Have finally given up hope of getting helped by professionals. Having spent near £600 over the last 3 months seeing someone from the thyroid UK recommended list + blood tests to avoid the 5 month nhs wait.
Still symptomatic. Feeling slightly worse since latest t4 increase. So I've ordered some t3 but have no idea where to start. I've had 2 lots of bloods done recently. Repeated because I forgot to leave off my Levo but it's the one I showed the endo and I guess what my levels look like daily so I've included it.
Have also had ultrasound which just showed very small thyroid. I am gluten free and tgo antibodies have reduce from 565 to 129 (<115) and tpo from 80.6 now back in normal range.
I take my levo at night so the first test was about 10 hours after Levo and the second about 34 hours after.
My vitamins were all OK apart from folate which I'm prescribed but rubbish at taking. Have had it daily since.
Vit d 112 (50-200)
Folate 8.49 (2.91-50)
B12 295 (25.1-165) on injections
Ferritin 69.6 (13-150) looks quite low but last iron panel ferritin was 74 and iron slightly raised "healthy high"
34 hours after levo:
Tsh 0.251 (0.27-4.2)
T4 19.5 (12-22)
T3 5.37 (3.1-6.8)
10 hours after Levo and what endo saw:
Tsh 0.352 (0.27-4.2)
T4 25.6 (12-22)
T3 5.31 (3.1-6.8)
Both tests I was on 100mcg Levo daily and my endo increased me to 112.5mcg (100/125)
On 88.5mcg (75/100) my results were:
Tsh 2.52 (0.27-4.2)
T4 14.7 (12-22)
T3 3.78 (3.1-6.8)
I was thinking of going back down to 100mcg and adding in 5mcg t3?