Experiences with

Phlebotomy

Hi diagnosed with pv 2014 been on hu since with phlebotomy when needed been more or less fine with hu up and down doses then for about a year or more fatigue struck brain fog itching sweating disturbed sleep every night falling asleep during the day always need a veinisection every 3 months

Hi all after being diagnosed with pv for 11 hrs taking hydroxicarbimide and having phlebotomy the last Yr and a half treatment hasn't been working so ruxolitinib was put forward 4 weeks ago so been taking for about 3weeks or so blood levels have fallen spleen pain has eased but haven't

If confirmed, will schedule a phlebotomy.[/i] As of today 09/27/24 HCT=44.2 HGB=14.5. As I expected, I do not need to consider a phlebotomy at this point in time. The higher read at 46.2 appears to have been an anomaly.

As a result I belong to the low risk group and I only started with aspirin and phlebotomy. Since February of this year I have been participating in the clinical trial phase 3 of Rusfertide.

If you look at the graph, the drops are each time I had a phlebotomy. Each peak has roughly been lower than the last and each low has been lower than the last. I'm actually due for a phlebotomy in the next week or 2.

Treatment was phlebotomy until ferritin dropped from 1300 down to 50. Which took about 12 months. Monthly cbc blood work and additional phlebotomy as needed.

I got a phlebotomy about a month ago and since then have experienced stomach issues 24/7 of nausea, headache, stomach pain, indigestion, acid reflux, constipation/ diarrhea , and just feeling like I have the flu. I stopped taking hydrea for a week and nothing changed.

I am having my first phlebotomy treatment next week. My doctor thinks I will not need many to bring things into normal range initially, then maybe once every 3-4 months as needed.

] T3 Tuesday: 8 am phlebotomy In the second scenario, timing of first dose of T3 is flexible, as it is the only T3 taken until midnight.

First five years after diagnosis I was treated with monthly phlebotomy and baby aspirin only. 5 yrs of monthly phlebotomy took its toll and iron deficiency and high platelets led me to besremi which had just been approved. Started besremi about 2 1/2 years ago.

Sure enough despite assurances from phlebotomy my blood has been “lost”. I already find the whole process stressful and as you can imagine this really hasn’t helped.

After a further 4 weeks and a phlebotomy end of April my Neutrophils have dropped further. I'm pondering the options. The obvious is to stop taking Pegy and switch to Hydroxy, which I'd rather not. Ruxo is another option which is less common in the UK.

Following that a blood test form arrived together with instructions to make a phlebotomy app’t and to take a urine sample along to my endo appointment.

He did not have me do another phlebotomy. 3 months later I started seeing an MPN specialist at one of the leading cancer hospitals. He did not have me go for another phlebotomy right away either. About 8 months later they had me try to get another phlebotomy.

Whilst the first two companies include phlebotomy I can't help thinking that at these prices they are not just taking the blood.

MY MPN specialist is recommending a phlebotomy every 3 months if my hematocrit number goes above 45. Has anyone progressed from ET to PV? I see that Jak2 occurs in 90% of PV patients. My allele burden is average at 17%. Any insight is appreciated. Thank you!

my platelets reached normal 200-250 after a year but i still needed phlebotomy every 6 months.

I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a phlebotomy.

Hi, I'm about 10 months in to starting Besremi and just had a phlebotomy. RBC had gotten to 47 after only 2 months from my prior phlebotomy, which I wasn't happy about. I keep hoping that will stabilize soon, although it took me a while to ramp up to my current Besremi dose.

Phlebotomy was next and they snagged 13 vials of blood. Next stop was the 7th floor to meet the clinical team.