Thyroid UK
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Feedback from first endo visit and a plea for help

Hi all, went for my first endo visit couple of weeks ago. Showed him my six hundred pound private bloods. He only wanted to look at thyroid panel not vit panel. Then just drew me a little picture like I was a six year old at primary school. Slipped in very quietl that only levothyroxine is treatment available. I challenged him on it saying I had been following what is happening quoted nhs endgland thing but he just stared at me with dead eyes and shrugged. Told him I would challenge Surrey CCG and he just shrugged again and stared at me with dead eyes.

He did agree to test my adrenals and sex hormones. He put up my levothyroxine by 25 to 125mg. I have been on treatment for a year and o 100mg for at least 4 months. Go back to him beginning feb.

I have gained such a massive amount of weight,an initial 21 pounds from being severely depressed and on sertraline. But this past year a further 35 pounds due I am assuming hypothyroidism, my numbers before treatment were not that out - see previous posts. They were out enough to merit treatment but not that much. I have had a stomach disorder for 16 months now. Nausea, epigastric pain, awful flactulence both end. I have has ibs for 20 years but this is stomach. My guess is its functional, ie the brain is misfiring and telling the stomach it hurts but no structural reason can be found or signs of erosion. I was vomiting fresh blood 3 month ago - only once 6 violent heaves. GPS and I believe it was a reaction to diclofenic suppository which were prescribe for one of my other health issues.

My depression begun to get very severe before Christmas and culminated in me cutting my wrists with a razor blade on two occasions. Since coming off zolpidem I havnnt done that again, Now on Trazodone for sleep which is not addictive like te z drugs.

So to sum it up I am now 14 stone, where as 3 years ago I was 10stone 4lbs. I cannot bear being so big and levothyroxine has not made a blind bit of difference, my chronic depression is intermittently becoming so severe it is threatening my life. And I still have bouts of fatigue which creep up behind me and bash me over the back of the head. I cannot predict when I might get a reasonable day and when I am going to have a day in bed. I’m not going out or doing anything. Just sleeping and watching tv and talking to my cat Millie.

I brought some t3 a while ago but decided not to take it till I’d given levothyroxine a good crack of the whip. It’s a Greek job 25ug tablets. I am not altogether happy about self medicating, however, I am now desperate and passed caring. I thought tonight, if I had a heart attack and died, at least they would be able to get me in my coffin.Could anyone have any ideas about dosing and weather to take my levothyroxine down a bit first, maybe to 100 and t3 begin with half a pill.

Bye the way, I read something the other night about vit c deficientcy and how devastating a severe lack of it can be. Because of my limited appetite I have become a fussy and awkward eater and due also to depression I have stopped eating veg and dont eat that much fruit. I have been taking pro col green magic in the belief that it may keep me going. But I am not so sure it has given me what I need. I keep thinking, I must start eating veg again and have a bit more fruit, but I struggle to eat anything other than porridge, yoghurt, the occasional Tesco’s finest meal, M&S smoked haddock fish cakes. My diet is appalling. I try to talk to the GP about my appetite, but they just look at me through glazed eyes and waffle something like, try to eat more fruit and veg. So I’ve got some high strength vit c plus zinc. I’m on vit D as I was deficient. I tried to find vit c plus zine and selenium but couldn’t find any. And also, is it correct that you should avoid iodine supplement when hypo and on levothyroxine.

I’m normally not one to be overly dramatic but I feel like I’m on the edge of life and at great risk, particularly with my deppresive illness. I cannot bear to live in a body that is so fat and unfit. I feel so ashamed. I have two very elderly parents who need my help and a brother who’s wife is terminally ill with secondary breast cancer on her spine. They have two boys of 12 and 13, they all need my help. But I need some support to get better. Please please help me!

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Please post the results and reference ranges for the blood tests you paid for. We might be able to help you get some benefit from them.

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Here are my results most recent result. I thought I’d posted them but I check back and can’t see anything

TSH 0.338 (0.270 -4.200)

FT3 - 4.3 (3.1 -6.8)

FT4 - 15.48 (12.0-22)

Total T3 - 1.8 (1.3 -3.1)

Total T4 - 107 (59 -154)

Reverse T3 - 21 (10-24)

TSH Receptor Antibodies - <0.4 (0.0- 0.4)

Thyroid Peroxidase Antibodies - Negative <60

Thyroglobuline 66 Iu/ml normal <280

Folate >40 (3.9 -26.8) they say this excess isn’t harmful but it has prompted me to get go to review this supplement.

