Starting back on T3: Hi I am new I started back... - Thyroid UK

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Starting back on T3

Ceyhan profile image
11 Replies

Hi

I am new I started back on T3 today because I am fed up of feeling so ill and T3 sorted that for me before. I was diagnosed hypothyroid in 2011 and before being put on T3 initially I was on 200mcg levo. Many dose alterations later I went from 50mcg levo to 150mcg levo, then 175mcg levo and now 175mcg levo and I am retaking 10mcg T3, should this be ok?

Thanks

:)

TSH 7.3 (0.2 - 4.2)

Free T4 13.9 (12 - 22)

Free T3 3.0 (3.1 - 6.8)

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Ceyhan profile image
Ceyhan
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11 Replies
SeasideSusie profile image
SeasideSusieRemembering

Ceyhan Post your latest thyroid test results, with reference ranges - TSH, FT4 and FT3 (all done at the same time) - so that people can comment. Impossible to say what would be relevant without seeing results.

Ceyhan profile image
Ceyhan in reply toSeasideSusie

TSH 7.3 (0.2 - 4.2)

Free T4 13.9 (12 - 22)

Free T3 3.0 (3.1 - 6.8)

Done thanks

SeasideSusie profile image
SeasideSusieRemembering in reply toCeyhan

Ceyhan

Your results and your dose changes sound like so very many recent posts where members have come looking for a source of T3. However, what has transpired in all cases is not that T3 is indicated for immediate use but other problems have been highlighted that need addressing first.

To be taking 175mcg Levo at the moment and produce those results, something is very wrong and your Levo doesn't appear to be being absorbed.

Presumably you were prescribed T3 by an endo. Do you have your results from that time, and maybe you can post some results of when the dose changes were made, indicating what dose produced what results and what change was made to the dose. Also, why was T3 stopped?

Going from other similar posts, I would hazard a guess that you have autoimmune thyroiditis aka Hashimotos. Have you had thyroid antibodies tested - both TPO and TG - and were they high?

If you have Hashi's it causes absorption problems (possibly the reason your Levo isn't working properly) and that messes with your nutrient levels so I expect you have either low levels or deficiencies of

Vit D

B12

Folate

Ferritin

Have they been tested? Are you supplementing?

Have you had an iron panel and full blood count to see if you have iron deficiency anaemia?

Taking away T3 can mess with nutrient levels as well so it's important to delve a bit deeper rather than just take T3 right now. If nutrient levels are low then thyroid hormone can't work, it doesn't look like your Levo is working so there's very little chance of T3 working at the moment either.

So if you can give results of those tests we might be able to find some clues.

Ceyhan profile image
Ceyhan in reply toSeasideSusie

I haven't had TPO or TG antibodies tested, or nutrient levels

SeasideSusie profile image
SeasideSusieRemembering in reply toCeyhan

I really think you should have these tested. They are a very important part of the puzzle and could explain a lot.

If your GP wont do them then you can do a home fingerprick test (or venous blood draw) from Medichecks or Blue Horizon to include everything you need

medichecks.com/thyroid-func...

bluehorizonmedicals.co.uk/t...

Ceyhan profile image
Ceyhan in reply toSeasideSusie

TPO antibodies haven't been done recently but in 2013 they were 860 (<34)

SeasideSusie profile image
SeasideSusieRemembering in reply toCeyhan

Ah, now we're getting somewhere Ceyhan

Once antibodies are confirmed positive, that's it. You have autoimmune thyroiditis aka Hashimoto's. You don't need them testing again, you have your confirmation right there.

Hashi's is where antibodies attack the thyroid and gradually destroy it. The antibody attacks cause fluctuations in symptoms and test results.

Doctors attach little to no importance to antibodies and don't seem to understand what Hashi's can do, so you will need to read, learn and educate yourself about it.

You can help reduce the antibodies by adopting a strict gluten free diet which has helped many members here. Gluten contains gliadin (a protein) which is thought to trigger autoimmune attacks so eliminating gluten can help reduce these attacks. You don't need to be gluten sensitive or have Coeliac disease for a gluten free diet to help.

Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies, as can keeping TSH suppressed.

Gluten/thyroid connection: chriskresser.com/the-gluten...

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

hypothyroidmom.com/hashimot...

thyroiduk.org.uk/tuk/about_...

So your Hashi's will be playing a major part in what's going on. It will most likely have caused absorption problems and I expect your nutrient levels will show this by being low or deficient.

If nutrient levels are low, thyroid hormone can't work. Plus the fact that T3 was removed will mess with your nutrients anyway. So you definitely now need to get your vitamins and minerals tested as listed above.

Also, to address the absorption problem that Hashi's brings, and that you are likely to have, check out SlowDragon's reply to this post healthunlocked.com/thyroidu...

Ceyhan profile image
Ceyhan in reply toSeasideSusie

Results from when I was taking 75mcg levo and 10mcg T3 below

TSH <0.02 (0.2 - 4.2)

Free T4 20.6 (12 - 22)

Free T3 5.6 (3.1 - 6.8)

TSH <0.02 (0.2 - 4.2)

Free T4 20.3 (12 - 22)

Free T3 5.2 (3.1 - 6.8)

SeasideSusie profile image
SeasideSusieRemembering in reply toCeyhan

They look good. How did you feel?

Why was T3 removed?

Ceyhan profile image
Ceyhan in reply toSeasideSusie

I still didn't feel that well and T3 was removed because of suppressed TSH

SeasideSusie profile image
SeasideSusieRemembering in reply toCeyhan

There was no need to remove T3 due to suppressed TSH. Any endo that prescribes T3 ought to know what it does, and it actually tends to lower TSH and often suppresses it!

There was room to have increased your T3 a bit to get it higher in range, which might have helped, but a lot of people would feel good with those results. The fact that you didn't makes me feel that there is something else going on so those other tests will be very useful.

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