Coeliac screen result: Hoping someone can help... - Thyroid UK

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Coeliac screen result

Katiethedubs profile image
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Hoping someone can help interpret my coeliac screening result. My doctor said no action required but I’ve picked it up today and I had a few questions:

Anti Tissue Transglutaminase IgA <0.1 (0-7)

Serilogically negative for coeliac disease.

I have Hashimotos and wondered if gluten may have been a trigger so asked for this test. I’m very happy not to worry about eating gluten but the IgA range puts me right at the bottom but I’ve no idea if that’s good/ bad, denotes sensitivities or is nothing to worry about.

Thanks I’m advance!

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Katiethedubs
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Cooper27 profile image
Cooper27

You're absolutely fine. The coeliac antibodies can climb pretty high. They'd maybe retest you in the future if you'd come back with a result of 5. The coeliac test tops out at 180, so <0.1 is about as negative as you can be.

Katiethedubs profile image
Katiethedubs in reply toCooper27

Thanks very much! What a relief! Gluten free pasta is no substitute 😂

Cooper27 profile image
Cooper27 in reply toKatiethedubs

It could still be worth a 30 day trial following a gluten free diet, to see if it helps your Hashimotos symptoms.

The coeliac screen means you don't have coeliac disease, but only 5% with Hashimotos also have coeliac, while 75% say they noticed an improvement in symptoms when they cut gluten out. Unfortunately the only way to know it's to go for a while without.

I know the pasta substitutes are awful though! I think the best I've tried is the green split pea pasta that you buy from Morrisons.

Katiethedubs profile image
Katiethedubs in reply toCooper27

I did strict GF for 6 weeks and didn’t feel any different. I reintroduced for the coeliac test and again had no reaction despite the abstinence. So thinking in probably OK. I don’t eat loads of bread, pasta etc but occasionally do and would obviously prefer not to be restricted! I have to say I only found out I had Hashimotos through trying for a baby, I otherwise felt totally fine in myself. I don’t feel any worse or better for being medicated really. Sadly I did not lose a stone as hoped 😂

SlowDragon profile image
SlowDragonAdministrator in reply toKatiethedubs

How low is your TSH on Levothyroxine?

TSH should be under 2.5 before TTC

FT4 towards top of range and FT3 at least half way in range

Low vitamin levels are extremely common with Hashimoto's, have you had vitamin D, folate, ferritin and B12 tested?

What supplements do you take?

Obviously good levels of folate and B12 are essential for pregnancy

Gluten can increase antibodies. Did you test antibodies before going GF.

Though it would take 3-6 months for them to start to drop. Not just 6 weeks

Pregnancy guidelines

thyroiduk.org.uk/tuk/about_...

gp-update.co.uk/files/docs/...

thyroiduk.org.uk/tuk/guidel...

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Katiethedubs profile image
Katiethedubs in reply toSlowDragon

THanks slow dragon. I didn’t test antibodies- have done on past but not as part of GF experiment.

Have had all tests done and all ok and my tsh is now v low 0.1-0.3 so slightly lower than lab range (0.4). Am 6 weeks pregnant but advised not to increase dose yet but feel uncertain it’s correct advice.GP spoke to endo at kings who agreed based on my tests but I’d dosed that morning. I read somewhere that tsh level won’t be altered by that but meds before test do give a false T4 reading. My T4 was quite high 21- but within range. I may pay for private tests with T3 for my own peace of mind.

Cooper27 profile image
Cooper27 in reply toKatiethedubs

I'd say if you managed the 6 week gluten challenge after being GF for 6 weeks and had no ill effects, you are ok with gluten. Put it this way, most people with gluten intolerance or coeliac disease can't manage more than 3 days back on gluten...

SlowDragon profile image
SlowDragonAdministrator in reply toCooper27

Many people are silent coeliac or silent gluten intolerance......this means they have absolutely no obvious symptoms connected to gut or gluten.

Many Hashimoto's patients find this is the case

Cooper27 profile image
Cooper27 in reply toSlowDragon

I know about silent coeliac - my OH was one, and I've met many silent coeliacs since his diagnosis. Aftert 6 weeks on a gluten free diet though, a coeliac gets severe symptoms from eating gluten again. Even just if something was fried in the same oil as an onion ring.

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