B12 -655 (197 -771)

Vit D - 80 - (75 - 200 is optimally replete)

Ferritin - 78 (13 -150)

Magnesium 0.86 (0.70 -1.00)

Zinc - 14.57 (11 -24)

Selenium -1.01 (0.89 - 1.65)

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You don't seem to have Hashimoto's Thyroiditis as both of your thyroid Antibodies are negative. It would appear that you have Hypothryoidism.

Standard vitamins & minerals to take are :- vitamin C high dose at least 2,000mg a day. Good quality Multi B Vitamins - however there are 8 x B vitamins; all are vital for neurological health, vitamins B1, B3, B6 & B12 particularly (perhaps you should research all the B vitamins). Vitamin D3 - anyone living in the northern hemisphere is short on vitamin D3. Selenium assists T4 to be converted in the usable thyroid hormone T3. Zinc for immune system. Magnesium - is the antagonist to calcium & western diets are high in calcium; magnesium helps muscles & helps to calm nerves & anxiety. Omega 3 - vital for brain function.

I'm sure there are other vitamins, minerals, amino acids that others take; it gets expensive (& boring) eg. 5-HTP (amino acid), GABA (amino acid).

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An easy way to eat well is to buy a budget electric steamer with 3 tiers. You can do a whole meal in one go and put the rest in the fridge to microwave the next day. If cooking fish put in the bottom section and if you eat rice then you can pour boiling water over the rice and pop into the container in the top of the unit after you've switched the steamer on. It's all done in 20 - 40 mins. You can use the liquid that collects to make a gravy, just boil up in a pan with some gravy granules or additional stock and thicken with cornstarch.

I really do think that good nutrition is the foundation of good health so I think you're right to focus on that as a way to improve things and look after yourself.

If you don't have much apetite then just do small amounts of interesting vegetables. Nuts and seeds make good winter snacks and are healthy, eat just a few each day. You could add 5 prunes to your yoghurt for good bone health and a little manuka honey to boost immune system, banana for potassium and some gluten free grains with nuts for minerals. That makes a healthy yoghurt pot and is soothing to eat. Add other fruit when in season. Use whole fat yoghurt which makes you feel more satisfied. A yoghurt pot makes a good breakfast or lunch. Have an egg or one piece of bacon for breakfast and you will not feel hungry as quickly as when you eat only cereal, do not trim the fat off the bacon as we need a little fat to feel satisfied.

To keep blood sugars steadier, cut out carbs like pasta, white potatoes, noodles, bread and rice. Eat lots of veg instead like carrots, swede, broccoli, cabbage, pumpkin/squash, red peppers, mushrooms, courgettes, parsnip, sweet potato, green beans, peas, kale, spinach or anything in season. You can buy ready cut carrot sticks for snacks if you don't have time to prepare.

Drink 4 plain glasses of water each day. One in the morning with your levothyroxine and one before or with each meal. Cut out other drinks except for tea or coffee (if you drink it) with fully skimmed milk, no sugar. You can drink herbal or geen tea too.

Salads are lovely if you don't feel like eating much - made up of a wide variety of foods like avocado, tomatoes, variety of green leaves, chinese leaves, seeds, grated cheese, fruits like orange, grapes, nuts, halumi cheese lightly fried and placed on a bed of green leaves and sprinkled with olive oil, add, olives, fish, calamari...it's endless...Use good fats like olive oil on salads and other food to make them more satisfying.

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Do not agree about electric steamers ...most of the elements in them are aluminium which causes hell in the body ...far better to eat majority of fresh raw foods like fruit and salads

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We are actually built to eat cooked foods. Our guts have reduced in size and cannot extract all the nutrients we need from raw foods. Also recent research indicates that that aluminium is not harmful.

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"Aluminium not harmful " try telling that nonsense to anyone like me who has been poisoned by the metal

Aluminium is indeed extremely harmful and extremely difficult to re ove from the body too

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Thanks for your response, there were some really good ideas there. I’m going to print them out and put them on my fridge. I’m also going to chuck all the junk food away and start again. Thank so much you are very kind

Hattie xxx

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Good food and exercise is very good for the body but difficult for some people to achieve, try it out and see how it will make you feel better. Also meditation try 15 mins everyday to clear you mind and relax.

