Tremors/shaking feeling

[MEguylol]

I have had an ME/CFS diagnosis not a thyroid one and I am currently fine except for tremors. I am getting tremors throughout my body which come and go. I especially get them while sleeping and waking up but I also get them while awake too sometimes. It feels like I am connected to the mains electricity. I just had my yearly check up today and they are going to do a full blood work up including thyroid. Just wondered if anyone else gets tremors. It is not parkinsons as I got that checked out and had a brain MRI which was normal/clear.

[SlowDragon Administrator]

welcome to the forum

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Have you ever had thyroid antibodies tested

Or vitamin levels?

What vitamin supplements are you taking…..if any

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH and most consistent results. (Patient to patient tip)

NHS rarely run full testing

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

[MEguylol in reply to SlowDragon]

Hi Slow Dragon. Thanks for the info. I have had quite a few TSH/FT3/4 tests over the years and they are usually in range. I will let you know what my current results are once theyve been done. I really wanted to know if anyone else experiences shaking/internal tremors.

[SlowDragon Administrator in reply to MEguylol]

Yes it’s a relatively common issue for some people

healthunlocked.com/search/p...

healthunlocked.com/search/p...

I have had quite a few TSH/FT3/4 tests over the years and they are usually in range.

Can you add any of these tests …..were tests done early morning

Low vitamin levels tend to lower TSH

Central hypothyroidism is also a possibility

[Batty1 in reply to MEguylol]

I have internal vibrations … you can’t see it from looking at me but I can feel a buzzing sensation … not sure if this is thyroid or something else … I don't mention it to my Endo because I don’t want him to try and reduce my meds .

[BonnieG123 in reply to Batty1]

I have held back telling my doc things so as not to have to take any new meds. Now I know I’m not alone. 😊

[MEguylol]

Some of the people on here who have had tremors inside say they have hyperthyroid and some hypothyroid. So which is it likely to be? What is central hypothyroidism? I am overweight (118KG or 19 stone)

[radd in reply to MEguylol]

MEguylol

Welcome to our forum,

I suffered years of internal tremors/vibrations. I likened it to being plugged into a fridge! I have written about my experiences to another poster here. My reply is near the bottom of the page. healthunlocked.com/thyroidu...

Central hypothyroidism is when there’s a problem with the pituitary as opposed the thyroid gland. Symptoms and treatment are the same and that’s to replace deficient thyroid hormones.

Thyroid issues and bipolar have a lot of overlap. It is important you have TSH, FT4 and FT3 tested to have a clear picture of your thyroid function. Many members have to get private testing but as you are being treated for bipolar you might be having FT3 tested anyway?

Iron/ferritin deficiencies are common on the forum as low thyroid hormones commonly causes gut malabsorption issues and also slows iron mechanisms up. This in turn impacts how thyroid hormones perform as iron is essential for good function, and it becomes a vicious circle.

[elaar]

I had a lot of chest and head internal tremors when I was hypo, it felt like my whole body was shaking when trying to sleep, very scary when it first happened, but wasn't externally visible. I'm not sure if it was a direct result of low Thyroid hormones, or indirect by being deficient in something caused by the gut/absorption problems.

[MEguylol]

I also have sudden hearing loss I forgot to say but am going down the route that it might be ear wax first. I do have tinnitus too. And I get a monthly injection for bipolar disorder which started about 12 years ago (thinking silly things and that someone was after me). I do wonder whether it may be thyroid as my mom had thyroid cancer and a goitre.

[MEguylol]

I remember the last Ferritin test I had was very low and my GP remarked about it and I found this article about low iron levels and hearing loss. WOnder if this might be my problem...the ferritin that is

healthyhearing.com/report/5...

