I've been feeling so unwell for months and I just broke down at work 5 weeks ago and been signed off sick up until now.
I'm seeing the doctor tomorrow who doesn't have a clue and I'm worried that when I take my blood results she will say fine, go away and stop being paranoid.
I had 3/4 'a of my thyroid out 15 years ago.
Recently had a scan as I felt there was a lump in my throat when I swallowed. Scan came back saying 3mm nodule on left lode and reduced echogenicity could indicate impaired thyroid.
Results are
Active B12. 105pmol/l. R (25.1-165.0)
C reactive prot. 1. R (0.0 -5.0)
Creatinine 83 ml/min. R (49 -92)
Calcium 2.43 mol/l. R (2.20 -2.60)
Corrected calcium 2.32. R (2.20-2.60)
Phosphate 1.2 mmo/l. R (0.87-1.45)
Testosterone <0.4 R (0.2-2.90)
Thyroid stim hormone 2.84. R(0.27-4.20)
Free thyroxine 15.2. R(12.0-22.0)
Total T3. 1.5. R (1.3 -3.1)
Vit D. 56nmol/l. R it says deficient <25 nmol, insufficient. 25 nmol
Consider reducing dose 200 nmol/l
Freer t3. 4.0. R (3.1-6.8)
Platelets 450. R (150-400)
Lymphocytes 136. R(1.5 - 4.0)
Thank you thank you thank you for any one that can give me some light on these results.
Good night guys
That was so stressful typing in them numbers xxxxxxx
Melanie
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Melanier100
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Are you on Levo/T4 ? What other medication are you taking ? VitD is low and needs supplementing. You could be low in iron - no Ferritin or Folate tested.
Sorry for the late reply and Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
Sorry for the late reply and Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
Yes the TSH is only 2.5 but that can still make you feel bad. If you are on T4 only it would be good if you could get some T3 - or the medicine that is a combination of T3 and T4. As the other post indicate you may not be converting the T4 to T3 . Selenium will help you with the conversion - and Zinc. I understand that there in the UK you have a hard time getting the medicines that are combination T3 and T4 - but from the posts that I see it doesn't hurt to ask sometimes the doctors will prescribe it for you - otherwise you may have to get it on your own . But try the selenium and the zinc you'll be amazed at how much it helps . Of course you need the vitamin D3 - that also is quite normal for hypothyroid patients to be low - it might even help with the nodule. That's a few things you can do for starters . I'm sure the others here will have more information for you . Hopefully you'll get a kind Doctor Who listens . I know that's extremely optimistic ! Do share with us what the doctor says and hang in there there are some things you can do. Oh yes and one more thing if you have not removed gluten and dairy from your diet do an experiment with that as well again you'll be amazed at how much better you feel . Try at least a 90 day experiment with removing gluten and dairy . Take care my friend you have lots of Caring people on this forum - you can get to feeling better with the advice found here as many of us have .
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
I am nowhere near as experienced in explaining how the thyroid works but there are some amazingly knowledgeable people on here who will help so don't feel you are alone. I can assure you your sense of feeling totally overwhelmed by the stress of it all is a shared experience as l remember too going to work cheerful and upbeat but quietly sobbing at home because l feel so ill and so frightened by all the symptoms l couldnt control or understand. You really are in the right place to get some support and answers which hopefully will help you to feel empowered to tackle your symptoms. I will let others interpret your results but l will say that If converting T4 to T3 is your problem, l was lucky enough to find a naturopath who prescribed me Nutri Advanced supplements that dramatically improved how l felt after 3 months and my bloods came back much improved (l have Hashimoto's) I was prescribed Nutri Advanced Thyro Complex, Nutri Advanced Thyroid and Nutri Advanced T-Convert as well as Vit D 4000iu daily. The T-Convert has the added Selenium and Zinc that supports T4-T3 conversion. I've given up all gluten and dairy and it's made a massive difference, again, stick with, it takes at least a few weeks to notice a difference. I really hope you start to feel better soon, Holly x
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
Oh l feel so sorry for you. Stay strong Melanier. You know, for some reason Doctors seem to feel really offended and get so defensive when you want to question their advice, and given how complicated thyroid illness is you'd think they'd be pleased that you were being proactive in trying to get well and help yourself. Please don't give up. I'm glad your writing a letter to the consultant. I've gone from being a nervous mouse who first went to my doctor with a copy of Doctor Peatfields excellent book and a copies of my correct diagnosis from a naturopath that cost me a most of my wages to see and l also left fighting back tears, mainly of humiliation at being spoken to like a stupid woman and also out of fear and desperation that ld never get well again but now l feel so much more confident and, Knowledgable and supported, mainly because of the wonderful advice on this site. Keep strong and dont be intimidated or fobbed off. There are some incredibly knowledgable people on here who have done their homework, have lived the experience and, and DO know what they are talking about, despite the patronising tone your doctor used, stick with it, your on the right track to getting answers and proper help. Good Luck, Holly x
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
Hi, I cannot say for certain what's caused your conversion issues.. probably multiple reasons.