Just try it for one month and feel the difference.

You appear to be on the wrong medication you will feel better if you can sort it out but it takes time and patience.

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Be careful with the exercise, if you're hypo. It uses up too many calories, which affects conversion, and uses up too much T3 which you will have difficulty replacing if you don't have enough calories. Just gently walking or swimming until optimally medicated. :)

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Yes I should have said walking my mistake.

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As a thyroid sufferer who has a weight problem, and used to feel quite desperate with my mood fluctuations, I sympathise with you. Don't give up hope. Thyroid problems stuff up our energy, our memories and our executive function, so of course we feel desperate.

Now that you are here you can probably start to take useful steps to get well. I personally take natural dessicated pork thyroid which has a bigger amount of T3 than human thyroid. I don't process T4 properly so I get my T3 from that. It is more stable and safer than straight T3, my doctor says. I am SO lucky that my doctor prescribes this in preference! If he did not prescribe it, I would find another doctor who did by going to compound pharmacies that make it and asking them who prescribes it. Failing that I would order if from overseas in countries like Thailand.

With regard to diet, my diet is very simple: I do not eat any carbohydrates, which means that, unlike the advice above, I do not eat rice, potatoes, corn, bread, or pasta or flour. I also avoid like the plague soy milk, which I used to drink a lot of before. This kind of diet is called the Caveman diet or the Paleo diet sometimes and lots of diabetics now follow it but many doctors and dieticians have not kept up.

The scientific rationale for these diet choices is several-fold.

Firstly, a lot of these things contain GMOs and there is evidence that Monsanto inserted big bacteria particles into the GMOs and that these get into the bloodstream and irritate various organs, including the gut and the thyroid, producing immune disorders. There is a great thriller about this which I found a review of here: candobetter.net/node/4664

Secondly, I can totally control my diabetes if I don't eat any starches and so can my partner. Thirdly, I treat fruit as a bit of a luxury and only eat relatively low-fructose fruit - like strawberries or applies - avoiding tropical fruits - because of what I have learned from films like The Skinny on Obesity by Dr Robert Lustig (on youtube). He is a doctor at U California Childrens Hosp.

I eat most other vegetables and lots of meat, fish, dairy and fat.

I also do a modified fast three days a week - which means that I eat up to 500cals, usually more like 300. But I am 65 yrs old and only 5' tall. I got this idea from the Fast Diet book and website, but I can tell you that the advice to eat anything you like in between fasts didn't work for us! We had to cut the starch out. :-)

In this way I am gradually losing weight. I am rarely if ever hungry and I enjoy the days when I keep the calories right down because I am somewhat eating-obsessed and I can waste time grazing to put off tasks. Also, I am not obliged to frantically exercise. Psychologically I cope with fast days by enjoying the extra time available, not having to cook and by reminding myself that tomorrow I can eat all I want.

My partner, who has hashimotos, follows the same diet, but only fasts twice a week. He is 58 and sylphe-like (but was fat before the diet). I can use cream and cheese in cooking to my heart's content and I find that I no longer suffer from food allergies. I find flour substitute like almond and flax flour or psyllium husks work well in flourless and sugarless cheesecake, which we have with six eggs and 4x250g of full fat cream cheese plus sour cream. Yum.

We also eat pork crackling and just about everything most diets tell you not to eat except for sugar and starch. At first I thought I would not be able to stop eating starch, but then I saw a video on you tube (cannot find it again) where a girl pointed out that you get your blood sugar down during the night, but then you raise it instantly when you bite into that toast or cereal for breakfast, and so begin the cycle of cravings all over again. So I began by just not eating any starch (toast) at breakfast, and I found that I really and truly lost the urge within three days. It worked in the same way with my partner. You will find people who say that it took them weeks and they sweated over it, but it isn't always like that.

This diet largely eliminates fast food, but if you take the batter and bread off fast food, you can still eat chicken, beef, lamb. (But you will find that fast food has very little underneath the wrapping, which is full of sugar or fructose, and that is why you always want more, but it is never enough.)

