Hiya, this is my first post Apologies if it's a bit long!
I had a hemithyroidectomy in Feb 17 due to a suspect nodule, which turned out to be fine, however was diagnosed with hashimotos. I've been on 125mg Levothyroxine for the last year and generally my results with the doctors have shown TSH to be below 1.
Recently I've been getting some strange symptoms which may or may not be related to thyroid and just to give full picture, I'm also currently being tested for coeliac and other bowel issues and am currently waiting for a laparoscopy for suspected Endometriosis.
However, I was suspicious my dose might have needed altering as I've lost a stone in a few months without trying (was trying for a year and a half before then!), been anxious, panicky, shaky at times, diarrhea, very fatigued but struggle to sit still at times. My Gp is doing a blood tests at the end of the week, but meanwhile I got the following medichecks tests done. I took the blood early morning, before meds.
Basically I'm really struggling to know which one of my 'issues' is causing me to feel so rubbish! Is it normal with hashimotos to feel hyper/hypo at the same time despite seemingly being medicated correctly? And can hashis affect your CRP? Which is concerning me slightly!
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picklepops9
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Folate is low. But B12 is high. Are you supplementing B12?
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Good to hear GP testing for coeliac but if test is negative many still benefit from strictly gluten free diet
Thanks so much SlowDragon, those links are really helpful. Annoyingly I had gone mainly gluten free for sometime before, although not 100% at all times to be fair. I've had to go fully gluten for this coeliac test, but plan to be strict and do an elimination diet after all this testing is done. I'll ask about the tests when I go back to the doctor.
No I'm not supplementing with B12, I thought that was strange.
Is the gluten free diet and getting my vit/iron levels up likely to help the conversion do you think?
Yes, possibly getting vitamins optimal will help Thyroid hormones work better
Selenium supplements can help improve conversion of FT4 to FT3 as well
You may find when start adding a vitamin B complex you notice symptoms of low B12. It can be that B12 is in your system but not being used if other B vitamins are low. Especially if Vitamin D is also low
Majority of us are not coeliac, but gluten intolerant. So don't be surprised if testing comes back negative. It doesn't mean you won't benefit from strictly gluten free diet. You just don't get such clear medical recognition of gluten issue.
But increasingly gastroenterologists recognise coeliac is just one facet of gluten intolerance. But there's currently no easy test for non-coeliac gluten sensitivity. After my endoscopy they were convinced I had coeliac, (negative coeliac blood tests) but subsequent DNA testing said probably not. I gained enormous benefit from strictly gluten free diet
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Apologies if it's a bit long!
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