I'm already gluten free and have always had low stomach acid and have made diet changes and taken supplements to deal with SIBO (IBS caused by fermenting gut bacteria).
I also hit a wall recently with symptoms - seems my supplements - namely b12 and folate - were becoming out of balance plus I was using up iron / vitamin D stores. My doctor's going to need some convincing that I need a full panel of tests as she was happy how I was in the summer (so was I) and it'd probably be a case of unnecessarily shunting back and forth (so I'm going to get some private tests done).
Following an extensive search I found a superior iron supplement that has cofactors and enzymes to help absorption and I'm starting to feel a bit more normal. I also started on a new b complex with a different ratio of B's rather than mega-doses ( I check out other forums wrt. supplementing and am surprised by the extreme doses some will take to fix a problem only to get another problem.) Hopefully, these adjustments will help.. but I cannot hand on heart say they've worked until a month or two's time! Whenever I take b vitamins it's essential for me to have Magnesium as well.
N.B. Anyone who's hypothyroid which usually means low stomach acid cannot absorb b12, folate, magnesium, iron, calcium, zinc and selenium that well - which is ironic because all are needed to help us get better and many are essential for T4 conversion. When doctors insist on giving us T4 they should also give us a hand-out of minerals / vitamins / digestive enzymes we'll need too!
I absolutely agree with your last paragraph - GP's don't seem to understand that when they diagnose a patient as being hypo/hyper..... that a lot more information is needed. I would have really, sincerely appreciated a handout that warned/advised me of possible problems - and how to manage these. and I am sure many others ow;d have too. Its pretty disgraceful that, given the fantastic medical advances we have made in this 21st century, our health system is so backward in many areas - especially in the communication zone.
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
Your high lymphocyte count indicates an underlying infection / illness (possibly glandular fever which would correlate with the lump in the throat feeling). I'm sure Doc will investigate that as it's a red flag to them.
Unfortunately your low T3 probably won't be, so please take on board posters advice re: vit D / iron / selenium / zinc etc. as per my experience (above) it's not easy getting the balance right.
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
I suspect that some doctors are very driven by dopamine...which is a hormone that is prevalent among teenagers. For some reason, they exhibit Jeremy Clarkson style road rage when challenged.
I agree with greygoose that your T4 is low and it's very irresponsible of him to not even trial out a higher dose. Iron and vit d will help with conversion.
I don't think your conversion is as bad as others are saying. You just don't have enough to convert, that's all. If you are taking thyroid hormone replacement, you need an increase in dose. If you aren't, then you should be, but convincing your doctor will be difficult with that TSH - which, whilst in range, is too high for good health.
I started a reply to her yesterday but looking at her first post she said she had been treated for fifteen years already and was on Effexor at 300 mgs. I couldn't figure it out.
Well, this is her first post here, the other one was to a depression forum. So, I take it she hasn't got a diagnosis of hypo. Although she should have.
I've been on Effexor for 15 years 300 mg per day, plus I'm on 300 mg of lamictal as I have been diagnosed with bipolar and I've been told I will never be able to come of mediation for the condition I have. I'm just thinking that maybe after 15 years on Effexor my body is now use to the drug.
And then to make matters worse had thyroid out feeling low tied, tearful ect
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
I'm so sorry, bipolar is a difficult condition to manage. A few years ago they were going to do some research using T3. I'm not sure if anything came of it but antidepressants are known to interfere with thyroid function. hmmmm All I know is a doctor (a real M.D., haha) said those medications will change your brain chemistry and not to stay on them other than a temporary basis. You've had them for fifteen years?
He was a wonderful doctor so I'm going to look back at his archives to see if he addresses bipolar but I have posted Dr. Bergman's videos because he has the same mindset to support the bodyand understand it is smart in everything it does and has a good reason for it. I will check and get back to you.
The archives are from 2004 but a book was mentioned and one experience I found interesting.
"The Brain Chemistry Plan" by Dr. Michael Lesser, M.D. He categorizes different brain types and their various nutritional deficiencies and remedies.