I hope you find hope here. :-)

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Astridnova I am guessing you are a type 2 diabetic, is that correct?

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That was the original diagnosis, although I throw double figures if I eat sugar, despite the fact that my HB1AC is normal due to not eating sugar. When I say, that was the original diagnosis, they use HB1AC now in preference to glucose tolerance, and given my diet, I would not be diagnosed as diabetic now. Also, my thyroid status affects it.

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Hi, no it’s not but with my weight gain being so massive I don’t think it far away and my mum is type 2. I have recently had bloods which didn’t show signs of pre diabetes. Some small elavations in liver enzymes, this is a bit worrying

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Just to point out the advice above does NOT advocate eating bread, potatoes or pasta, except for sweet potato.

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'with fully skimmed milk' Really? I would have said full fat milk.

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greygoose, full fat milk is better for you but I've found for weight loss it's better to get the full fat from food and keep drinks skinny. The full fat in food is satisfying enough and if you drink a lot of tea and coffee it's adding fats you don't need and more important to get enough fluids.

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Well, I totally disagree, but never mind. Anyway, who says you don't need those extra fats? It's not just a question of feeling satisfied, the body actually needs those fats to be healthy. I don't know that anyone has ever discovered exactly how much fat you need.

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I'm saying that's what I've found helps me. You're entitled to disagree and have a different experience and opinion to offer of course.

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It helps you to have skimmed milk?

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I agree. I’m a firm believer in full fat. I find I do best on a paleo diet. The fat keeps your hunger at bay and helps raise your good cholesterol. I don’t believe fat is the problem - it’s the unnecessary starchy carbs and sugar. If I crave starch, I have a sweet potato.

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Full fat milk unless you try going cow dairy free. I've just done that - almond milk. But we do need cholesterol for brain.

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The four Pillar Plan by Dr Chatterjee is great!

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oh really i did a 7 day challenge meant to help people with thyroid issues, I now feel colder than I did before.

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Well i sure would not waste money on that crap endo where on earth did you get his name from ...sounds like you would be better off on NDT or try some Of the T3 you bought

Cant work out how thyroid tests were £600 either where were they done ?

Post the results and we can all help you

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Hi, don’t know were you are (us I’m guessing) I got the crap endo because I’m in the uk and that’s the way things happen over here in ‘dear old Blighty’.

Thanks for your thoughts

Hattie x

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Hattie194 it may be useful to post on here the area you live (county) and see if there are any groups who meet up regularly for coffee etc, it will be great support for you. If there aren't any, start one up, just ask the question & arrange to meet at a coffee shop. I am in Gloucestershire and we have a group of 5, all met through here, started with 2. Wishing you all the best xx

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Will you let me know when you meet up? I'm in Glos too and would love people to chat to. X

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You are more than welcome, we are meeting next Monday, I will private message you with info x

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That's a good idea for Hattie to pursue.

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Oh that is a good idea thank you I’m Surrey mid near crawley, girly, Dorking Reigate RH5 5BL postcode. I think a group would be really good once I am over this rough period, can’t drive, live in rural spot no bus stops, train stations. But once I’m am ok to drive I’d benefit from that

Thanks Hattie x

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really fed up is in UK .I agree with her that you paid far too much for relevant blood tests .

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Well the decision was mine and the money was spent and I did a hospital blood draw and the company were on thyroid uks website. I will be a bit more circumspect next time but it’s a done deal

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Medichecks have a sale on Thursdays, Blue Horizon has sales from time to time .The basic thyroid tests and vitamins can be often found with a hospital draw for under £150.

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You did the right thing getting your own bloods done. It's hard to know what constitutes good value but you've started to take control of your health. It seems the best way forward for us with thyroid disease.

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You have a low FT3 result so I would think that you require more Levo or why don't you buy your own NDT people on here would help you source it and also help with the correct dose I did and I am now well again, without a thyroid.

I ditched the Doctor and Endo and just rely on the brilliant advice on here.

