Really need help now guys .....: Hi ya so i... - Thyroid UK

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Really need help now guys .....

Cassie101 profile image
25 Replies

Hi ya so i asked my doctor to re test my throyd and they refused to do t3......

TSH 1.2 mu/l 0.27-4.20 mu/l

Free t4 14.2 pmol/l 10.50-24.50pmol/l

Vit b12 536 ng/l 197.00-771.00ng/l

Folate 8.6 ug/l 3.80 - 9999.00ug/l

Ferritin 23 ug/l 13.00-150.00ug/l

Really need help now feel so ill i have a goitre and was on levo bt felt ill they took me off said i dont need it i dont no wht 2 do relly need help appreciate any1nz advice

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Cassie101
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Clutter profile image
Clutter

Cassie101,

How long were you taking Levothyroxine and what dose was it? NHS doesn't usually diagnose hypothyroidism until TSH is >4.20 or FT4 is <10.50.

FT3 is rarely tested in primary care now. TSH 1.2 and FT4 14.2 are euthyroid (normal) although FT4 is low in range. You can supplement 200mcg selenium daily to help support thyroid.

B12 536 is unlikely to be deficient.

Folate 8.6 is within range so not deficient.

Ferritin is low. Ask your GP to check full blood count to rule out iron deficiency anaemia.

Cassie101 profile image
Cassie101 in reply toClutter

I was on 50 levo after having my baby for bout 6 months then things started going wrong and i was feeling really ill..... i still feel ill now bt when i was on levo it didnt agree with me.... so wht should i do im so worried coz ov having 3 kids on my own there all very small and im only 28 x

Clutter profile image
Clutter in reply toCassie101

Cassie101,

Sounds like you had post-partum thyroiditis which has now resolved. Your results above don't indicate a need for Levothyroxine.

Ask your GP receptionist whether thyroid antibodies were tested and the results and ranges if they were.

Cassie101 profile image
Cassie101 in reply toClutter

They have done a full blood count do u want them figers?

Clutter profile image
Clutter in reply toCassie101

Cassie101.

Yes.

Cassie101 profile image
Cassie101 in reply toClutter

My latest full blood count was on oct 13th

Haemoglobin 125 g/l 120.00-150.00g/l

Total whitecell count 4.3 10*9/l 4.00- 10.0010*9/l

Platelet count 190 10*9/l 150.00-410.0010*9/l

Haematocrit 0.36 l/l 0.36-046l/l

Red blood cell 4.32 10*12/l 3.80-4.8010*12/l

Is there anymre you need?

Cassie101 profile image
Cassie101 in reply toCassie101

Vit d was done in jun 7 and was 54 nmol/l thats all they gave me my doctors are so tight i ask them 2 do tests always a no

Clutter profile image
Clutter in reply toCassie101

Cassie101,

VitD 54 is suboptimal but unlikely to make you feel very ill. Optimal is 100-150. I would supplement 10,000iu D3 softgel capsules daily for 4 weeks then reduce to 5,000iu alternate days and retest in Mar/April.

If you buy on Amazon please use the affiliate link healthunlocked.com/thyroidu...

Cassie101 profile image
Cassie101 in reply toClutter

What is d3?? Im so new 2 all this i dont really understand

Clutter profile image
Clutter in reply toCassie101

Cassie101,

Vitamin D3 to replace low vitamin D level.

Clutter profile image
Clutter in reply toCassie101

Cassie101,

Do you have MCH and MCV results and ranges from full blood count?

Everything above is within range.

Cassie101 profile image
Cassie101 in reply toClutter

Yes ....

Mcv 84 fl 83.00-101.00fl

Mch 28.9 pg 25.00-33.00pg

Am i going to hv this goiter for life then?

Cassie101 profile image
Cassie101 in reply toClutter

Are they ok ?? And what other supplements should i take ? Jst want to feel better ☹

Clutter profile image
Clutter in reply toCassie101

Cassie101,

Yes, they're fine. You are not iron deficient but ferritin is low and you can raise it by supplementing 1 x 210mg Ferrous Fumarate iron tablet to be taken with 1,000mg vitamin C to aid absorption and minimise constipation.

If Levothyroxine didn't shrink the goitre then you are stuck with it unless it interferes with your breathing and swallowing in which case surgery will be required to remove it.

Cassie101 profile image
Cassie101 in reply toClutter

Thank you so much really appreciate it hopefully start feeling better soon x

Clutter profile image
Clutter in reply toCassie101

Cassie101,

It is likely to take 6-8 weeks for vitD and ferritin levels to improve after you start supplementing.

I remind you to ask your GP receptionist whether thyroid antibodies were tested and to post the results and ranges in a new question.

SlowDragon profile image
SlowDragonAdministrator

Your ferritin is very low. Ask GP for full iron panel

You will need ferrous fumerate supplements. If you like liver eating once a week will help improve levels too

What about vitamin D. Have you been tested? If not get GP to do. Or private test at vitamindtest.org.uk £28

Essential to test FT3 and both thyroid antibodies

Private tests are available

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results

Link about antibodies

thyroiduk.org.uk/tuk/about_...

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Print this list of symptoms off, tick all that apply and take to GP

thyroiduk.org/tuk/about_the...

greygoose profile image
greygoose

How long ago was the levo stopped? And, when were those labs done?

Cassie101 profile image
Cassie101 in reply togreygoose

They stopped levo in auguest and the thyroid test was done in dec and the full blood count was done in oct

Cassie101 profile image
Cassie101 in reply toCassie101

Vit d was done in jun

greygoose profile image
greygoose in reply toCassie101

OK, so it's possible that the thyroid hasn't yet had time to get back to full strength, if it was post partem thyroiditis you had. In any case, I cannot see any doctor re-prescribing levo on the basis of those results. But, don't drop it. Get regular tests and keep an eye on it. Have you had your antibodies tested?

Cassie101 profile image
Cassie101 in reply togreygoose

Na should i ask for tgem to be done ? Would that make a difference if they was high? Do u think the way im feeling is because of low ferrin?

greygoose profile image
greygoose in reply toCassie101

Low ferritin certainly won't help! It will make you very tired.

If your antibodies were high, it would make a difference to you, yes, although your doctor would just dismiss them.

If you have high antibodies, it means that you have autoimmune thyroiditis - aka Hashi's. I won't go into all the details now, but it does mean that sometimes your thyroid hormone levels can be high, sometimes low, and sometimes in the middle - euthyroid. Therefore, if you know you have them, you know to expect fluctuating thyroid hormone levels and that therefore, you must keep an eye on your levels.

There is no cure for Hashi's, but you can help yourself by going on a 100% gluten-free diet, and taking selenium. So, for you, it's worth knowing if your antibody levels are high.

Cassie101 profile image
Cassie101 in reply togreygoose

Ok im going to get thrm done this week... thank you ill post the results

greygoose profile image
greygoose in reply toCassie101

OK You're welcome. :)

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