This is an excerpt from a patient:
"hi there--
i was daignosed with bipolar disorder about 7 years ago with symptoms of t beginning about 10 years ago--i am 27--it is hell to live with---the worst thing i have ever experienced (and i have many other health problems so my heart goes out to you as i can relate to what you are going thru--i would definately say that being on meds and doing natural stuff does not have to be mutually exculsive--i understand your need to go on mdication for some relief of symptoms--and do not feel guilty about doing that--but i wouls also try to worok on the nataurl stuff to and mybe ay some point you can try to gradually ween off of some neds if you are feeling well ans see how that goes--it's a caerful process but it can be done---i have been on lithium, wellbutrin, serzone, gappabentin, zoplicone for years and i was able to ween off of 3 of them after adressing some issues naturally---and i am slowly weenig off of the others when i am ready with the help of my doc--magnesium has helped me and many people with bipolar depression and unipolar depression--many people with depression are deficient in it--diet is extremely important--i knw that seems typical to ssay but it is---cut out any alcohol, simtulants of any kind like caffeine and refined sugars and even considering cutting down on your carb intake--exceric everyday--walking for 30 minutes--and pratice skilled relaxation or meditation--i guarantee you this will help--i use to be suicidal all of the time but now my moods are much better and i am never manic anymore--this s something you will have to 'manage'the rest of your life--but it can get better--goodluck"
Thank you so much for all your help and advice I'll take on board what you have said, you seem to have been through a hell of a lot and I do appreciate your empathy. Defo try the exercising bit x
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
I'm so sorry you had to put up with that. Their egos are so fragile, they cannot bear any competition, and they cannot contemplate the idea that they might be wrong. And, they would much rather dish out antidepressants, for an illness that you cannot test for, rather than do the right tests and diagnose hypothyroidism. They get funding points for the antidepressants. They get nothing for levo.
Good luck with your letter, and well done for writing it. Did you mention that Thyroid UK was an NHS Choices forum? The NHS themselves, recommend that people come on here for advice.
Hi again Greygoose, I did mention thyroid uk and he completely dismissed that too. I went to speak to the receptionist afterwards and she said he is such a rude doctor and he's stressed as One of the other doctors phoned in sick and he had to cover both surgery's. So I got the brunt of it.
But I can assure you my letter will not be very flattering towards consultant or doctor.
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
So sorry your Dr is a complete ass! Change Drs. Poor you.
Are your lymphocytes 136 or have you typed that wrong?
A lot of us self medicate. I take NDT and have been sooo much better. Have you considered it?
Re antidepressants, that's such a long time to be on them and you're probably not depressed. With thyroid issuesyou feel so awful that the dr thinks you are depressed when you're not. If you sort thyroid meds and other vitamin deficiencies you won't need them!
I was left on them for 7years. The best thing I did was to stop.
Hope you get somewhere with your letter.
If you want proper bloods and results
Bluehorizonmedicals have private blood tests.
Thyroid 11.12 & 15 are all good comprehensive tests.
Look at my past posts too, there's a list of everything I've found that helps. X
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
Thank you so much replying to post, it's really is appreciated as I know it takes a lot of time and effort to have looked at my results.
So I went to the doctor on Tuesday, showed him my results and he said all is normal and basically your wasting my time. I them went on to say that I had registered with a thyroid forum and posted my results on line, I had lots of feedback and that's when he interrupted me and said, NO ! I don't want to look at what these people are saying, there not doctors and it's only an opinion, would you go up to someone in the street and ask someone there opinion on any illness you had. So,I then went on to say your my doctor then it's your responsibility to find out what's wrong with me. He then asked my age my symptoms again and said your pre-menopausal I'll put you on HRT. I said I'm convinced it's to do with my thyroid and he just would not have it. At that point I started to cry and took the prescription. My husband was disgusted the way he had spoken to me so we are putting a letter together one to the consultant and one to the doctor with many of the points you guys emailed me about. I'm so Fed up and feel as if I'm banging my head against a brick wall. Again thanks for all your advice and I'll keep you updated and post you a copy of the letter when we have written it.
It's so annoying how dismissive doctors can be. I had my thyroid out due to a lump that may have turned cancerous I was told. At the time I was not under or over, but it was a year later I started to take antidepressants and I've always wondered had I been diagnosed incorrectly all those years ago, as I never showed any signs of dression before my thyroid was removed.
Thank s for letting me know about not repeating my replies it was stressing me out a bit x
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