Of course, doctor says 'normal but i feel so weak my muscles ache and go numb , I know it may be nothing to do with my levels but i feel my t3 is to low I talk 125 levo daily. My doctor talks about functional illness ( anxiety ( I am lost my vit b12 is 465 which they claim is 'normal , they won't do an antibodies test because i had RAI a year ago and apparently 'they will burn out ' also my doctor told me I wont have Graves anymore because I had RAI .. can someone help me ,, I feel dreadful and lost
Written by
wendypartridge
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I believe that Graves antibodies or TSI do not vanish as a result of RAI or thyroidectomy. Whereas, with Hashimotos once there is no remaining thyroid the antibodies will not remain and will become undetectable.
Have you had other vitamins tested, vit D, folate, ferritin. Vitamin B12 is best top of range and above 500 to ensure sufficiency. You could take a good B complex with the methylated forms of B's to raise levels. Also take 1000mg of vit C daily. You could Google vitamin E to see if it might help you to have a short term boost.
So nice to see another doctor more concerned with his drug budget rather than his patient's wellbeing
There is scope for T4 to be higher in range and that will raise T3 too. Some patients need T4 over range to make enough T3. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email dionne.fulcher@thyroiduk.org if you would like a copy of the Pulse article to show your GP.
Alternatively, buy your own T3 and add a little to your current dose. A quarter of a 25mcg tablet (6.25mcg) T3 would be a good starting dose. If you want sources write a post asking members to message you where you can buy T3 without prescription.
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne: at
tukadmin@thyroiduk.org
Professor Toft recent article saying, T3 may be necessary for many. Not especially his comments on current inadequate treatment following RAI or thyroidectomy.
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