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I am giving it some serious thought. I did ask for some feedback about options in my post but most of the feedback has been either general support which is alway so welcome or diet advice which is also welcome but rather unachievable at the moment as I am so incapacitated with my depressive illness. Thanks for coming back to me

Hattie x

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Nope i too am in the UK ....thyroiduk has a list of good endos if you got the name from them they will want to know about him

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Thanks, I will look into it but I’m concerned about wether I could afford it. But I will look and see

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The cost of magnesium and organic vitamin C is not high ...you do not need to pay out lots of money ...just follow the protocol as best you can

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I haven’t wasted money he was nhs. The money on bloods is spent now, maybe I need to consider what I spent more carefully next time, but I felt I did need a comprehensive thyroid panel and a vitamin panel because of the malnutrition I have suffered through my very protracted depression. Perhaps I will go for finger prick next time rather than blood draw via Spire. The company was on thyroid uk list

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Please tell thyroiduk the endos name so they can be sure he is not on their list

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It would give me great pleasure, I will definitely do that

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Hi Hattie194,

I get my blood draws done by a nurse at my GP surgery. I just rang, asked to speak to one of the nurses and the nurse agreed to do it for me. Now every time I need it I just make an appointment with her. Try it, you never know if you don't ask.

Got lots of empathy with your situation, mine is very similar. Good luck with your journey to wellness, you will get lots of help and good advice from here.

C x

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Thanks, I will ask. I always understood that they would only test under GP orders but I will give them a bell and enquire. Thanks Hattiex

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They don't do the tests for me just draw the blood for me. I have to then send the bloods off to private labs like everyone else but it saves on paying for a clinic/nurse to draw bloods. I have great difficulty with even the finger prick test, my blood doesn't want to come out of my body. No harm in asking they can always say no.

C x

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Ok I’ll check it out, thanks for that

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hi hattie/ i cant concentrate to read large posts, and i have been very ill with flu so i am also blaming it on that as well, but hattie dont give up- instead o of papering over the cracks be as strong as you can be and know we are here ,

about 8 years ago my body went haywire- my symptoms were so bizarre and off the wall no medical person wanted to listen so i had two choices, do or die-- i am not ready to go anywhwere- so tell yourself you CAN do it..

icant offer you advice as i am still not well enough to concentrate but the food thing can be apain, i have been there- no apeppite- what they dont understand are hormones like ghrehlin and leptin all play a part- i have been watching the weightloss programmes on tv there has been alot and still are- the food

unwrapped, truct me i am a doctor dr mosely- last week explaining just what and how we gain weight, see if you can catch som e of them, what about b12 ? i know yours is in range but sometimes we dont absorb it in th e gut- you may have gut problem ie lack of good gut bacteria, it all sounds like a

minefield, but good fats are needed to make hormones work and also to lose weight, goo d fats not crap fats, and while i was so ill these last 8weeks couldnt eat-- so i mixed up yokebe from boots- it is on the slimming shelf, it is loaded with vits and minerals and because i couldnt eat that was the next best thing for nutrition- it is active food, , so that might help each day with some nutrition for you and then you

may feela bit better to tackle this from the beginning.. on one tv programme - sugar- yes it has a bad name but one team were starved of sugar and did a work out and the other wasnt starved of it- the team that had no sugar 48 hours were exhausted, everything has to be in moderation and balance, i think if we cut out certain things then it is not balanced,but hey i am no expert and need help myself but take one day at a time an dyou will get there. the next thing is it might pay you better to find a functional or metabolic doctor who knows about the endocrine system if you can afford it. we are here fo ryou.

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gosh poor you. are you feeling any better ? I'very read how bad flu can be this year, but 8 weeks !!!

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Thank you so much for your reply, you are. Dry kind. I am so sorry to hear you’ve got struck down by this awful flu that’s been going wrong. I’m not a great be,I ever in drastic dietary measures because like you I think the everything in moderation is the best approach. I am considering going gluten free as it seems to benefit so many people. I will miss Sainsbury’s taste the difference multisseded bread. I don’t eat much but I love an occasional sandwich or a piece of toast and marmite. I’m a little sceptical about cutting out all carbs though. Anyway, I won’t prattle on at you too much as I know what it’s like to have limited concentration and focus. The exhaustion from flu is dreadful and I know this years strain has been particularly vicious. Take care of yourself and hope you get better soon.

Hattie xxx

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Bloody predictive text I mean very kind not dry kind !!!

