Wilsons Temperature Syndrome: Hi all After... - Thyroid UK

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Wilsons Temperature Syndrome

Hellybell profile image
17 Replies

Hi all

After months of battling with doctors to be told that all my TSH levels are within "normal" parameters it was suggested that I take my temperature 3 times a day to see what the reading were. Imagine my surprise when my temp 3 hours after waking is only 35.6, over the past few days my average body temp is around 36 degrees C. Apparently this could be causing some of my issues any ideas?

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Hellybell profile image
Hellybell
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17 Replies
Jackie profile image
Jackie

Hi I have always had a very low body temp. Before treatment I had a below normal Free T3. Is yours OK?Now on the correct treatment I still have very low body temp, I always have unless ill.

Jackie

Emidjemal profile image
Emidjemal

Hi yes while I was on levothyroxine my temperature was between 34-35 even though at night I felt like I was burning hot my temps were still low. On t3 my temps are back up and and at night I'm not burning hot

Marz profile image
Marz

Low body temperatures normally point towards being Hypo. Check out Dr Broda Barnes - no longer alive - but was a great believer in the temperature protocol for thyroid issues.....

Best to take your temperature on waking before getting out of bed I was told. I believe the Wilsons protocol is to do with Adrenals isn't it ?

You have reminded me to take mine :-)

ukangell profile image
ukangell

My temperature does daft things. I've not taken my temperature but I get where I feel very cold and I go to bed and have an afternoon nap when I wake my temperature is back to normal and I'm no longer shivery and cold. I have adrenal issues though.

rosetrees profile image
rosetrees

Virtually everyone with hypothyroidism and hypoadrenalism has a low body temperature. Is Wilsons another made up syndrome to avoid treating the underlying cause?

Order the saliva cortisol test from Genova UK thyroiduk.org.uk/tuk/testin...

Most adrenal forums recommend taking your temperature as a way of knowing whether your cortisol levels are optimal. I'm struggling with that, although my temperature has gone up. Usually around 35.8 when I wake, up from 35.5

helvella profile image
helvellaAdministratorThyroid UK in reply to rosetrees

Wilson's may be made up or not (it is very controversial) but the treatment is T3. Does it avoid treating the underlying cause? I couldn't say.

wilsonssyndrome.com/

Rod

stockman27 profile image
stockman27

Hi there is a school of thought that would suggest that this is a problem but trying to find an NHS dr to treat you thats another thing. You will have to find a private dr that specialises in this area.

John c

Amalie105 profile image
Amalie105

Hi Hellybell - I have the same temps. Some days mine have been as low as 35.2C. My endocrinologist ran tests which showed 'normal' TSH but low T3. He didn't seem too fussed about the low temperatures though. I'm currently waiting for further tests. Do keep me posted if you hear of any advice on correcting low basal body temperatures!

Best,

Amalie

faith63 profile image
faith63

Low thyroid causes low Adrenal function..low cortisol. T3, not timed released is a better bet. Wilson's syndrome is really just low metabolic rate, which is hypo!

Shazzy2 profile image
Shazzy2

Yes Iv just been told I may have wilsons by dr Asher

jax44 profile image
jax44

hi

I,ve found liquorice helps

jax

shaws profile image
shawsAdministrator

This is a link re Basal Temperature:

holistic-hypothyroidism-sol...

waveylines profile image
waveylines

I also have had a much lower temperature since being diagnosed with hypothyroidism. Levothyroxine did not work for me -a natural desiccated thyroid works out best. I have found I need to be careful of the fillers in tablets as some of the filler seem to inhibit uptake. i know when my thyroid treatment is not working as my temperature drops -amongst other symptoms!

winschild profile image
winschild

What about temperature that continually fluctuates; one minute I'm cold the next too hot.

Hellybell profile image
Hellybell

Hi all thanks for the replies. Have been checking temps 3 times a day for the past for days

average temp is about 35.6 to 35.8. This seems to be low. Have also been told that a low basal temp can also contribute to slow metabolism? this could explain some of the inability to lose weight!

frogandprincess profile image
frogandprincess

I came across this website and email address normalbodytemperature.co.uk... html. On there, Janey Hood (janeyhood1@gmail.com) writes about her exchange of emails with Steve Richfield of Central Metabolic Control Systems (his own research and practice). He is a holistic thinker and quite scathing about the big lies he has found in the medical and chemical industries. They had compromised immune systems and suffered from low body temperature. She had hypothyroidism, breast cancer and many other illnesses which responded resoundingly to Steve's approach which he had tested on himself. See what you think after delving into her story: I took most of yesterday to read and absorb it and try out the method of raising your low base temperature rate by 'training your pituitary' like one would a dog, and I spent a day using the method to heat my body up to the optimum temperature for coping with any illness and toxic imbalance. The next day my own body, which has had a set point of 35 or 36 degrees C raised itself to 37 degrees much more easily and quickly. I have told my GP that I am monitoring how this could work for me in getting my thyroid condition into equilibrium. Quite impressed at the moment. I can't describe what it was like to go shopping with a hat, winter coat and leg warmers, and Ugg boots with plastic bags inside to stop my sweat ruining the sheepskin linings. It was a sunny day too. Hey ho.

RobinPaulWilliams profile image
RobinPaulWilliams in reply to frogandprincess

Hi Frogand princess

The Normal Body Temperature link you posted no longer works!

Wondering how you are getting on with your Pituitary training?...

Robin

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