[SlowDragon Administrator in reply to MEguylol]

Low vitamin levels are frequently RESULT of being hypothyroid

When hypo we develop low stomach acid and this results in poor nutrient absorption and low vitamin levels as direct result

Low vitamin levels tend to lower TSH as well

ESSENTIAL to test and maintain GOOD vitamin levels

Tinnitus frequently linked to low B12

Please add most recent vitamin D, folate, ferritin and B12 results

Usually down to us as individuals to self supplement to maintain good levels

Medics only test for vitamin deficiency…..they won’t treat low levels that are within normal range

[Simonron]

I rather hoped my body jerking, shaking, tremors, PLMD, RLS whatever was effected by thyroid malfunction. Covid gave me Thyroid Cancer. The Thyroid is go, the tremors remain.

[Obsdian]

Internal vibrations can come from menopause too for anyone of that sort of age.

[EVERING]

Hello there. Sorry to hear you are experiencing internal tremors. I have been in the same position constantly for over 3 years now. For me the condition began 9 days after starting to take Levothyroxine following the partial removal of my thyroid as it was enveloped in a benign tumour. I also have fasiculations over 4,000 times an hour constantly, mainly in my legs,, all very hard to live with.MRI of the brain is normal. EMG and nerve conduction study normal. Endocrinologist says all my levels and bloods are OK. Neurologist says no known cure and I have to live with it.

[EVERING]

Sorry, I should also have said my GP has put me on HRT and Estrogen to see if that helps, but it hasn't

[arTistapple]

I am pretty sure I never experienced tremors, vibrating, thrumming in my body, until I actually started thyroid medication for hypothyroidism. I have had quite a lot of trouble getting the correct dosage of medication. Experimenting/trying different dosages has made this more noticeable.

Under dosing for me is when it’s worst.

COVID is another ‘unknown’. I have definitely suffered some severe bouts of ‘something’, doctor even asked if I had experienced COVID when I developed pulsatile tinnitus. To my knowledge I have not had COVID. The tinnitus happened after a change in thyroid medication, which I still have more than two years after that dose change!

Welcome to the weird and wonderful world of hypothyroidism.

[MEguylol]

I posted on here about 12 months ago under the name MElol or MEguy (can't remember which offhand but perhaps the MODS can retrieve the results from my post on tremors back then) but I forgot my log in so I made a new username here. I posted my TSH, FT3 and FT4 results at the time as well as Ferritin B12 and Folate. Folate and Ferritin D3 were LOW. I now have hearing loss and due to get my wax syringed today but I am sceptical that it might all be (including my bipolar) thyroid related. I will post the new results when I get them.

[tattybogle in reply to MEguylol]

was this you ? healthunlocked.com/user/MEguy

[MEguylol in reply to tattybogle]

Yes that was me but the page isn't there anymore when I click on it.

[tattybogle in reply to MEguylol]

That's odd .. i can see it all ~ profile , posts, and replies.

I am rubbish with computers , so i've no idea why you can't see it . ( helvella might know , or he might be equally baffled , lol )

[helvella Administrator in reply to tattybogle]

I can see it - but admins have absolutely NO ability to move or rename or whatever.

All we can do is make edits to contents or, if necessary, delete posts and replies.

[MEguylol in reply to helvella]

It's OK, I can see it now thanks

[Pray4health]

I get that electric internal tremor but it is not visible. It also comes and goes

[Nanalinboy]

yes I have been getting tremors all over too , we are near a road with a speed bump and to begin with I was blaming this , but it’s happening when there is no traffic . I have hypo thyroid, and fibromyalgia , diabetes and meningioma . Dunno which to blame 🥴

[Benos123]

I've had the ME/CFS diagnosis for many years since the 80's and the occasional hand tremors for the past ten years at least.

What I have since found out is that these tremors can also be a side effect of exposure to toxic chemicals and solvents, such as trichlorethlyene!

[Parrotia]

I had internal tremors and was not converting T4 to T3 well. When that was corrected I still had it. I was then found to have pernicious anaemia which is another thing that's difficult to get goes to take seriously especially if you've been suoplemebtingbdo that your blood levels look ok.Now I have B12 injections and take folate, iron and other supplements it's gone. I am as sure as I can be that it was the low B12 that caused it. You can check out symptoms and causes and how to do blood tests on the B12 society website. Worth ruling out if it's not that.