I posted a few months ago about my 13 year old son and got some great support and help from this site and it's members . After much testing we have been through the mill chasing an answer and I would value any opinions.
Our endo has done lots of testing but has left us confused and I have had to chase him up.
My son had his appendix out in Dec 2016 and gradually became more fatigued and unwell over the past 6 months ( lots of hypo symptoms- extreme fatigue, hair loss, overheating, dry skin, poor appetite...etc). Had a terrible time with no school support while he has been unable to attend and although we are starting half days at school and having home tutors he remains fatigued and can sleep 3- 4 days normally for 12 hours then his sleep/wake cycle shifts and he can be up all night or for 24-36 hours before he ultimately crashes.
Results so far
ferritin 23 (30-400) - on ferrous fumerate
TSH 2.86 (2.7 - 4.2)
Free T4 11.78 (12-22)
Vit D 19.1 (<25 severe)
Mono screening neg
Started on 10,000 units vit d for 8 weeks.
Thyroid scan - 'multiple tiny peripheral cystic nodules on both lobes which may be an early feature of modular thyroid disease'
TSH 3.75 (0.27 -4.2)
Free T4 14.46 (12-22)
Free T3 6.9 (3.1 -6.8)
Ferritin 48.2 (30-400)
Thyroid receptor antibodies <0.4 (0-0.4)
He is on no medication.
My questions are
Can T4 improve itself ( it was taken at the same time of day)?
Is his TSH too high?
Why is his T3 too high?
He is thankfully much better but still not himself. Endo did not encourage any supplements except maintenance vit d at 400 units a day and has referred to neurologist for sleep problems but doesn't feel that he has any endocrine problems!
Would value any thoughts and advice..thanks!