I’ve just received my medichecks results & need help from you lovely wise people please!!! I feel like I’m starting to loose my mind. I’ll try to keep this short, but things have got complicated with my private endo.
I’ve been chronically ill for over 2 & a half years now, with so many symptoms but pain, exhaustion & brain fog being the most debilitating.
None of my results have been enough to get a diagnosis on the NHS, as my TSH keeps returning to ‘normal’ (swinging from 0.04 up to 2.32 with range 0.27-4.2) with my free T3 & T4 constantly bottom of the range or even below for FT4......which is what the results say today too.
I have been seeing a private endo, who I don’t have full confidence in but according to the list on TUK he supports NDT. At the last appointment I had my head set to argue for full bloods & an ultrasound, but he suggested I get some T3 & he would support me trialing it. If it didn’t work then he would do more tests, &/or look at low level steroid treatment (as I had a normal results short synacthen/ACTH test done, but felt GREAT after the steroid injection & had my first pain free days in over 2 years!!) which he said could indicate my adrenals are struggling, although the test was done late afternoon & is supposed to be done early morning!! I got saliva tests today though & will do them tomorrow!
Sooooo I have T3 on the way (hopefully! It hasn’t arrived yet from Turkey) but after doing so much research, it looks like it’s more normal that T3 alone treatment is usually a last resort. I’m worried because my endo said to take 10mg once a day & he would monitor with bloods. But that isn’t making much sense with what I’m reading, plus I’m worried that it will mean my body stops making T4?
When I questioned jumping right to T3 & not NDT he waved his hands & dismissed the idea. I wish I had pushed him on it, but was having a very bad brain fog day & he flummoxed me with jumping right to treatment without a diagnosis!
Would I be better self sourcing NDT? Or trying to get him to write me a prescription?
Also, which supplements are good to get my other levels up higher? Is that B12 level enough?
My Vit D was checked in April & was 111 (>75 adequate)
Is that antibody level enough to confirm Hashimotos? My TPO in March was 11 (0-34) & my TSH Receptor ABS <0.3 (0-0.9)
All help very much appreciated, as I’m feeling very conflicted about following my endos advice with the T3 or self medicating with NDT......esp as I don’t have an official diagnosis but feel sooooooo ill, but all my results are mild or ‘normal’!
Confused in Cornwall xx