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I know your antibodies are not especially high but have you tried a gluten free diet and if you can manage without manufactured gluten free foods and substitute other GF carbs that might help your situation. Also what brand of levothyroxine are you on? Have you been on the same brand since starting levo? Some of us react badly to some levo meds because of intolerance/allergy to the fillers. I know the tablets are only small but from personal experience I cannot tolerate TEVA or Mercury Pharma because of acacia and other fillers.

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Do know what, I get a different brand each time, I’m currently on Mercury pharm. yes I am considering gluten free. I was thinking of funding an ultra sound privately, but I need to check what I thought I read which was that ultra sound can detect Hashimoto. I don’t know if it’s actually true, but I know blood test, even repeated may not pick it up. I think gluten free may be worth trying for 6 months. What I most desperately need to do is increase my fruit and vet intake which during my worst times with depression and stomach problems has been zero.

Thanks for coming back I do appreciate it very much

Hattie xxx

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Do try to get the same brand of levo, consistency is important. I get my levo from Boots who always stock Actavis/Almus. I get 100mcg and 50 mcg and split the 50 to give 2 x 25mcg and take the 25mcg half every other day so that my dose averages as 112.5mcg per day, using the same brand all the time

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Your increase in dose may help

But you really need to try strictly gluten free diet as well

Magnesium Zinc and selenium are all on low side

How much vitamin D do you take. Result is not bad, but could be a bit higher

Adding some magnesium - eg calm vitality magnesium powder is cheap and easy to use. Start low dose and build up slowly

Vitamin E with selenium is good for helping conversion

Zinc - either look for vitamin C with zinc or get separate zinc - eg zinc picolante

Retest bloods after 6 weeks on 125mcg

Just TSH, FT4 and FT3

If FT3 remains low then look at adding small dose of T3 (2 x 1/4 tablet am and pm) and retest again after 6 weeks

You need to make sure to keep T3 supply going once you start

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Gosh, what an experience with your endo!

You are already doing lots of the right sort of things and you know what you still need to do.

I think it’s good advice to try and cut back on carbs, I used to be a piles of toast and cereal fan until I discovered low carb high fat eating - long story - but now I make myself a two egg omelette with something like mushrooms or blueberries or if I’ve got any ancient bananas at home - other half eats them - I’ll mash one up and add it to the egg, it makes a kind of pancake, very tasty. That and half a pink grapefruit gives me a good start to the day and it’s really fast to make.

Soup is another good filler, even better if you can make it yourself and you know what’s I need it but Covent Garden soups are my second choice, I have soup with a handful of unsalted nuts - Brazil, almonds, walnuts and sunflower or other seeds.

Evening meal I have met and a couple of veg - I use a microwaveable steamer and try to have different coloured veg and if I have potatoes I only have a small portion of baby new potatoes. I love Mediterranean veg though, if I’m feeling lazy or very short of time I’ll buy preprepared but they’re quick to make if I do them myself and they are multicoloured. I’m afraid I'm a pudding fan 😱 so I get little pots of coconut chocolate from the chiller cabinet or I make up some sugar free jelly and have that or even a nice juicy pear sliced up with a spoonful of extra thick cream - I know it’s not healthy but I’m good otherwise and I’ve got to have some pleasures in life.

I’m taking Vitamin C with zinc dissolving tablets from tesco at the moment - my favourite Redoxon 1000mcg vit c capsules are no longer made :(

I don’t know if you’ve seen this book but it might be worth having a look. It’s by the guy who did the Doctor in the House programme a couple of years ago and the difference he made to peoples’ lives was amazing. If you can catch any YouTubes of his programmes you’ll get an idea of what I mean. You’ve got a lot on your plate at the moment supporting everyone else - some if Rangan’s ideas might help you.

This is a good site if you want to find out about healthy eating diabetes.co.uk as is this dietdoctor.com one of them lets you sign up for a very good free six week online course to keep you on the right track.

Good luck and keep in touch with us on this site. I was desperate - for different reasons to you - when I discovered this site but the support you’ll get on here will lift you. Everyone here has been where you are in one way or another.

amazon.co.uk/Pillar-Plan-Re...

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I loved that programme - Rangan knows his stuff. He reminds me of those old-fashioned GPs (like in Call the Midwife) that had a terrier-like attitude and wouldn't fob off a patient, but really get to the bottom of a problem. Your diet and mine sound quite similar, although I tend to avoid bananas these days. One pudding of choice is baked apple - apparently it contains a lot of inulin and apples are much better for you when cooked - think 'baby apple sauce'.

