Hi I have been taking levothyroxine for around 20 years. A few years ago the endocrinologist added in T3 which seemed to help with energy levels etc. My GP will no longer prescribe T3 due to cost and I feel worse than ever - exhausted, cold etc.
My GP suggested I could source my own T3 so I'd be interested to know if anyone has a recommended supplier.
My latest test results below in case useful (they won't test for T3 anymore).
Serum free T4 level 14.7 pmol/L [12.0 - 22.0]
Serum TSH level 2.13 mu/L [0.27 - 4.2]
Serum vitamin B12 level 402 ng/L [197.0 - 771.0]
Serum folate level 11.2 ug/L [3.9 - 25.0]
Serum total protein level 64 g/L [66.0 - 87.0] Below low reference limit
Serum total 25-hydroxy vitamin D level 58 nmol/L [50.0 - 120.0]
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Prof Toft -past president of the British Thyroid Association and leading endocrinologist - article just published now saying T3 is likely essential for many
VitD is insufficient. 100-150 nmol/L is optimal. I would supplement 5,000iu D3 daily x 6 weeks then reduce to 5,000iu alternate days and retest in Mar/April. VitD should be taken 4 hours away from Levothyroxine and T3.
I would write to your GP (cc your MP) and tell your GP that the CCG does not have the authority to tell GPs what not to prescribe and you believe your GP is in breach of GMS contract by with-drawing treatment you have been told you need. Say you have been well on Liothyronine and wish to continue taking it. Attach the BTA guidance for patients and GPs.
The BTA issued guidance that patients doing well on T3 should not have their prescriptions with-drawn. See FAQS for patients and GPs in british-thyroid-association...
CCGs do not have the authority to tell GPs what not to prescribe. Individual GPs, not CCGs, could be found in breach of the General Medical Services contract if they do not prescribe treatment patients have been told "they need".
The GPC has warned that GPs would be in breach of the GMS contract and could get into legal trouble by following the orders and refusing to prescribe patients treatments they have told them they need.
CCGs are expected to do impact consultations with the public and stakeholders before implementing change. Failure to do so leaves them open to legal challenge so check whether your CCG did an impact consultation before advising your GP to withdraw T3.
Thyroid UK are collecting evidence of malpractice due to removing clinically needed T3
Please consider sending a brief outline of this. How T3 improved you and the subsequent disaster since it was stopped. I would include the dire vitamin levels
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