, I too have struggled to buy testosterone . Many thanks

trelemorele
trelemorele
in reply to maro

Will do!

Kazbe
Kazbe
in reply to trelemorele

Hi Trelemorele

Please could you PM me the details of hormones and the clinic in London I’d be very grateful as I’m suffering with hormonal imbalance ant the GP just not interested!

Thanks Again 😀

Kazbe

Buying testosterone online is so unbelievably irresponsible, holy hell. How is this even allowed on here? >:(

SeaVee79
SeaVee79
in reply to mainsdours

Sometimes people have no other choice other than to take what may appear to be 'extreme measures" to support their health. Whilst i agree that it should definately be a last resort, it is entirely possible that someone is unable to find a suitable Dr to help them on the nhs and that they are unable to afford the hundreds and hundreds of pounds that It costs to go private. Unfortunately in some cases the nhs forces people to try things that could well be dangerous but are the only option they have. I for one feel very relieved that if it comes to it I will be able to help myself if I cannot find help anywhere else.

Chloe

mainsdours
mainsdours
in reply to SeaVee79

If you have a condition requiring testosterone therapy, you will be able to find an NHS doctor who will prescribe it. If they don't, then they are acting unlawfully and can -- and should -- be reported.

SeaVee79
SeaVee79
in reply to mainsdours

In an ideal world I would be prescribed therapy for my almost non existent testosterone. I would also be prescribed life saving thyroid treatment instead of having to buy it myself online. In an ideal world the doctors would pay attention to the fact that my adrenals do not produce cortisol the way they should and treat that as well.

However, we do not live in an ideal world, this is not how it is with the nhs and should I want all this treatment then I would have to pay thousands and thousands of pounds for it which I cannot afford.

Please get down off your high horse and stop making me feel bad for not being born with a silver spoon in my mouth and also for wanting to do everything i can to feel well.

I have an endo, who consequently is on the 'good doctor's list. He however pays no attention to my lingering symptoms or my low testosterone and just gives me the old adage - well some people just never get better. My gp is kind, she listens and understands but is limited in what she can do. I am forced to do whatever I can to help myself feel better and improve my health.

You are lucky you have found specialists to help. It is a lottery and most of us have not been so lucky. The wonderful people here at Thyroid UK do everything they can to help. They do not deserve abuse.

Chloe

mainsdours
mainsdours
in reply to SeaVee79

Then your GP needs to refer you to a different endocrinologist. Look at the list of endos on the Addison’s Disease Self Help Group (ADSHG) site; they’re all credited as being very good for Adrenal insufficiency and related conditions.

helvella
helvellaAdministrator
in reply to trelemorele

Most forms of testosterone are actually on one or other of the Controlled Drugs schedules and would not, therefore, be legal to import. Even simple possession is illegal in most cases.

List of most commonly encountered drugs currently controlled under the misuse of drugs legislation

gov.uk/government/publicati...

I have used an excellent one in London, for both female and thyroid hormones. Pm me and. I will send you their name.

Kazbe
Kazbe
in reply to 7eleven

Hi 7 eleven

Please could you share their details with me I’d be very grateful

Many Thanks

Kazbe

I am with endocrinologists at The Christie in Greater Manchester. That might be a bit far for you but it is always worth emailing the professor that heads them up and asking him if he can recommend anywhere nearer to you. Adrenal Insufficiency (which I'm assuming you meant by Adrenal 'Fatigue') is very serious and complex and needs people who really know the condition inside out. It's also very common for people with AI, especially if they have Addison's, to be deficient in other hormones as well. Low testosterone is the most common and again needs trained, specialist endocrinologists to deal with it.

Do NOT buy any hormones online! I can't stress enough how important this is; it is not only very illegal, it is also highly highly dangerous and it's so unbelievably irresponsible for people to have suggested this to you! Please please get the help you need and deserve.

Thankyou... and no, I did mean severe adrenal fatigue not adrenal insufficiency. I am attempting to get a referral to a hormone specialist in London but it all depends on how good the refferal letter from my Dr was I guess. I can't really afford to go private so fingers x that this works out as my testosterone is non existent.

Chloe

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