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Ooh good thinking. I haven’t had a baked apple for ages, I’m needing to go for a walk round the block so I’ll stop off for a couple of cooking apples and do that for tonight, I can load them with cinnamon too. Mmmm thank you.

Rangan is SO amazing isn’t he. Someone needs to clone him and send him out to every surgery nationwide. 😉

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I use cinnamon too and a big knob of butter - just don't forget scoring around the circumference with a sharp knife so they don't explode!

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LOL, even when I score them I can explode them in the microwave. Poor husband, dug out some mixed fruit to put inside them then when I got to the store they had no Bramleys, loads of sweet apples to choose from but none were big enough for greedy me so I left it and I’ll get them elsewhere tomorrow. I’ve never put butter in them, must try that.

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Thanks thats a lot of good practical advise. I’m struggling to respond to all the kind reply’s I got. I’m afraid I’m not well enough to respond to some reply’s, particularly when my post got a bit hyjacked by disagreements. Sorry about spelling mistakes I’m struggling to focus my eyesight especially in the evenigs

Love Hattie who can’t spell

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I'm intrigued by your high folate levels - were you taking folic acid or methyl-folate? Was it part of a B-complex? Unmetabolised folate is linked to genetic issues (the science for this issue is still in its infancy I'm afraid) sometimes with very low serum levels of folate, but can also be a failure to convert synthetic folic acid into methylated folate - so it's like filling a supercar with diesel and just checking that there's some fuel in there.

easy-immune-health.com/mthf...

High homocysteine levels are linked to inflammation and disease - for example, many people with low b12 symptoms, but 'normal' levels of serum b12 use this to see if they should supplement with the methylated forms of B vitamins - the same goes for folate.

Unmetabolised folic acid may (allegedly) prevent you absorbing natural folate - which (ok, I'm just guessing here) may be affecting your appetite for veg?? There was a US cyclist that found she had this issue and got quite ill and then she stopped eating anything with folic acid in it and got better.

Look up 'MTHFR folic acid versus folate' and consider dropping folic acid / folate completely for a while and / or changing your B-complex.. Thorne, Seeking Health, Igennus and Biocare do methylated B supplements (mostly available online).

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So sorry to hear that you are feeling unwell and sad. It can be very difficult to keep seeing doctors who are meant to help but don't actually. Please hang in there and keep asking questions and posting rather than feeling desperate. Please consider trying to get some kind of taking therapy for your depression to help you bear the difficulties and give you a sense of some help out there even if the real problem is a physical one. I found a charity which let me see a councellor (sorry can't spell!) regularly for over a year and it was such a support even though i was still very unwell.

Thinking of you and hoping you find a way forward even in baby steps!

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I was so saddened to hear your post. You really should have been treated better and taken more seriously, However, when I had my first and last apt with my Endo at the hospital I was discharged and also treated like a child with a picture of a butterfly in your throat etc. I looked at him in disbelief and when I started to tell him I had been advised my my ivf clinic he just suggested I was a 'google doctor'. Anyhow, I was put on 25mg starter, which I told my GP to up to 50mg and as I was still feeling rough, I told my GP that the clinic wanted it increased to 75mg and they did that without any question. I have bloods later this week and have been warned that if I'm not pregnant (and I'm not) and my TSH levels are in range they could completely withdraw my Levo altogether.

Please put any blood results on this site. I was advised (by wonderful people on this site) that I have Hashimotos and should go gluten free. I have also been advised vitamins. I must say, after being GF since June I have gone from a size 12, back down to a size 10 which I was before and my stomach etc is feeling so much better. I was told it was ibs for years and I started swelling up like a balloon. I was spending so much money on clothes for work and when you go from a 10, 12 to 14 ... I was feeling lowsy and really quite low and ill myself.

