I am tidying up my medical file re hypo and shredding things that aren't needed. I never used to have such a file before hypo.
It triggers off the memories, which I don't think people really forget if they've been struggling, yet being told 'everything's fine'.
Before being diagnosed (by myself) and after feeling so unwell for a very long time and being given diagnoses for things I didn't have and treatment (even an op) from doctors I consulted privately then pleading with GP that I wanted to pay for a private 'whole body' investigation because there was something seriously wrong with me. (this had been going on a long time). The year before my brother-in-law had to take me in the middle of the night to the A&E and discharged as o.k). I didn't want this to happen again but it did even though GP reassured me that he'd do a Full Test and on 5.11.07 phoned to tell me that everything was 'fine' and nothing wrong. Off I went to sister. We believed doctors - after all why not - they are the experts and knowledgeable.
At my sister's I had the same awful experience as the year before and discharged again from A&E in her area. No diagnosis. I phoned my surgery and ask for a Blood test form for thyroid hormones to be left out for me. I was by now very unwell and went straight to the A&E when I came back home and kept in overnight and discharged with a diagnosis of 'Probably viral'.
On looking through the 'Full Test' today (for the very first time) that the doctor requested on 5.11.07 and which he phoned to reassure me everything was fine are 42 results. He didn't notice that the results of TSH were 95.61: FT4 5.7 and they state that there has been non-compliance. (my own test on 26.11.07 TSH was 100). The other doctor in the surgery when they received the phone call from hospital asked me who gave me the blood test form and I said I requested it myself. She said you have hypothyroidism come and get a prescription. If I hadn't done the ground work what would the consequences have been?
Like most on the forum we haven't a clue about blood tests/results.
This must have been the very first print-out I had but, like most, we know very little about results and take doctors' words. Why wouldn't we.
This doctor told me - everything was fine but I still remained undiagnosed. Needless to say I changed surgery.
Luckily because I insisted on my own test, the Phlebotomy were alerted and phoned the surgery probably to ask why no action had been taken due to previous result (I am assuming). It was the Phlebotomy unit who phoned the surgery re the results on 26.11.07.
The doctor (probably thought he was dealing with a stressed out patient - he was), assured me he'd do all the necessary tests and then he phoned to tell me I had no worries as everything tested was good.
This leaves one in despair but thankfully our instinct works well at times.
Thanks to Thyroiduk.org.uk and slow step-by-step to good health.
Why is the diagnosis and treatment of Dysfunctions of the Thyroid Gland the cinderella of diagnosing/prescribing. It has to be due to cursory training and the 'painting by numbers' attitude by only diagnosing through results of blood tests or insisting the patients' doses are fine and given another prescription for the symptom(s) instead of thyroid hormones which make patients well, i.e. NDT or T3/T4 or T3 only. Doctors have lost their skill in diagnosing by clinical symptoms - like Dr Skinner and Dr Peatfield and others.
Are we not deserving of good health once more - which is achievable with the right hormones for us as individuals?
The NHS should reinstate NDT and T3 for those who will benefit and not have so many consultations in the surgery or elsewhere. Not counting those who have to pay for services/hormones as NHS will no longer do so. Also the members who thought consulting an endocrinologists would resolve their health issues. Quite a number have been very disappointed with the consultation, which is a pity.