Do I have trouble converting? I have been on the same dose since September 2017 and endo says he does not understand why my levels are doing this. Diagnosed 2011 with underactive. All tests done early morning, fasting and leaving off Levo for 24 hours for blood draws. I still have very many hypo symptoms
Thank you
Written by
Kallie2012
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You state your Endocrinologist doesn’t know what’s happening.
Well if you test antibodies and you test positive for those, you have an autoimmune disease (Hashimoto’s) this causes your TSH to be up and down like a yo yo.
I had an Endocrinologist that was useless but he did have the brains to test antibodies and diagnosed me with Hashimoto’s.
If he/she not tested this then I suggest you get rid of them as they are not helping you, and do private testing.
What dosage of Levothyroxine are you on?
Has your Endocrinologist been messing about with your dosage amount due to your results?
Yes, you have Hashimoto’s then, it causes your thyroid results to fluctuate.
What a bloody idiot, if he doesn’t know that, then I wouldn’t take advice off him again.
Which results relate to when you were on 150mcg Levothyroxine, all of them?
Your T3 is in the low range, I’m having the same issue and I feel rotten.
Hashimoto’s patients often have trouble converting T4 to T3 we need T3 to feel normal, it doesn’t matter what are TSH results are if are T3 is low we don’t feel well.
Levothyroxine only contains T4 so we face issues not feeling well.
For us to feel normal and ignorning NHS ranges, our TSH should be 1 or below, T3 & T4 in the high figures of the ranges.
I’m experiencing the same problem.
I’ve ordered some T3, T3 is a hot subject at the moment and not being prescribed to patients that desperately need it as it’s charged to the NHS at extortionate prices.
There are lots of books available to purchase on thyroid issues, but, I am reading Paul Robinson latest book the thyroid patient’s manual.
This helps understand treatments etc. Amazon sell it.
As mentioned go gluten free, take 200 mcg of selenium daily.
How are your vitamin levels, D,B12, iron abs Ferritin?
Hopefully the experts may be able to offer more advice.
To help further, See a similar problem to yours that SeasideSusie replied to:
Best wishes
Peanut31
raised antibodies confirm autoimmune thyroid disease aka Hashimoto's which explains the fluctuations in your results.
Most doctors dismiss antibodies as being of no importance and know little or nothing about Hashi's and how it affects the patient, test results and symptoms. You need to read, learn, understand and help yourself where Hashi's is concerned.
You can help reduce the antibodies by adopting a strict gluten free diet which has helped many members here. Gluten contains gliadin (a protein) which is thought to trigger autoimmune attacks so eliminating gluten can help reduce these attacks. You don't need to be gluten sensitive or have Coeliac disease for a gluten free diet to help.
Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies, as can keeping TSH suppressed.
Hashi's and gut absorption problems tend to go hand in hand and can very often result in low nutrient levels or deficiencies. It would be a good idea to test
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New results
T3 taken away, looking for a new source please :)
Thyroid results going up and down - driving me nuts!
T3
