Hello, I've posted before about my daughter's results from July 2017, with the GP telling us she was within range (TSH 3.38). Advice from people here prompted me to get some private bloodwork done via Blue Horizon, who have been great. The results are back, and as I expected. So back to the Gp with them to ask for steps to be taken to help her (better late than never I feel).
She was diagnosed as underactive in January and is currently on 50mg levythyroxine. July result of tsh 3.38 was said to be within range so no adjustments necessary. But we felt differently due to ongoing symptoms.
Big post ahead with lots of qs!
Total T4: 87 (nmol/L 59-154)
TSH: 7.24 (Miu/l 0.27 - 4.2)
Free Thyroxine: 15.3 (pmol/l 12.0 - 22.0)
Free T3: 5.1 (pmol/L 4.1 - 7.9)
Thyroid antibodies: 197.1 (IU/ml 0-115)
Thyroid Peroxidase Antibodies 388.6 (IU/mL 0-34)
She is borderline deficient in B12, Folic acid is low and has insufficient Vit D.
B12 256 (pg/ml 197-771)
Folate 2.2 (ug/L > 2.9)
Ferretin 34 (ug/L 13 - 150)
C Reactive protein 0.9 (mg/L <5.0)
25 OH vit D 38 (NMOL/l 50 - 200)
I just want her on the right levels of medication. I'm wary of cheap vitamin tablets being prescribed as an easy fix. We knew from initial hospital tests that her underactive thyroid was due to an autoimmune issue (runs in the family). I have fibromyalgia/ME and get 3 monthly B12 injections. I'd rather she didn't need to have them (and maybe betting ahead of myself) but am assuming the vitamin deficiencies are to do with problems with gut absorption?
Questions - anything I should be saying to the GP? I do want to know why her vitamin levels haven't been tested but I also just want to move forward and not play the blame game.
However, am I right that the children's hospital shouldn't be leaving her for 6 months without being tested/seen?
Could the GP question the validity of the private results from Blue Horizon since we did finger prick tests at home and posted samples off?
Given that her TSH was 3.38 in mid July and less than 3 months later is 7.24, I am assuming this is proof she is undermedicated and the problem is getting worse?
She hasn't had T3 measured until the Blue Horizon test. Is 5.1 acceptable? (The Blue Horizon range is 4.1-7.9
Thank you so much for your help/advice.