Did you ask your Endo how on earth your results can be your fault???? What does he expect if he drops your levo to 25mcg? You just needed to reduce a little after May's blood tests as FT3 was high.
Presumably you told him you were taking the dose you were prescribed, so how can it be your fault?
As you weren't over medicated in January on those doses but you were in May, either T4 and T3 levels have build up so you have become over medicated, or you've had a Hashi flare which has caused a hormone dump into your blood raising FT4 and FT3.
You certainly needed to stop taking Levothyroxine and T3 until FT4 and FT3 are within normal range but 3 or 4 weeks should be more than long enough. When is your next thyroid test and when are you next seeing your endocrinologist.
You need a dose increase because TSH is over range, FT4 is low in range, and FT3 is below range. Ask your GP to increase dose to 50mcg. GP can always contact endo for okay if unsure.
These high antibody results confirm autoimmune thyroid disease aka Hashimoto's which is where antibodies attack the thyroid and gradually destroy it.
The antibody attacks cause fluctuations in symptoms and test results. When the antibodies attack, the dying cells dump a load of thyroid hormone into the blood and this can cause TSH to become suppressed and Free T4 and Free T3 to be very high or over range. You may get symptoms of being overmedicated (hyper type symptoms) to go along with these results that look as though you are overmedicated. Unless a doctor knows about Hashi's and these hyper swings, they panic and reduce or stop your thyroid meds.
The hyper swings are temporary, and eventually things go back to normal. Test results settle back down and hypo symptoms may return. Thyroid meds should then be adjusted again, increased until you are stable again.
So it looks very much as though you may have had a Hashi's flare in May and it sent your test results haywire (maybe you had hyper type symptoms), your doctor panicked and reduced your meds. I think this shows that your endo doesn't know very much about autoimmune thyroiditis (their term for Hashi's).
Your results show that you desperately need your meds increased again so go and see your GP and ask for an increase in dose.
The aim of a treated hypo patient generally is for TSH to be 1 or below or wherever it is needed for FT4 and FT3 to be in the upper part of their respective reference ranges when on Levo only. Add T3 into the mix and TSH may well be suppressed, FT4 can lower and FT3 should be nearer the top of it's range.
You can help reduce the antibodies by adopting a strict gluten free diet which has helped many members here. Gluten contains gliadin (a protein) which is thought to trigger autoimmune attacks so eliminating gluten can help reduce these attacks. You don't need to be gluten sensitive or have Coeliac disease for a gluten free diet to help.
Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies, as can keeping TSH suppressed.
Typical of an Endo to pass on the blame, have to say I was suprised he/she knew what Thyroid toxicous was. How can it possibly be your fault, you are there for them to help you
and it doesn't sould like you are getting much help.
Please try not to take what the Endo said to heart - some of them are quite nasty
Absolutely not your fault. Endo obviously has no idea what Hashimoto's is.
Very common to get slight hyper swing, but it was barbaric to reduce dose to 25mcg. You need a dose increase asap. 25mcg steps back up. Testing after 6 weeks
All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test (T3 once you get back on it 12 hours prior to test)
Gluten free diet can really help steady the levels
Have you had recent tests for vitamin D, folate, ferritin and B12. Quite likely very low due to such enormously dose cut.
If these have never been tested, or not tested since dose drop, make an appointment to request they are done, or ring /email same request. If any of these are too low thyroid hormones struggle to be used in body
Kanza 1718, reports such as yours from an apparent professional medic terrify me and similar comments appear on this forum too regularly to be acceptable. Fortunately lots of knowledgeable folk on this forum have offered you sound advice and guidance.
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All test results...could really use some help please for a newbie
