Wilsons temperature syndrome: Hello, I'm new here... - Thyroid UK

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Wilsons temperature syndrome

janechap profile image
5 Replies

Hello, I'm new here!

I live in the UK and have arrived at this site after reading about the connection between headaches / migraine (that I have suffered with all my life) and thyroid on Trust me I'm a Doctor.

I am just trying to get an understanding of all this, so reading bits and pieces but finding it very confusing especially with brain fog and concentration issues. I have had some blood tests -

folate - 8ug/L range -2.00-17ug/L

vitB12 -364 range -200.00-900.00ng/L

ferritin - 99ug/L range - 15-250

TSH -1.1mu/L range -0.35-5.00mu/L

FT4 - 17.5pmol/L range - 9.00-24.00pmol/L

FT3 - 3.9pmol/L range - 0.35-5.00pmol/L

Can anyone tell me if these say anything? I have spoken to my GP briefly about Wilsons Temperature Syndrome (she hadn't heard of it!) as I have a number of symptoms and always low body temperature. The more I read the more I would like to try the WT3 protocol. Has anyone tried this for a short period even if their blood tests showed all normal?

Thanks for any advice.

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shaws profile image
shawsAdministrator

I shall give you a link from a doctor who didn't approve of Wilson's Syndrome. I shall have to find it first :)

shaws profile image
shawsAdministrator

The answer is in the first question/answer:

web.archive.org/web/2010103...

Clutter profile image
Clutter

Welcome to the forum, Janechap.

You appear to have retyped the TSH range instead of the FT3 range but TSH 1.1 and FT4 17.5 are unequivocally euthyroid (normal).

Folate and ferritin are adequate. B12 <500 can be deficient so if you are experiencing the symptoms outlined in b12deficiency.info/signs-an... go to healthunlocked.com/pasoc for advice.

Wilson's temperature syndrome, isn't an accepted diagnosis. Rather, Wilson's syndrome is a label applied to a collection of nonspecific symptoms in people whose thyroid hormone levels are normal.

Wilson's syndrome: An accepted medical diagnosis? - Mayo Clinic

mayoclinic.org/diseases-con...

janechap profile image
janechap in reply to Clutter

Oops! you are right I did make a mistake. T3 -3.9 range - 3.50 - 6.50pmol/L

Thanks for the replies and information, it sounds like there is not enough research on the WT3 therapy ..... I just would like to believe it could really be that simple?

SilverAvocado profile image
SilverAvocado in reply to janechap

Your freeT3 actually is fairly low, even though your freeT4 is very normal. I don't know enough to know whether this is significant.

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