Hi I have just had my blood test a year after my doctor reduced my thyroxine from 100 to 75, before joining this surgery two years ago I had been on 150 thyroxine for years after RAI treatment, these are my results
TSH 5.68
Free T4 10.5
Free T3 4.5
The doctor has increased my thyroxine back to 100 after questioning me as to if I take my thyroxine every day and if I'm taking the 75 dose he prescribed.... YES
I am to have another blood test in 8 weeks, I do feel really awful ☹️
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Thelindyloo
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Are you having any pains? I was similar to your results and they checked vitamin d levels which I hadcsevere deficiency of....a few days into taking fultium d the pains were gone and I had more energy and felt brighter. I forget to take sometimes for a few days and it all comes back again. I think it's important to keep up meds and take at the right time. I know with the thyroid meds some foods effect how well they work. A lot of meds it doesn't matter too much with but levothyroxine it does...may be worth being referred to a nutritionist or going for a private test. Hope you get to the bottom of it and find the right cure for you. Xx
Thelindyloo No wonder you feel awful, those results show that you are very undermedicated. You will probably need more than one increase in dose.
Did you feel OK on 150mcg, with FT4 and FT3 in range? If so there was never any need to reduce your dose.
When having thyroid tests always book the earliest appointment of the morning, fast overnight (you can have water) and leave off Levo for 24 hours. This ensures the highest possible TSH which is needed when looking for an increase in dose or to avoid a reduction.
Thank you for that tip this new doctor just wants to reduce my thyroxine all the time he wanted to reduce it before my blood test as he was sure I was over medicated thankfully he waited. My specialist put me on 150 dose and said I was o be left on that for the rest of my life as the dose of RAI I was given was far to high but the specialist that treated me had retired just after my treatment. When I explained this to my new doctor he rolled his eyes and said rubbish it's up to me to alter your medication as I see fit, and he seems to be on a mission to reduce it ever since.
When I was left on 150 I did feel better than I do now.
He is not taking your best interests into consideration and you are obviously undermedicated. A TSH of over 5.0? No wonder you feel bad. Please find another doctor. I have heard (perhaps oddly) that chiropractors are now getting involved in thyroid treatment and perhaps can also prescribe? At least in the US this is true (due to them seeing so many patients who are hypo, overweight, aches and pains etc....)
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