Newby: Am I going to die with these results... - Thyroid UK

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Summer8 profile image
17 Replies

Am I going to die with these results please

TSH 38.5 (0.2 - 4.2)

Free T4 7.6 (12.0 - 22.0)

Free T3 3.0 (3.1 - 6.8)

TPO antibody 286 (<34)

Ferritin 12 (15 - 150)

Folate 4.2 (4.6 - 18.7)

Vitamin B12 183 (180 - 900)

Vitamin D 23.7 (<25 severe)

Thank you

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Summer8 profile image
Summer8
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17 Replies
Nanaedake profile image
Nanaedake

All your vitamin levels are too low and this is probably why you are feeling so unwell rather than the levothyroxine. You need to go straight back to your doctor and ask for the correct treatment for these deficiencies.

Read SeasideSusie posts to find out how your vitamin levels need to be treated and take a copy to your doctor to make sure you get the right treatment.

Have you started the levothyroxine yet and have you contacted your doctor? I would contact him/her and ask for an urgent appointment, don't panic thinking you're going to keel over, but the sooner you get the right treatment the sooner you'll start feeling better and why should you suffer any longer?

Although your vitamin B12 is just in range, your doctor would be wise to treat you for that too because treating folate with low B12 could mask Pernicious Anaemia. He should probalby check instrinsic factor for pernicious anaemia. Post the B12 and folate result on the HealthUnlocked Pernicious Anaemia forum and ask their advice, they are the experts.

You have raised antibodies which means you have autoimmune thyroid disease otherwise known as Hashimotos. Vitamin D deficiency is common with Hashimotos. You need a high dose of supplementation so return to your doctor and tell us what he decides to do. Get him to do a full blood panel for iron deficiency too.

Summer8 profile image
Summer8 in reply to Nanaedake

No I do not take any thyroid medication

SeasideSusie profile image
SeasideSusieRemembering

That's a rather dramatic question and you've give us no information nor is there anything in your profile.

Can you provide us with some background please, such as are you diagnosed hypothyroid, are you on any medication, if so what and have you had dose changed at all and if so why? Any previous thyroid results? If you give us the complete picture we can try and help.

Summer8 profile image
Summer8 in reply to SeasideSusie

Thank you no I am not prescribed any medication and I am not diagnosed hypothyroid

Nanaedake profile image
Nanaedake in reply to Summer8

Hello Summer

Your results mean you are hypothyroid. That's why you need to take the Levothyroxine the doctor has prescribed.

Summer8 profile image
Summer8 in reply to Nanaedake

Thank you I haven't been prescribed any

Nanaedake profile image
Nanaedake in reply to Summer8

Ok, sorry, I think I'm going gaga or getting muddled with someone else. Have you got another appointment with your GP? You need to be prescribed some levothyroxine.

Summer8 profile image
Summer8 in reply to Nanaedake

No that's ok I don't have an appointment with my gp so I will go back and talk to him about my results

Nanaedake profile image
Nanaedake in reply to Summer8

Good, well I would make an urgent appointment on the basis that your vitamin D level is so low and your TSH level is high.

SeasideSusie profile image
SeasideSusieRemembering in reply to Summer8

Summer8 Your results show you are severely hypothyroid and need to be prescribed Levothyroxine immediately. Unless you are elderly, frail or have a heart disease don't accept anything under 50mcg. You will need retesting after 6-8 weeks, an increase in dose of 25mcg, another test 6-8 weeks later, another increase in dose, and so on until your symptoms abate and you feel well.

The aim of a hypo patient generally is for TSH to be 1 or below or wherever it needs to be for FT4 and FT3 to be in the upper part of their respective reference ranges if that is where you feel well.

**

Your high antibodies confirm autoimmune thyroid disease aka Hashimoto's which is where antibodies attack the thyroid and gradually destroy it.

The antibody attacks cause fluctuations in symptoms and test results.

You can help reduce the antibodies by adopting a strict gluten free diet which has helped many members here. Gluten contains gliadin (a protein) which is thought to trigger autoimmune attacks so eliminating gluten can help reduce these attacks. You don't need to be gluten sensitive or have Coeliac disease for a gluten free diet to help.

Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies, as can keeping TSH suppressed.

Read and learn all about Hashi's as many GPs don't understand it.

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

hypothyroidmom.com/hashimot...

thyroiduk.org.uk/tuk/about_...

Gluten/thyroid connection: chriskresser.com/the-gluten...

**

Ferritin 12 (15 - 150)

You need to ask your GP to do an iron panel, full blood count and haemoglobin test to see if you have iron deficiency anaemia and if so be treated appropriately.

Ferritin should be half way through it's range with an absolute minimum of 70 for thyroid hormone to work.

If you are prescribed iron tablets, take each iron tablet with 1000mg Vitamin C to aid absorption and help prevent constipaton. Always take iron 4 hours away from thyroid meds and two hours away from other medication and supplements as it will affect absorption.

**

Folate 4.2 (4.6 - 18.7)

Vitamin B12 183 (180 - 900)

You are folate deficient with extremely low B12. You might need testing for Pernicious Anaemia. Check to see if have any signs of B12 deficiency b12deficiency.info/signs-an...

You should post these results, your ferritin result and any signs of B12 deficiency on the Pernicious Anaemia Society forum for further advice healthunlocked.com/pasoc

**

Vitamin D 23.7 (<25 severe)

You need to speak to your GP and ask to be treated for severe deficiency and this will be loading doses of D3 to start with. Check out NICE treatment summary for Vit D deficiency:

cks.nice.org.uk/vitamin-d-d...

Treat for vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 30 nmol/L.

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU]) given either as weekly or daily split doses, followed by lifelong maintenance treatment of about 800 IU a day. Higher doses of up to 2000 IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders. Several treatment regimens are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

Each Health Authority has their own guidelines but they will be very similar. Once the loading doses have been completed you will need a reduced amount to bring your level up to what's recommended by the Vit D Council which is 100-150nmol/L and then you'll need a sensible maintenance dose which may be 2000iu daily, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with City Assays vitamindtest.org.uk/

Do not accept 800iu D3 from your GP, that is their recommended maintenance dose, but it isn't even enough for someone with a decent level to start with. You must have the loading doses.

There are important cofactors needed when taking D3

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds

naturalnews.com/046401_magn...

Check out the other cofactors too.

Summer8 profile image
Summer8 in reply to SeasideSusie

Ok I see my gp tomorrow to discuss results and a complete blood count done 3 years ago from my previous surgery showed

MCV 76.5 (80 - 98)

MCHC 385 (310 - 350)

Haemoglobin estimation 115 (115 - 150)

MCH 28.1 (28 - 32)

Platelet count 254 (140 - 400)

Haematocrit 0.400 (0.370 - 0.470)

Iron 7.2 (6.0 - 26.0)

Transferrin saturation 12 (15 - 30)

SeasideSusie profile image
SeasideSusieRemembering in reply to Summer8

Well it looks like you had iron deficiency anaemia at the time. Was it treated?

Those results wont be any good now, you need new ones. You could show those old results to you GP as a bit of a nudge to test them now, especially considering your Ferritin is under range.

Summer8 profile image
Summer8 in reply to SeasideSusie

Thank you no it wasn't treated

SeasideSusie profile image
SeasideSusieRemembering in reply to Summer8

Your GP was negligent then :(

Rmichelle profile image
Rmichelle in reply to SeasideSusie

Hope you dont mind me jumping on here, but what the hell, how can docs get away with it, i didnt believe at first when people on here said docs havent a clue, until i have experienced it myself.

Nanaedake profile image
Nanaedake

They got away with it because we were kept ignorant of our blood tests until recently. Now we know.

Not if you are treated with thyroid hormones and your severe vitamin deficiencies are sorted out. But you do need treatment urgently. You might also like to pop across to the Perncicious anaemia society on HU to get their advice on your B12 and folate results. If you doctor has seen these results and is not treating all of them, s/he is acting negligently. You might also need a referral to gastorentrology to see why you aren't absorbing vitamins from your food.

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