I was told I have coeliac disease when they did an endoscopy for pancreatitis in 2006. The man doing the endoscopy said that there was some sore looking skin in my stomach that didn't look right whilst he was doing the endoscopy so he did a biopsy, from which they decided that I have coeliac disease, even though they also tested my blood TTG and it was negative and I never get pain when I eat food containing Gluten. They told me that eating gluten could make me very ill in the future and I really need to be on a GF diet, they had worried me with this so I went straight onto a GF diet, I bought a new toaster spent a fortune at the shops, I even bought a bread making machine so I make my own GF bread, I made sure all sauces, gravies etc were GF as well. The GF diet made me feel very ill, being sick, runs and bad indigestion, but I kept going for 6 weeks on the GF diet thinking that once my body got used to the changes the side effects would go but they didn't. Over the years I've had my blood TTG tested loads of times always negative and I've had my TPO tested many times always fine, last time the level was 10.
I have tried eating a GF diet many times over the years and every time I get ill with it. When I eat normal foods I am absolutely fine, my gastro specialist keeps insisting that I eat a GF diet based purely on one endoscopy 8 years ago he ignores the fact that it makes me feel ill. So my question to you guys is: As Coeliac disease is an auto immune disease shouldn't the TTG and the TPO always show as high/positive in the case of coeliac disease? Thanks for your help!