Newbie: Hi GP has referred me to a counsellor... - Thyroid UK

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Pink_Sapphire profile image
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Hi GP has referred me to a counsellor despite me having thyroid symptoms and he says I am on enough thyroid meds. I was diagnosed in 2011 and take 125mcg thyroxine thank you

TSH 4.6 (0.2 - 4.2)

Free T4 15.3 (12 - 22)

Free T3 3.9 (3.1 - 6.8)

Ferritin 22 (30 - 400)

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Pink_Sapphire
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bluebug profile image
bluebug

You TSH result is above the lab range and your ferritin level is below it. Did you ask the GP politely but firmly "why do they bother having the lab ranges if s/he is going to ignore it?"

I suggest you take a copy of your test results to the counsellor if you bother to see them and point this out. You want the counsellor to discharge you as having a physical issue.

Next I would change GP practices. You can change GP without giving a reason. If you don't want to do that make an urgent on the day appointment with another GP in the practice and point out your results are out of range. Ask for a full blood count to confirm whether you have iron deficiency anaemia and ask to be referred to an endo.

If you have time before you see the GP ask email louise.roberts@thyroidorg.org.uk for a copy of the pulse article which gives guidelines on where your thyroid hormones should be to be optimal.

Pink_Sapphire profile image
Pink_Sapphire in reply tobluebug

Thanks I have results saying MCV below range and MCHC above range

Your GP has clearly failed to notice that your TSH is outside the range, can you see another GP?

Pink_Sapphire profile image
Pink_Sapphire in reply to

Thank you I can try and see a different one

bluebug profile image
bluebug

I should have stated that your ferritin level is basically your iron stores in your body. If your level is too low then you are likely to have iron deficiency anaemia. Even if you don't have it you will feel terrible e.g. breathless, unable to do any exercise, fatigued, dizzy, light-headed. If your ferritin level gets too low you can collapse and will have to be treated as an emergency in A&E.

So if you get to the point where you feel extremely dizzy or funny then get someone - neighbour, colleague whoever - to drive you to A&E and let them treat you.

Oh and without adequate iron then your levo has absolutely no chance of working.

Anthea55 profile image
Anthea55

Welcome to the forum.

Your TSH is still too high. Your Free T3 is bottom of the range, so you will still be tired. It should be in the top third/quarter of the range.

Have you had tests for antibodies? these show if you have Hashi's which is an autoimmune condition. If you have, then going gluten free helps.

Have you had tests for other vitamins & minerals? these need to be well in range for your thyroid meds to work properly.

If you haven't already done so, do look at the Thyroid UK website. Plenty of useful info there.

This page has a list of signs and symptoms which you can print and take to your doctor / counsellor.

thyroiduk.org/tuk/about_the...

Your GP doesn't know much about thyroid problems. I wonder how many other patients he has kept undermedicated.

All the best.

Pink_Sapphire profile image
Pink_Sapphire in reply toAnthea55

Thanks I have antibodies but haven't been told anything

TPO antibody 365 (<34)

TG antibody 295.3 (<115)

Pink_Sapphire profile image
Pink_Sapphire in reply toAnthea55

Also vitamin D and B12? Been told not to worry about below range folate and taking 20mcg d3

Folate 3.8 (4.6 - 18.7)

Vitamin B12 215 (190 - 900)

Hydroxy vitamin D 32.8

(<25 severe deficiency

25 - 50 deficiency

50 - 75 suboptimal

>75 adequate)

bluebug profile image
bluebug in reply toPink_Sapphire

Please get yourself to another GP asap. This one wants to make you seriously ill. While the NHS is not the best on nutrition they do use the lab ranges to ensure they don't kill people.

You have iron deficiency anaemia, a folate deficiency and a low vitamin B12 level which could lead to pernicious anaemia and a vitamin D deficiency.

To add to that you have Hashimotos - autoimmune thyroid disease..

Once you have seen the new GP on Monday or Tuesday hopefully start a new thread with what this individual has advised. You will then get detailed advice from other members.

bluebug profile image
bluebug

Forgot to say it is common for useless medical practitioners to imply the issue is the patient's mental health when they don't have a clue on what they are doing.

The only thing destroying your mental health is your current GP's inadequate treatment of you.

If you do unfortunately see that idiot GP again tell him/her you have joined a thyroid support group recommended by NHS Choices and you want to have as a start your TSH, iron, vitamin D and folate levels treated to be in range as a start. If the GP is unable to do that then they need to refer you to an endocrinologist.

And as I stated before if you do feel dizzy or funny DO NOT hesitate to get someone to take you to A&E as the GP practice gets charged if the symptoms and signs were there before.

silverfox7 profile image
silverfox7

I was going to say unbelievable! But sadly it isn't! I'm back to wishing that a doctor could feel what it's like to be badly treated with this disease. I would never wish anything on anyone else but if only you could do it long enough for them to say-I must do (and learn) something to help these people

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