Wishing you all the best. Post all your blood info on this site and poss try GF but be strict about it. I never would have thought it would have made a difference, my depression also lifted a bit but maybe that's down to the levo? Best wishes x

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Hi, thanks for coming back to me. I really sorry to hear you’ve had a rough time to. I’m currently a size 20 having 4 years ago being a size 12/14 which I was quite content with. It’s unbearable, so much so that when I look in a mirror in a clothes shop i cry. I don’t like taking my kaftan off to have a shower because I might have to touch or look at my body. I stopped walking which I’ve done all my life because my joint ache afterward and I sweat so profusely when I walk it’s embarrasing to be seen. When I sat in front of that twat of a doctor I wanted to slap him. I’ve been a nurse in my long career and for quarter of a century a children’s social worker in fostering service. I read huge amounts about food and nutrition, depression, which I’ve had for 20 years, very severely for the last 5. I really just wanted to slap him, he was so patronising and condescending. I’m going to shut up now, sorry, I’ve been in bed all day because of the sedation this new sleep drug Trazodone that they put me on, it’s really wrecking me. So much so that I had to cancel my endoscopy today. Bye the way my levels were posted yesterday, if you can plough you way through all the posts about skimmed milk:-))))) sorry to be snippy guys but I’m pretty desperate, been under suicide watch all week via Home Treatment and I am feeling doped out of my brain on the meds they have me on. I appreciate all the nutritional advice, but at the moment I can’t cook, can’t eat. I’ve gone onto one of those whole nutritional food replacement drinks because I was just drinking tea and living on porridge and yoghurts - sometimes with raspberries on!

Bye bye for now.

Love Hattie

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Hang on in and you’ll eventually start to feel good.

(((( big hugs))))

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Oh Hattie, I really feel for you. No wonder you wanted to 'reach out and slap him'. I've sat there too hearing the same old cr*p and they've been quite patronizing. They seem to forget that we read, are educated and sometimes have more of and understanding of what we're going through and need... simply as we are going through it and would do anything not to be. Hang on in there. Totally understand where you are re: drinking food replacement drinks etc. If you don't feel like eating, don't put yourself through it. I would suggest going GF to see if that makes a difference for you. I was seriously putting on weight. After spending a load of money on work clothes and then quickly finding I couldn't fit in them or find replacements really shook my self esteem and depression. Colleagues were asking if I was 'pregnant' and after having multiple failed ivf which they didn't know about you can imagine my dispair. I nearly had 3 wardrobes of clothes - different sizes and most were becoming inapt for work by being too casual but at least I could fit in them. Hang on in there. Listen to your body... sleep when you need to etc. Give these new meds a chance. If they don't work or you don't get on with them after a bit, ask to get changed. I do believe starting on Levo may help but that's just my non medical opinion. Wishing you all the best x

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Hi Hattie194 I know exactly where you are right now and how you are feeling. I have been on this thyroid forum + mental health forum + Heal my PTSD forum - all healthunlocked. Everyone is very helpful, and you get a whole load of info. I have had severe mental health symptoms for many years; I seem to have sorted out my thyroid but got left with the 'other krap'.

Despite being on a pretty high amount of T4 med, your FreeT3 & Total T3 are low in the range. Your Reverse T3 is high, which shows that your T4 isn't converting adequately. Personally I think it looks to me like you need to add T3.

Your Vitamin D is low - you need to take supplements. Your Ferritin is a bit low. You know your Folate is high.

I have taken what I eat right back to basics now. I was getting absolutely desperate after 35 years of feeling like death; one suicide attempt and decades of feeling suicidal. No grains at all, no sugar at all, no processed foods, read every single label - in fact only eat fresh food, nothing from a packet. Today I cut out all cow dairy to see if it has any beneficial effect.

I have been drinking Bone Broth - getting beef bones from butcher, shoving into saucepan with any chopped up veg (not white potatoes); boil up, allow to simmer for hours & hours; pour off what you want through strainer. I have only today tipped away what I started on Saturday.

Many of us having been watching the series "Broken Brain" by Functional Medicine doctors in USA. I have learnt that the poisons in our guts travel up to the brain; I'm sure I've got that & that's what I'm now trying to cure.

My heart goes out to you; it is the most horrible vile illness. Hugs x

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I second you on broths. They're a doddle to make and you feel so good and nourished. They were all people had in the old days and many got better on broths - full of essential amino acids.

I think it's worth checking homocysteine levels as these are a good diagnostic marker of chronic inflammation. Homocysteine can then be lowered by taking methylated b6 (p-5-p), riboflavin, methylcobalamin and methylfolate.

lifeextension.com/Protocols...

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