Hi would like some help please with these high antibodies
I had a test on the 17thOct which I posted, the thyroglobulin was then 753 I had both theses test done with mediceck
on the 17th Feb 18 the result was 1.258 I had the first test done as My GP would not do a test until the year was up so had to wait until Dec, even though I had be very unwell and they had been sent for throat cancer test and bladder cancer test which I new was not the problem
When they tested me in Dec 17 they said I was over medicated and reduced me by 25 mg, when I showed her the medicheck result from Oct she said that just confirmed I must be reduced, so I am now taking 100mg
I am going to write out my test result for this Feb as I post my October results so hope they are still available but will try to put the on as well
Feb 18 Oct 10
TSH 0.391 O.081
Free thyroxine 16.6 23
Total T4 97.0
Free T 3 .38 4.33
Thyroglobulin 1.253 753
Thyroid peroxidase 204 195
Active B12 114 127
Folate ser 12.36 5.24
Ferritin 165 226
I have been feeling real awful all over swollen face trouble walking sleeping muscle and joint so so cold I would be so grateful if someone could give me some advice
I know this might most likely be that I have Hashimoto does it really get this bad?? am trying hard to keep to gluten free diet it's easy at home, I do not use gluten free things as they are all so full of sugar and salt.
I have had thyroid problem for many year ,I had a mayor RTA in my twenty first year lost my hair about 18 months after that wore a wig for many year was very unwell with both my children and was not diagnosed until after the birth of my second son he is now 36
It has been a very rocky road burst appendix Diverticultis Fibromyalga prolased bladder and bowel I am now 67 yrs and finding it very hard to cope I have no faith In GPs and have never been sent to an endo , but from what I have read on here they sound no better than the GP and before you say change your doctor I have change doctor in one practise and then move to another practice
Which is just as useless the only good thing this one is close
Sorry for going on so I am rather at the end of my rope
So any help would be very much appreciated I have tried so many things thank you for reading this rather long appeal
I
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Marwari
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Can you edit your post to include the lab ref ranges after your results? The ranges are the figures in brackets after the results. Click on the v down arrow underneath your post and select Edit. Add the ranges and then click on Edit response.
So in October you had these results (copied from that post) when taking 125mcg
All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
Is this how you did the test?
Thyroid stimulating hormone 0.081 miu/L 0.27-4.20
when GP saw this I guess they thought it too low and reduced dose by 25mcg (incorrectly)
Free thyroxine 23 pmoi/L 12.00-22.00
Yes it was very slightly high and above range
total thyroxine (T4) 120.0 pm0i/L 59.00-154.0
In range and not too high
Free T3 4.33 pmoi/L 3.10- 6.80
This is too low. Like many with Hashimoto's you are poor converter.
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne at
tukadmin@thyroiduk.org
Also request list of recommended thyroid specialists, some are T3 friendly
Professor Toft recent article saying, T3 may be necessary for many, otherwise we need high FT4 and suppressed TSH in order to get FT3 high enough
Suggest you try strictly gluten free diet and perhaps increase in Levo back to 125mcg or to 100/125 alternate days
If FT3 remains low then, like many with Hashimoto's, you may need the addition of small dose of T3. So look at seeing T3 friendly endo (or self medicate)
So I should go back on Vit D , yes I am now gluten free have only been for a month also Izabella Wenzhou book which is why I went gluten free , I am a rather a yeasty type so I find all the sugar in the gluten free sets me off and with the Diverticultis I am finding getting enough fibre hard I do used golden crack linseed and grind up pumpkin seed and if my yeast will let me I eat Brazil nuts and walnuts
Would it be good to get B vit in a liquid form
I do not drink alcohol or coffee I have lots of different herb tea so hope that is ok
I did 24hrs and early in the morning I did have anew vit D test which said normal I will need to look it up I also had a an adrenal test I will try to and the date taken post them I used a vitD spray but after it cam back ok I stopped
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