I was diagnosed Hypo in January 2015. Put on Levo 50. At the time I could barely walk as my legs/knees were so painful, I was constantly unwell and fatigued beyond just tiredness. I had been deteriorating alarmingly and significantly for about 2-3 yrs previous to the Thyroid diagnosis. Quick past history includes father died young (55) due to Wegeners Granularmatosis, Mother also died young due to COPD (she had thyroid issue just prior to death at age 55).
I started having sight problems in 1998 -diagnosed as Uveitis. Still active and treated for this condition which is now bilateral and complex. I have had bowel issues for a very long time - tentatively told by GP that I probably had IBS many years ago.
Fast forward to now - 2018. I had to give up work altogether in January 2017 as I was just getting sicker and sicker and , working 7 day a week sometimes 14/16 hours a day. Employers really engineered my leaving. I had to retire medically aged 55.
Throughout 2017 I felt very unwell and absolutely beyond tired. Depression has been a factor lately along with the most alarming panic attacks. I put that down to having to stop work and worrying about the financial future.
My eye consultant sent me for rheumatology appointment at hospital in May 2017 because my mobility was worsening and legs so painful that I could not get about. He also planned to put me on a programme of biological agents (Interferon) to try to halt my sight loss so needed Rheum workup before that course cold be taken. Rheumatologist was thorough. He said I had arthritis but not rheumatoid arthritis. Of most note however was the fact that he had looked at my medical history in some detail along with test results. He sent me a copy of the letter he sent to the GP in July 2017 where he stated that a blood test I had in September 2016 had shown very low B12 and similarly low Vit D- which required urgent treatment. I had the 2 week B12 injections and put on vit d tablets, high dose for 2 weeks then a low dose thereafter. Also on Folic acid 5mg dail.
July 9th I ended up in casualty with an increased heart rate of 210 for 9 hours. Resolved with injection of special medication that brings heart rate down. Inpatient in Cardiac unit being monitored for 4 days. Discharged with statins. Cholesterol was high. Thought to be an electrical issue rather than heart block etc. No follow up.
*At point of thyroid diagnosis in 2015 GP told me that my heart had become enlarged since a previous x ray two years earlier. He referred me to cardiac dept but they refused to see me.
November 2017 had blood tests at GP surgery. Had to wait a whole month for a phone consult to get results of test. Result of Thyroid was poor. GP increased my Levo to 75 that night. I asked for B12 and Vit D to be tested at same time. They were not.
In the meantime my statins were the cause of a hugely swollen tongue and I asked for my dose to be reduced- it was halved. GP suggested a second blood test which I had done on 7/12. Conversation with GP on 11/12 Thyroid and multiple other readings were off. I asked her what they tested for Thyroid, she said only TSH. I asked for Free T3 and Free T4 to be tested. She said hey were not allowed to test these! Not unless an Endo agreed them!! I am not under an Endo but perhaps I should be ?
Bloods done again 12/12. No phone consult available for results until 29/12. I missed that call as it came hours later than planned.
repeated bloods again on 24/1/18 after Levo increased dose for a month. Phone consult results on 31/1/18. No B12 or Vit D tested. Last 2 tests Monocytes albumen, Protein, Kidney function,CRP, Thyroid all off on both tests.
TSH now 6.3 so increased Levo to 100 from tomorrow.
Everything I read leads me to Hashimotos. I seem to be a likely candidate given history and presenting factors. To get a correct diagnosis and correct treatment surely my Free T3 and T4 levels need measuring? If GP is refusing to test these how the hell do I get them tested?
I don't go out for days/weeks on end as I can't cope with walking a short distance before getting into problems. I have severe asthma, COPD and severe OSA all diagnosed last year. Attached to a CPAP at night as an absolute necessity. I have put on about 3 stone in 2 years. I have constant tinnutus now and it drives me mad!
Also recently diagnosed with Veinous insufficiency in my legs with lipodermal sclerosis - seeing consultant tomorrow for action plan (If any). He doesn't quite believe that I am not just a fat, lazy bloater - negating my attempt to explain my meteoric weight gain. So I fully expect him to tell me that being fat causes the problem and shuffle off and lose 10 stone!
I feel like I am finished at 55 (same age as both parents died)
sorry its so long. I couldn't stop once started.