Hi I am new I had my T3 stopped last year and my thyroid levels have never stabilised. Dose reduced to compensate. I take 150mcg levo. Diagnosed 2011 and have symptoms of goitre, dry skin, constipation, weight gain. Thankyou
DEC 2017 (150MCG LEVO)
TSH 6.55 (0.2 - 4.2)
FT4 14.8 (12 - 22)
FT3 3.1 (3.1 - 6.8)
TPO ANTIBODY 1600 (<34)
Dose reduced to compensate? It should have been increased. How much were you taking before your T3 was stopped? You are now grossly under-medicated, and need an increase in your dose of levo.
I was taking 175mcg levothyroxine and 2 quarters of T3, thankyou
So, they stopped your T3, and decreased your levo at the same time? They're raving mad!
2 quarters of T3 would be 10 mcg, I imagine. So, if T3 is three times as potent as T4, they should have increased your levo to at least 200 mcg. Not cut it to 150! No wonder you have symptoms. You must insist on returning to 175 now, and increase again after six weeks and a retest.
Brain feels like it can't cope, thoughts going round and round. Feel like I have dementia
Maybe your B12 is low - has it been tested ? - along with Folate - Ferritin - VitD. Perhaps you are already supplementing. 😊 Low B12 can be linked ti dementia like symptoms as well as low T3 ....
Waiting to be given B12 injection since June 2017. Prescribed B12 due to low B12 symptoms
Feb 2017
Vitamin B12 335 (190 - 900)
Dec 2017
Vitamin D 61.1 (50 - 75 suboptimal advise on safe sun exposure and diet) taking 3000iu x2 and 1000iu x1 (7000iu) oral sprays since March 2017
Nov 2017
Ferritin 54 (30 - 400) on 1 iron tablet for iron anaemia since Feb 2017
Nov 2017
Folate 1.9 (2.5 - 19.5) prescribed 5mg folic acid
Thanks
Why are you having to wait so long for a B12 injection ? Have you made an appointment ? You cake a lozenge to be kept until dissolved - Jarrow Methylcobalamin 5000 mcg from Amazon.
I have been asked to wait until there is a free slot available. GP can only offer appointments for me to have it done when I am in work, not outside these times. I explained to her that I have a set time for when I go to work and when I come back so any other time is difficult. Receptionist said sorry that was all she could offer me
So how about the lozengrs I mentioned ?
Your low vitamins are direct result of having T3 stopped
Presumably you have Hashimoto's?
Are you on strictly gluten free diet?
T3 removed, advice on how to fight it
healthunlocked.com/thyroidu...
Why T3 should not be stopped
healthunlocked.com/thyroidu...
Typical posts after T3 stopped showing terrible vitamin levels
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l. In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l. This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne: tukadmin@thyroiduk.org
Also ask for list of recommended thyroid specialists, some are T3 friendly
Prof Toft - article just published now saying T3 is likely essential for many
rcpe.ac.uk/sites/default/fi...
Perhaps consider DIO2 gene test, it has helped some of us persuade them
thyroiduk.org.uk/tuk/testin...
thyroiduk.org.uk/tuk/testin...
Apparently Swale CCG in Kent are offering DIO2 test on NHS and T3 if positive. Also if gut or gluten issues
TPO antibodies 1600 (<34)
This is Hashimotos or Graves?
Hashimoto’s
Restarting t3
T3 needed 
Starting back on T3
Dosing with T3
Restarting T3
