Endo continued T3 even though TSH undetectable.... - Thyroid UK

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Endo continued T3 even though TSH undetectable. Results 4-6 hrs after meds to check highest T3 level. ordered tabs online only 6 tabs left!

Helsan profile image
9 Replies

Hi all I posted a while ago asking why endo would ask for bloods 4-6 hours after T3. I then had tests taken privately for fasting to compare. They turned out to be very similar. I asked endo why he had specified time. He said he wanted to be sure that T3 was giving me a good level as I have conversion problems and it can show a bit low otherwise as it isn't in the system very long. He says many would now consider me to be overmedicated but as I feel better that Ive been in years that is what matters! What a relief. Main problem now is sourcing the T3 and I am using the online for Thybon. He was happy to prescribe 20mcg tabs for me to cut up as I am on 5mcg x2 daily but these are the dearest tabs. I had asked if he could send a script before my appointment as I was running out of tabs but he said he wanted to wait for appointment (fair enough). I have ordered today and posted the script but am panicked about being a few days without. Hopefully it will all come super fast. Here are my two sets of results. The first 4 and half hours after T3. The second fasting and no meds for 24 hours. I was previously very low for D3 at 37 I had loading dose from GP and am taking maintenance 2000iu plus K2 per day. he didn't reduce my lego do you think it should be reduced now I am on low dose T3? I have lost half a stone in 6 weeks, great skin improved bowel and more energy!!! I am so happy. Grateful for any comments.

Results 4 and half hours after T3

Free T4 22.3 pmol/L (11.0-26.0)

Free T3 5.4 pmol/L (3.9-6.8)

TSH 0.01 uU/mL (0.35-4.50)

25 OH Vit D 82.39 (50->200)

Iron 20 (6.6-26.0)

Iron binding capacity 48 (45-72)

Transferrin saturation 42 %(20-50)

Haemoglobin 121 (115-160)

Red blood cells 4.10 (3.9-5.2)

Haematocrit 0.352 (0.35-0.50)

He did loads more tests but not sure how useful.

These are the medicheck tests (fasting results) I asked for rT3 too but they aren't back yet.

TSH 0.037 (0.27-4.20)

FREE THYROXINE 17.7 pmol/L 12.00 - 22.00

TOTAL THYROXINE(T4) 100.7 nmol/L 59.00 - 154.00

FREE T3 5.49 pmol/L 3.10 - 6.80

THYROGLOBULIN ANTIBODY <10 IU/mL 0.00 - 115.00

THYROID PEROXIDASE ANTIBODIES 11.9 IU/mL 0.00 - 34.00

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Helsan
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9 Replies
Nanaedake profile image
Nanaedake

Sounds like it's all going in the right direction.

Helsan profile image
Helsan in reply to Nanaedake

It is I just wondered if there was room to drop levo a little? I take 100mcg at weekends and 125mcg in week he added in 5mcg T3 twice a day but didn't reduce levo.

Nanaedake profile image
Nanaedake in reply to Helsan

If it were me I would be reluctant so long as I was feeling well as your FT3 and FT4 are in range and not over the top so it all looks good. The TSH does not have to read anything since you are completely replaced so the pituitary gland is not instructing the thyroid to produce anything hence the low TSH which is not a thyroid hormone but a pituitary hormone that sends instructions to the thyroid if that makes sense?

Helsan profile image
Helsan in reply to Nanaedake

That's what I thought nanaedake and I don't have a thyroid to instruct!

shaws profile image
shawsAdministrator

If you are in the UK and didn't get the Endos name from TUK , email louise.roberts@thyroiduk.org.uk of his/her name for her file.

I'd go by how I 'felt' on a particular dose and wouldn't bother adjusting dose as it is how our symptoms are being relieved which is the priority.

I would only reduce my dose if I had bad palpitations or high temp- usually too much hormones. 10mcg of T3 is equal approx, in its effect, to about 30mcg of levo. Before blood tests were introduced along with levo, we were given doses of NDT between 200 and 400mcg.

Helsan profile image
Helsan in reply to shaws

Thank you Shaws. I found him by researching online but i sent for list last week just to see and he is on it! Am elated at the moment especially with weight loss but may be too much to hope I lose the 5 stone I gained!

shaws profile image
shawsAdministrator in reply to Helsan

There's no reason your weight loss will stop as it has been proven scientifically that hypothyroid and/or levothyroxine can cause weight gain.

restartmed.com/levothyroxin...

greygoose profile image
greygoose

Were both tests done at the same time of day? Just curious. :)

Helsan profile image
Helsan

No as I said he wanted 4 to 6 hours after meds so that's what I did. Then next morning I did fasting one for medichecks. Quite close though but rah definitely higher but still suppressed.

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