Raised hormone levels

[Cbreeze1961]

I have been suffering for the last 2.5 years with a cycle of feeling fine in myself for 3 weeks quite capable of managing my life and getting out and about socially. At the end of every 3 week period I can feel as if a valve has been opened and I get this feeling of panic enter my body and exhaustion hits me like a bus. The feeling comes on swiftly I am unable to control it and it floors me completely where I was quite active I am exactly the opposite exhausted, unable to get up, unable to make decisions and basically struggle to look after myself. At the start of this massive chemical/ hormonal change I have seriously bad diahorrea which lasts over 3 or 4 days. It usually takes 14 to upto 21 days to come out of this downward spiral of panic where I can get to the stage I struggle to go on., and then I can wake up one day and I know I am back on my 3 week good period

Basically I would like to know if anyone else struggles with this sort of cmedical cycle and if so do they think it relates to either thyroid or parathyroid gland

At the moment I am being tagged as depressive and linked to bereavement of husband 3.5 years ago, I feel I am not getting the right treatment as I think it is more medical than mental

Any comments would be gratefully received

Christine

[Buddy195 Administrator]

Hi cbreeze1961,

Firstly, I’d like to say how sorry I am for the loss of your husband. Stress associated with bereaved no doubt has affected you both emotionally & physically.

It would be helpful if you could let members know about your ‘thyroid journey’ in your profile; eg date of diagnosis/ medication taken etc. Looking at your post from a couple of days ago, you have you have also been diagnosed with a parathyroid condition & have been recommended an operation for this.

For me, increased anxiety is one of the hardest thyroid symptoms & it is definitely worse when key vitamins (ferritin. Folate, vitB12 and vitD) are not optimal of If my thyroid medication needs adjusting. I’m also in peri- menopause which has brought new challenges. I’m not sure of your age, but if your menstrual cycle is beginning to alter I’d recommend looking at Dr Louise Newsom’s Balance App for further information.

[meme]

Your hormones sound like they are all over the place.

Has your GP done any tests at all in the last 2 years?

[meme]

PS.

I do know about PTH( parathyroid ) if you need any help.

[Cbreeze1961 in reply to meme]

Hi Meme thank you so much for taking time to reply to my message. I am going to see a private specialist Dr Bhatti at the Spire Hospital Washington. regarding my parathyroid this next week he is a surgeon and takes upto 90% of parathyroids out in the north east region. They are using a new type of treatment if you wish to look on the Spire site under Dr Bhatti’s name you can read an article about it. My Parathyroid blood tests results are out and have now been told they have been incorrect for at least 18 months. I am experiencing high levels of anxiety and panic and have been for past 2.5 years, these have been out down to bereavement following my husbands death in 2018 and depression, I have many other symptoms of the parathyroid such as exhaustion, depression, brain fog, lack of appetite, diahorrea, hair loss etc. probably 85% of symptoms that I have seen listed. One of the main issues is that I get 3 weeks that I feel like my normal self then a change occurs where it feels like a valve has been opened and I get a rush of what I presume must be overload of hormones at this precise moment I also get a sudden and dramatic bout of diahorrea which lasts for about 3 to 4 days, I am I’ll for anything from 10 to 21 days where I struggle to get out of bed and I go from being a well and organised person to someone who is unable to organise or function, it’s like a fear had overtaken me and I am frightened and panic over the least little thing inside I am burning up and feel like I just want to run away from this awful feeling it overwhelms me to the point sometimes I don’t feel I can cope with it again. I am desperate to get a resolution to the problem as I just seem to be going round in circles, I cannot live my life like this. I live alone and my family live away, so it’s a struggle. I have lots j ongoing friends but don’t like to bother them when I’m feeling so Ill and they all have busy lives. I would love to hear about your experiences and if you know of anything that could help my situation Thank you c xx

[meme in reply to Cbreeze1961]

If your PTH is out your symptoms are to be expected ! The quicker it’s treated the better.

My husband had one over active PTH removed last year, having had symptoms for at least 5 years. He put it down to getting older.

We are in U.K. and had one of the top men do it, Mr S Khan. Oxford.

You need bloods PTH, calcium and vitamin D. to diagnose. From same blood draw.

DEXA scan and untrasound for starters.