Testing for coeliac

[Josie8]

I was wondering how to prepare for full testing for coeliac, I have Hashimotos due to raised antibodies and I have suspected gut problems because I am unable to gain weight when I eat quite a lot. I had a blood test for coeliac and an endoscopy about 3 years ago but I was not eating very much of anything due to a goitre and loss of appetite and I am thinking that because I was not eating gluten every day due to my loss of appetite and goitre that the coeliac test results were skewed? Do I need to include gluten in every meal I eat?

Thankyou

[SeasideSusie Remembering]

Josie8

"As a general guideline, the recommendation is to eat some gluten in more than one meal every day for at least six weeks before testing."

From coeliac.org.uk/coeliac-dise...

Worth doing some research.

[crimple]

Coeliac test is not totally reliable. False negatives and false positives. I reduced my TPO's by going GF and it made quite a difference to my symptoms. If you do go GF read the labels on everything very carefully, Gluten gets everywhere!

[Ruthi]

Your gut problems could also be due to undertreated hypothyroidism. So a proper full thyroid panel would be a good idea too.

My gastroenterologist told me that with the double blood test there is only a one in a million chance of a false negative. But I was still sensitive to gluten!

[Josie8 in reply to Ruthi]

Thanks for reply I am treated for hypothyroidism.

[Ruthi in reply to Josie8]

Do you have your latest blood results?

[Ruthi in reply to Josie8]

Ah, just looked back at your posts. Did they change you meds after those tests in January. Because you were definitely under medicated then.

[Josie8 in reply to Ruthi]

Thanks for reply, the dose was changed but there has been no improvement in symptoms. I am guessing the low vits and mins may have something to do with it.

[Ruthi in reply to Josie8]

Low nutrients certainly won't help at all. But they may or may not be the whole answer.

I was optimally medicated and all my nutrients were good but I still had digestive problems. I presented as a classic Silent Coeliac but tested negative but the consultant suggested I go GF anyway and it helped a great deal. GF products all gave me terrible heartburn as did most of the non gluten grains.

But my other symptoms, brain fog, fatigue, aches and pains, anxiety, inability to lose weight all remained till I started eating ketogenically.