This is my first post. I am 59. After many years of undiagnosed Thyroid related illness, I was finally diagnosed with Hashimotos in 2015. My father had the same late diagnosis. He died just five years older than I am now, aged 64 of a massive Stroke. At the end he was morbidly obese, with very high blood pressure. He had all of the usual thyroid symptoms. He also had significant hearing and sight loss. I have two younger sisters. They were both diagnosed around 15 years ago, one with Hyper and the other with Hypo. They have never been given an Antibodies test. I had been tested a number of times over the years, but my bloods always came back as 'normal'.
I was finally found to have Hashi's following a collapse at a hospital. I had gone to be with my son, who was having an operation. I suddenly became very dizzy, was profusely sweating, had violent vomiting and then fainted. I was taken to A&E, where they found that my body temperature had drastically dropped too. I recovered after a couple of hours. A week later I had blood tests taken at my GP surgery. My TSH was over 100 (range: 0.34 - 5.3) and my T4 was 3.3 (range: 7.1 - 21.1). I had gained 6 stones in two years. My blood pressure was very high. I was pre-diabetic and I felt absolutely terrible. I was referred to an Endo, who prescribed Levo. He gradually increased the dose over a year or so because it wasn't improving symptoms. He then added 10mg T3 to 75mg of Levo. I lost 5.5 stone and felt a lot better for the next 12 months or so. He took out the T3 due to NHS costs.
I started my own Cleaning business a year ago. I've had to push myself very hard, five long days a week. The old symptoms have come back. I have gained three stones and am running on empty. My blood pressure is rising and I look and feel awful. I've raised my Levo dose to 100, then 150mg. No difference. I have a bottle of T3 tablets left, and have added T3 back in. Still no difference. I'm Vit D deficient. I've been supplementing this plus B12, magnesium, selenium, zinc, K1, K2 for a month.
I am terrified that I am heading for the same untimely end as my father. Can anyone help with what's going on, and potentially what I can do to get better? Thank you for reading my very long Post!
My blood test history (roughly every 3-6 months since 2014.
TSH (range - 0.34 -5.3) T4 (range - 7.1 -21.1) T3 (range -4.3 - 6.8)
0.08 Levo started 14.9
0.17 Levo + t3 added 8.9
0.01 t3 stopped No test
0.01 latest test 23/03 12.6 5.2
100mg Levo/no t3