Hi. I’ve been hypothyroid for about 4 years. Over time I’ve developed a reaction to every thyroid medication there is. They give me various neuropathic or nerve side effects around my face and head. I developed the side effects slowly over time, and they’re becoming more and more pronounced to the point I can barely take the medications anymore. Fortunately my baseline without medication is only slightly hypothyroid, but it’s enough that I experience some side effects (a little wooziness and fatigue).
I’ve tried all the different hormones in various forms — Levothyroxine (tirosint, compounded), porcine hormone (naturetheoid, Armour, Armour compounded) and bovine hormone (thyrogold, thyrovanz).
I also take all the supplements typically recommended, like iodine, iron, selenium, zinc, b vitamins, d etc.
I’m not sure how to proceed with this problem. I can’t find anyone on the internet who’s had similar side effects, or a solution to this central issue: what do hypothyroid people do who can’t tolerate hormone treatment?
I know thyroid hormones are generally well tolerated, but there is a subset of people who can’t tolerate at least some of them. Thyroid hormones are some of the most commonly prescribed medications, so I’m assuming there might be other out there like me.
Is there some other form to get the hormone into our bodies? Or maybe a magic way to lower tsh levels? I’ve read that our ancestors ate animal thyroid organs to treat hypothyroidism. Sounds crazy, but maybe it would work. I have no idea.
Anyone have any suggestions?? My hypothyroid symptoms aren’t so bad, I’m able to function and live a normal life, but it doesn’t feel great. This board seems very active and helpful with nice folks. Thought I’d reach out and ask. Thanks!